Tips + Know the difference

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If you wish to check further about the different lung conditions to gain a greater understandanding do check out Patient UK pages, just type the condition in the search box top right.

Below are three patient UK page links, Asthma, Bronchiectasis and COPD.  Sometimes people group all lung condition or breathing difficulties under the COPD banner, this is not the case and because each lung condition is different and the patient may present one or more lung or breathing issue, symptoms and medication may vary and often some medicines are tailored to suit the individual..  

For each lung condition you may also find a different discussion forum, you can check this through patient UK search box also.

Three links:

Asthma:  https://patient.info/health/asthma-leaflet

Bronchiectasis: https://patient.info/health/bronchiectasis-leaflet

COPD:   https://patient.info/health/chronic-obstructive-pulmonary-disease-leaflet#nav-4

If you scroll down on the COPD page its says:

Quote.

What's the difference between chronic obstructive pulmonary disease and asthma?

COPD and asthma cause similar symptoms. However, they are different diseases. Briefly:

In COPD there is permanent damage to the airways. The narrowed airways are fixed, and so symptoms are persistent (chronic). Treatment to open up the airways is therefore limited.

In asthma there is inflammation in the airways which makes the muscles in the airways constrict. This causes the airways to narrow. The symptoms tend to come and go, and vary in severity from time to time. Treatment to reduce inflammation and to open up the airways usually works well.

COPD is more likely than asthma to cause an ongoing cough with phlegm (sputum).

Waking at night with breathlessness or wheeze is common in asthma and uncommon in COPD.

COPD is rare before the age of 35 whilst asthma is common in under-35s.

There is more likely to be a history of asthma, allergies, eczema and hay fever (so-called atopy) in people with asthma.

Both asthma and COPD are common, and some people have both conditions. (See separate leaflet called Asthma for more information.)

End quote

Reference it being uncommon for people with COPD to wake during the night with breathlessness.  This can happen with COPD if the person has a lung infection, pneumonia or very badly damaged lungs, I'm talking a very low lung function.  I've known and know people with severe COPD whose lung function between 17 and 24% who experience distress during the night.

I would think ask your doctor (make telephone appointment with the doc about any concerns you may have) explaining what is happening during the night and what you can do to help the situation.

Things that can help easier breathing when sleeping:

1) Raised pillows or bed wedge for on top of the mattress or beneathe the mattress.  

You can access the OT Services through your GP for assessment if you are having difficulty at home, breathing when sleeping, walking, having a shower, bath etc.

2) An finger oximeter.  This measures blood oxygen levels, pulse and heart rate.  Your doctor or respiratory nurse would have one of these.  If you are concerned about your blood oxygen levels you may wish to purchase one of these (amazon have them) and check it against the one your doctor or respiratory nurse uses for accuracy.  The cheaper oximeters can work just as well as the more expensive ones, but they may not last as long or may break more easily if you drop them.  

If you are ever worried about your blood oxygen levels do ask your doctor or respiratory nurse to check them.  Search web for symptoms of low blood oxygen levels (put UK or country you reside after what you are searching for).  Web MD have a listing titled Hypoxia and Hypoxemia which may give you some understanding.

I am not a medical professional but I have had emphysema for over 10 years and have been associating with people with different lung conditions during that time.  10 years + is a lot of learning about lung conditions, especially as I was once involved with the lung foundation and with a local breathe easy group.  Often referring people to the information available or reporting tips and information in the BE newsletter.

I do not visit Patient UK forum regularly but I do pop by from time to time. The post is long but  I hope some of the information is of help to those who may take the time to read it.

Best wishes V

PS 

Pulmonary Rehabilitation for people with diagnosed lung conditions is an excellent education programme which includes techniques and knowledge to help yourself manage your symptoms, identify a lung infection, the importance of diet and exercise and so much more.  The more you read or get to know other peoples experiences the more you will realise whilst we share many of the same symptoms and difficulties, we don't all share the same ones, it really does depend on the diagnosis, some just having one lung disease or airway disorder and others have 2 or 3 different lung or airway problems going on.  This of course means some will be on the same medicines and others will not.  Some react to medicines which can make symptoms worse in that case go back to see the doctor, its always the best thing to do and always act quickly should breathing deteriorate or symptoms are exacerbated.

Also if you are ever in serious difficulty breathing, don't hesitate to call the emergency service, the paramedics will come out quite quickly and they can decide if you need to go to hospital or if you can be treated at home.  

Attending a Breathe Easy group will put you in touch with key people and those that can help whenever things become more difficulty.  Age UK, BLF (British Lung Foundation) usually have lists of contacts for help you can access on just about anything.  Both Age UK and BLF have a help line during normal working hours.

Check out the NHS 111 service on line. NHS 111 is available 24 hours a day, 365 days a year. Calls are free from landlines and mobile phones. UK

 

12 likes, 29 replies

29 Replies

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  • Posted

    Hi there,

       I aqm yon the forum you referenced and let me tell you, they have been a godsend. I have learned so much and feel like we are like family

  • Posted

    Links regarding Pulmonary Rehabilitations:

    https://patient.info/doctor/pulmonary-rehabilitation

    British Lung Foundation Video:  https://www.youtube.com/watch?v=4GyFnei_A24

    Some you tube video links:

    Important to view Both Part 1 and Part 2

    Understanding PR Part 1 (UK you tube video) : https://www.youtube.com/watch?v=3goKl9Vr8iw

    Understanding PR Part 2 : https://www.youtube.com/watch?v=cthKnGK6Gzs

    Some excellent Lung exercise from a Pulmonary Clinical Nurse Specialist in the US:  https://www.youtube.com/watch?v=fDUAIiOPXBY&list=PL1526604DDA1D82AD

     

  • Posted

    I was told by doc I `could have` mild COPD. My problem which I have experienced on and off all my life is coughing although not sick as such.  I have had wheezing to and sometimes there seems like there is nothing wrong with me then out of the blue I develope a mucus cough and wheezing.  It comes on generally after eating, I don't really have trouble breathing. My cough and wheezing seems to come from my throat.

