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tired for a long time

Posted , 4 users are following.

mark12576
mark12576

Hi could anyone tell me how there CFS started

i am a 48yo male and have suffered with fatigue waking up unrefreshed yawning through the day

muscle ache head aches along with a few other things had various test Brain scan sleep aponea

blood tests Neuro etc etc all ok only a slightly high

Prolactin this has been going on since June 2013

the words chronic fatigue syndrome have been

mentioned but never been diagnosed as you can

imagine i am both worried and fed up because i

feel so tired and quite frankly ill everyday my GP has

now played the anxiety card however i am not

in favour of that any feedback would be appreciated

0 likes, 11 replies

11 Replies

  • joe98530
    joe98530 mark12576

    Posted

    Mine started with a virus...maybe the flu maybe not. The flu test came back negative but the doctor said it looked like the flu. The higher fever reduced in about a week but I had a low fever 99-100 for weeks after with fatigue and unrefreshed sleep. Eventually the body tempature normalized but the fatigue stayed.
    • mark12576
      mark12576 joe98530

      Posted

      hi joe thanks for the reply mine started with tingling all over my body and my head felt to heavy for my body that happened twice in 2 weeks then i just could not function properly for about 6 months after no work or nothing they said it was viral however i am not convinced
    • joe98530
      joe98530 mark12576

      Posted

      Have you had a history of stress/anxiety type issues? I have and it seems to be a commonality it a lot of the people I come across. Looking back a lot of years when I was in my 20's I remember having some weird symptoms like this with a low fever and an alternative medicine md put me on a anti-viral(famvir) and anti-fungal(diflucan) for 90 days and I was cured. I'm about to see her again.

    • mark12576
      mark12576 joe98530

      Posted

      i have had a few things since 2011 a death redundancy got a new job straight away just bringing my daughter up things were great till 2013 my symptoms seem more neuro than anxiety though
    • joe98530
      joe98530 mark12576

      Posted

      Unfortunately anxiety and stress can cause neuro symptoms. Good friend of mine is a neurologist and I have seen him professionally. It takes a lot of time for stress to cause these symptoms and it typically takes just as long if not longer to fix them. I have been in and out for years.
  • Beverley_01
    Beverley_01 mark12576

    Posted

    Hi Mark,

    Mine started with a car crash (not me who caused it) I was injured and I woke with brain fog and like I'd not slept. Same ever since really. Anxiety wise, there does seem a link in how we present ourselves? I knew I had PTSD symptoms, these to me were not expected as I thought I'd be fine as I'd managed to be OK directly after the incident. But, I was terrified in the carpark of the hospital. I knew something wasn't right and knew it was linked to the incident and thus felt OK with that? However, my body is now more likely to 'gasp' react in a more anxious way and sometimes my symptoms are shaking when I don't feel nervous so, I feel we look or sound more anxiou sometimes. I have a friend with CFS/me and she does the similar reactions to me. I don't think it's anxiety as I used to work in psychological therapies but, I think the condition heightens our awareness. By the way, my friend's trigger was a virus.

    If you don't think it's anxiety too, tell your doctor that you want referring to a specialist. You in the UK?

    Beverley

    • mark12576
      mark12576 Beverley_01

      Posted

      Hi Beverley yes i am in the UK and thanks for your reply i have told my GP on numerous occasions in fact several GP,s but i just get the same response Anxiety works in mysterious ways and also i feel because of the tests i have had it seems they think thats enough and i have nothing serious wrong with me
    • Beverley_01
      Beverley_01 mark12576

      Posted

      Hi Mark,

      I was told by doctors, physiology and a psychotherapist that it would take time as I'd had quite a nasty experience and my body and mind were learning to deal with that. They were all genuinely caring towards my condition and no one mentioned CFS/me. It was 18 months before i suggested i may have it as my friends doctor said they believed they had post viral fatigue which carried on into CFS/me. One of the gps at their surgery even went on training about the condition. My GP said OK, let's refer you to the CFS/me service. I am not saying that it's easy ,there's usually a waiting list and there aren't many clinics. Mine was in Leeds West Yorkshire, an hour and a half away. The plus is that once they can see that your blood tests are normal but you have these debilitating symptoms, you get heard ! They can link you with other people who have the condition, give you support and advice etc. Their support is limited though due to it being within the NHS and varies from county to county with some areas getting a much better provision than others. I opted for one to one work with a specialist nurse and felt supported and did benefit although I'm still With the symptoms.

      Hope you get somewhere with this. There are other things that cause these symptoms like Lyme's and vitamin d deficiency too that aren't necessarily tested for. You could Google the symptoms and see if they fit for you. Lyme's is increasing in the UK it seems.

      Hope this helps

      Beverley

    • mark12576
      mark12576 Beverley_01

      Posted

      Hi Beverley thanks for your response i will just have to keep plugging away although its coming up nearly 4 years now hopefully i will find out exactly what it is one day A friend of mind had suggested getting tested for MS and although i have googled the symptoms and they also are very similar my GP said its unlikely to be that Thanks for taking the time to reply its very much appreciated

      Regards

      Mark

    • Beverley_01
      Beverley_01 mark12576

      Posted

      Hi Mark,

      It's coming up to five years here for me. I think with Ms the myelin is affected in the nerves and they can test for that. Not sure re the fatigue with Ms.

      Good luck with your search. If it is CFS/me, people do recover so don't give up hope.

      Best wishes

      Beverley

  • seed
    seed mark12576

    Posted

    Mine started after a very severe lung based flu and subsequent eye infections. I was sick for about a month or so with a pretty high fever, 103 for a couple days with about 100 on both ends for a few days.

    I'm dumping info in my thread here but anxiety has probably only made my issues worse, cause it's usually at 2am when i'm feeling off and can't sleep but am so tired that it puts me in a loop of bad thoughts and frustration.

    I'm trying to take supplements and get B12 boosters. Running the gammit of tests and such. I don't even know if I have ME but so far nothing else has surfaced with my tests where it could be anything else. 

    I have

    1. Very bad brain fog. Do stupid things like lighting a charcoal bbq but then closing all the vents? I had to laugh at myself on that one.

    2. Trouble sleeping. It's not just about getting comfortable. i would yawn 40 times but it wouldn't feel satisfying. Some breathes seem shallow. Foggy confused mind. Then thinking too much about it.

    3. Body fatigue, muscles just seem drained all the time

    4. Headaches

    5. Sore neck

    6. Some days are good, some are great, some are bad. It's very up and down.

    7. Heart palpatations, always at night when lying down. Some nights are worse than others.

    8. I'm a 42 male

    9. All tests ok, heart, blood, ENT, neuro. I did have a positive EBV though but it may be a red herring.

     

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