Tired of hearing (reading) the verbs 'fix', 'cure', 'heal'.

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Except in rare cases, our condition is incurable and un-heal-able...right? Then why do I keep reading the terms, 'cure', and 'heal' being used in even well-meaning websites, in addition to sites that are just trying to sell you something. Having hypo is depressing enough without creating the false hope that our condition can be healed. My understanding is that it can be improved and managed, but not reversed.

Am I at least half right about this?

Please forgive me. I'm in a bad mood today.

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18 Replies

  • Posted

    As of this moment, I don't know of any cures for autoimmune diseases. I think with diet, exercise and the right meds and supplements we can feel pretty darn good.  I'm looking into an autoimmune diet at the moment. Good luck to you. 

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  • Posted

    I agree with you I don't think it's always curable. Maybe people who suffer mildly can improve their condition with diet etc?

    I don't have hashimotos and years ago I was put on high doses of levothyroxine (150mg). They spent the last year weaning me off it and have reached my limit at 50mg as they have wrecked my thyroid and shrunk it. I know I won't ever be off it, but never in a million years thought I would be able to drop 100mg. I know my situation is different and every time I dropped I felt awful for about eight weeks but my body did fight back. My doctor told me kelp tablets are good and I was taking them. However other people say you shouldn't take them, there is a lot of conflicting information on it. Might be worth seeing a specialist and see if they believe your case is 'curable!

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    • Posted

      Thanks for writing back, sayhitocaz.

      I was only diagnosed about two months ago. I'm still adjusting to the very notion that I have an incurable condition. But life is often not fair, and I know that many people have far worse problems than this.

      I try to remain thankful for the good things.

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  • Posted

    Hi,

    yes i I know what you mean, I am eight years in and still struggling to come to terms with the fact that this is my life now. I always research new thyroid treatments that can make you feel better than levothyroxine, like I have heard NDT is helpful for a lot of people and widely prescribed in the US. There is always hope and things to try. This website has been really good for support for people who just get it!! Yes you are right things could be worse, but doesn't mean it's easy. the thing to remember with this condition is there is no quick fix and it can take a while to find the right dose and medication, and when you do you should start seeing your symptoms improve. Take care

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    • Posted

      Hi

      Yes I do. More so recently when they have been dropping the medication. I get a lot of pain around my knees, wrists, fingers and lower back. Not sure why this happens

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    • Posted

      I'm not sure, however it's only got worse fairly recently (in the last couple of years), I never suffered too much pain before

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    • Posted

      Hiya

      No they put it down to M.E. And never test anything unless you beg and plead for it. Not sure what tests they could do to be honest? I've had the usual mineral panel/cortisol tests to look into my fatigue symptoms but nothing to do with the pain side

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    • Posted

      I had thyroid antibody tests when I was diagnosed years ago and they were normal (indicating I didn't hace hashimotos) bur had nothing since

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    • Posted

      Oh yes absolutely it's all about pounds and pence at the detriment to patients health. Have experienced this first hand. I try not to take anything for pain but when it's bad I take cocodamol. Anything stronger makes me even more wiped out than I already am. What do u take?

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