    Any ideas?

    • Posted

      Only you doctor can diagnose if you have COPD, bronchitis, asthma or any other breathing problem, do check back with your own doctor and communicate your symptoms to him or her.  You doctor can prescribe medicines for the mucus, wheezing and cough but more importantly can arrange for you to be properly tested for COPD, asthma etc.

      Good luck with test results and here to hoping you don't have COPD.  .

    • Posted

      I got told the same thing yesterday and I'm 32. I also suffer panic disorder, so now I'm in a state of panic!

      I'm so scared

    • Posted

      Hi Brinny, ask your doctor to be tested for alpha1 antytripsin (even if you are a smoker) it will be helpful to know its not the hereditary A1A.  Also helpful if you are a smoker to stop smoking smile

      Hope you are already being treated and coached how to manage your panic attacks.  You may want to check out patient UK search list on 'panic disorder' (search box top right), stress is to be avoid for health generally.

      Read all you can in this post and about COPD.

      In particular:  https://patient.info/doctor/chronic-obstructive-pulmonary-disease-pro

      Best wishes OJ

      (I've been successfully managing my COPD in excess of 12 years)

  • Posted

     During winter months these are just some of the precautions I take to help preserve my lung health.  For me these precautions have helped keep my lung health stable but naturally nothing is guaranteed and we can only do and keep doing what we know works and make our own choices accordingly.

      During winter months:

     1.  Cold weather, when the air is too cold to breathe, put a scarf over nose and mouth, I find silk works best or one of the Buff scarfs you can breathe through ok.

    2.  Carry a throat spray, bee propolis, echinacea or similar to use when out should I pass anyone who coughs or sneezes in an enclosed shared public space.

    3.  Always carry reliever medicine (ventolin)

     4.  First sign of scratchy throat gargle 3 x daily with listerine total to help prevent the bugs from multiplying in the back of your throat.  I've staved off many a cold by doing this.  Once symptoms are no longer, continue to gargle following 3 days twice a day,, then following few days once a day to be sure.

    5.  Any one with a cold or virus that enters your home, hope they will wash their hands frequently but any surfaces they touch, wipe them with anti bacteria wipes before you touch the same surface, ie door handles etc.

     6.  Out shopping carry anti bacterial wipes to wipe down the supermarket trolley handle.

     7.  Avoid touching eyes or mouth when out.

     8.  Always wash hands as soon as you arrive home from shopping.

     9.  Each year around October time I get the annual flu shot.

    Other options when it really is too cold to go out or when feeling unwell, if you have a lung infection, cold or flu etc.

    1) Have repeat prescriptions delivered through the chemist.

    2) Shop on-line and have it delivered.

    3)  Chat with doc about having an emergency pack to be kept at home with information on how and when to use it (just a precaution in case you get a lung infection during a weekend or through the Christmas period, its important to act quickly treat soonest if you do get a lung infection.

    4) Have stocks of easy food if you do become ill, complan drinks, fruid, beetroot and veg juice drinks, smoothies canned or packet soups etc.

    5) Before Christmas break be sure you have 1-2 months of required prescription medicines.

    6)  Keep warm during winter months. People who are vulnerable can inform their electricity and gas suppliers so that they can be included on their list for vulnerable people who will need to have repairs seen to soonest in order to avoid health risks and hospitalization.

    I am sure there are more tips and perhaps others may wish to add to this.

     

  • Posted

    Good post . As Alpha  One Antitrypsin Deficency comes under the umbrella term of COPD now it is vital anyone presenting symptons young  gets checked and tested!

    Up to 3% of all COPD patients are unindentified alpha;s.......a blood test is required I have had alpha 9 yrs was 45 when my symptons showed 47 I was given 2 yrears to live ....happy to report I am 55 today !!!! I was 22% fev on my being diagnosed I am 37.5 today...its vital we are checked correctly.

  • Posted

    Sources of NHS Help When Unwell:

    When you are ill, it can be difficult to know where you should go or whom you should call. This leaflet sets out the options available through the NHS in the UK. It tries to make it clear where you should go in different situations. What you should do depends on how seriously ill you are and how urgently you need to be seen. In other countries, the system is likely to be different, and this information will not apply. However, this leaflet does explain what care you can get on the NHS if you are not a UK resident.

    Read more by clicking on the link below:-

    https://patient.info/health/sources-of-nhs-help-when-unwell

     

  • Posted

    Not sure why they don't just close this board down. I posted a new topic about a month ago and they wouldn't allow it, until they reviewed it. Who knows how many other people have tried to post here and weren't able to.

    • Edited

      New members get their posts held for approval by admin.

      Once a member has earned credibility their posts are usually approved straight away, unless there are any trigger words posted.

      Post some more if the content interests you rob.

      Have to admit I don't always check the box to follow discussions so I wouldn't necessarily receive notifications.

      All the best V

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