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i am new to these discussions but I do know how many of you feel. I have mentioned that I was diagnosed with mixed connective disease, lupus, fibromyalgia and who the hell knows what else. I can't work becuause if I sit to long, my legs start falling asleep. If I stand to long, my legs start aching. I feel exhausted all the time like when I wake up in the morning, I could just as easily go back to bed and sleep my entire life away. I wish there was something in a bottle that gave you energy. I miss my old life when I used to work out all the time and had enough energy for 10 people and then one morning I woke up and couldn't bend my leg back, it just wouldn't work so my family doctor sent me to a rheumatoidologist and he is the one that took all my blood from my body, that's what it feels like sometimes, and gave me the great news of having all these diseases but no medication seemed to work. I went to another rheumatoidologist and he put me on Lyrica which helps my upper joints but my legs were in such pain I felt like it was to much to even walk down the hall. Now along with my family doctor, my rheumatoidologist and my pain doctor, I take Lyrica for joint pain and oxycodone and fentenal patches for pain, especially when my mixed connective disease starts up, it just brings my systemic lupus to life and I get the butterfly rashes mostly on my upper arms which adds to my stress which makes my fibro flare up and gives me pain in my legs and then it just starts over. It seems to be a cycle especially when it's hot. I also start sweating like I was in a sauna all day just on my head and face. People look at me like did you know your sweating like a pig. It's embarrassing but I don't know what to do about that so I put ice on my head at night to keep my head cool so I won't start swearing. I've never had that problem before but only since these diseases came and decided to stop on my little doorstep. I am a true believer that stress can cause all sorts of bad things including diseases. I am just going to try to start yoga but I have to absolutely force myself to do this. I start next week. The worse thing I could have done 12 years ago when I was diagnosed with all this crap was to stop exercising. That was so stupid now it's taking me forever to even begin it again. Life sure sucks at times and you wonder what the hell you did to deserve this crap but it doesn't matter we have what we have and with others support it will help us all, I hope!
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