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tired of being called "spot"! :)

Posted , 7 users are following.

pat86053
pat86053

I am a healthy senior citizen looking for help.  I have been battling lichen planus for 3 years.  I lead an active life but am stifled by lichen planus.  I have tried a variety of medications and creams that my doctor prescribed.  I am looking for alternative suggestions as it seems to be getting worse.  It encompasses my whole body and now it is in my mouth.   Please help!

0 likes, 6 replies

6 Replies

  • mary_pooh
    mary_pooh pat86053

    Posted

    You must read all our helpful suggestions on this forum !! I've had oral LP which lead to oral thrush for two years am on flixonase and nystan rinses prescribed by top London doctor it's working !! Xxx

  • leanne60647
    leanne60647 pat86053

    Posted

    hi Pat, I know lots of people on here have reported an improvement through changes in diet. I personally avoid nightshade foods- potato, tomato, eggplant , capsicum, and find it has made a big difference. I hope you find a path to health smile
  • di220352
    di220352 pat86053

    Posted

    Hi Pat I like you had widespread LP after about 12 months I decided to carry out research myself and looked at medications I was taking to cut a long story short I stopped Omeprazole as any proton pump inhibitors can cause LP. Since stopping I have been clear for nearly 12 months, I still have some scars and I am hopeful they will also go. Hope this helps
    • anne07585
      anne07585 di220352

      Posted

      Hi di, I have got LP in vulvar, vagina, perenium, rectum and between cheeks. Also oral, ears, hands plus oesophagus & stomach. The only way they can treat my stomach & oesophagus is with esomeprazole. I saw Dermotologist, Gynogologist, Pysiotherapist plus a nurse researching LP & LS. I use dermovate ointment on vulvar at night (nearly all autonomy gone) & ears when in flare up!I have a different steroid for rectum & also use on a flare up on hysterectomy scar! Epaderm for hands. I do bicarbonate of soda baths at night. I use steroid soluble for oral mouth rinse & see Oral Surgeon every three months. I must say I have most controlled except rectum at the moment. The team I see are marvellous, all working together to make it comfortable for me. They also told me autonomy will not come back & all areas will never go. It is extremely debilitating & so frustrating having to keep up this routine daily. If I get stressed it gets much worse. It is such a horrible illness but I think there are others worse than me so I just have to get on with it!

      Anne x

    • karen41728
      karen41728 anne07585

      Posted

      Hi Anne 

      LP gets everywhere doesn't it, but I agree the stress makes it so much worse, I think I have it in my eyes now, I was diagnosed with oral LP around the same time I had abnormal cells from a cervical smear and I came nbected the two, caused by the hpv virus, I'm 60 Anne, how old are you 

    • mauli45885
      mauli45885 anne07585

      Posted

      hii... i m new in this group. i m having LP all over my body specially back and hips. i m taking treatment from dermotologist for last 15 days i was taking corticosetroids and now after blood test my doc has added dopsone also. pls help me with ur experice.. how you have reduced lp from your body. pl

       

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