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Tired of living like this

Posted , 7 users are following.

sandra20566
sandra20566

This condition is driving me nuts, I can't enjoy my life and have tried surgery, and different meds, I don't want to keep living this way something has to be done. I don't know how much longer I can last

0 likes, 15 replies

15 Replies

  • KATHYGIRL
    KATHYGIRL sandra20566

    Posted

    DONT GIVE UP SANDRA

    If you google new treatments in HS, there are several things that they are trying.

    I know, this sucks.......but you are not alone

    • sandra20566
      sandra20566 KATHYGIRL

      Posted

      Thanks Kathygirl, I will check the site out. Hopefully there's something that I haven't tried yet.

      Thanks again

  • lisa33973
    lisa33973 sandra20566

    Posted

    Hi Sandra! I know the feeling. I’ve been doing well on Taltz, been on it since March. I must say my HS is a lot better for me now. Granted, I still have the cysts, drainage, the occasional flare up and some pain. But, most days I feel I can go on now. I was having low grade temperatures, fatigue and general not feeling well for months. I really think a lot of what I was going through was due to HS.  Everyone is different, but you may want to talk to your doctor about Taltz. I was even thinking of going to an infection disease doctor and therapist, because dealing with this disease is a lot. Lastly , check out Dr. Pimple Popper on TLC . They just had a lady on there with HS.  Even though this is tough, we have to forge on. Good luck!
    • sandra20566
      sandra20566 lisa33973

      Posted

      Hi Lisa33973, thanks for the info I will follow up with your suggestions. I've never tried Taltz but will ask my dermatologist about it.

      Thanks again

  • Hurtz
    Hurtz sandra20566

    Posted

    Diet is the key to controlling this terrible condition. I tried everything before discovering diet has everything to do with this. I started Eat Right 4 Your Bloodtype and found relief after a few months eliminating certain foods. There is a Facebook group called HS Diet Connection. Alot of info. from people and various diets including Paleo, Auto-Immune protocol, and a few others that have found relief.
    • sandra20566
      sandra20566 Hurtz

      Posted

      Hi Hurts, I have been slowly changing my diet, I've had three surgery in the last year. I've even had an abdominal plasty this past September. I've been on antibiotics Acutane, Humera. Also useing tumeric cumin the works. But will follow up with your suggestions.

      Thanks again

  • sarah80474
    sarah80474 sandra20566

    Posted

    I’m sorry. I know what it’s like. But don’t give up! There’s hope. I dealt with it for 19 years but I’ve been over it for going on a year now. No flare ups. For me I stay away from sugar. But I never thought I’d be HS free but can confidently say I am now!

    • sandra20566
      sandra20566 sarah80474

      Posted

      Hi Sarah 80474

      Thanks for your concern I truly appreciate it. The replys have been great, I will keep hope alive.

      Thanks again

  • sarah80474
    sarah80474 sandra20566

    Posted

    I’m sorry. I know what it’s like. But don’t give up! There’s hope. I dealt with it for 19 years but I’ve been over it for going on a year now. No flare ups. For me I stay away from sugar. But I never thought I’d be HS free but can confidently say I am now!

  • Chitra.M
    Chitra.M sandra20566

    Posted

    I have felt like you, way too many times myself... everytime a surgery wound didn't heal or I took antibiotics which messed up my stomach or getting multiple steroid shots within a week.

    But all hope isn't lost. 15 yrs of HS, several yrs were unbearable and now, I'm in remission. For me Homeopathy & some lifestyle tweaks worked.

    For others, diet changes alone has done the trick.

    Keep trying different approaches with patience. Good luck!

    If you aren't on a Facebook group or have people you can talk to, join a group. It helps.

    • sandra20566
      sandra20566 Chitra.M

      Posted

      Thanks Chitra.M

      I am going to follow up with all suggestions, you guys give me hope.

      Thanks so much

    • Chitra.M
      Chitra.M sandra20566

      Posted

      Happy to help. Took me 5 yrs of treatment to get into reremission. So it is possible. Good luck! Maybe something positive is around the corner for you too! Take care smile
  • lucyshaw30
    lucyshaw30 sandra20566

    Posted

    Honestly change your diet completey it put mine into remission I cut out all gluten and dairy, yes it's hard but not as hard as dealing with boils trust me you would notice a difference quickly I think x

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