Tired of ME

Posted , 6 users are following.

Hi Everyone, smile smile

It's been a while, firstly i had problems connecting last week and when the sun is out th PC gets shelved :lol:

The past 2 weeks i feel worse than ever, :evil: Not only do my joints ache but my muscles ache now too, especially my thighs and back. I can't stand for long periods.

Does anyone suffer from burning thighs, it feels like they are on fire when i go to bed. My knees ache constantly and they feel they are on fire too. :cry: :cry:

I am so fed up with all this and i've only had this for 3 monts. Don't know how all you brave people out there have coped with this awful illness for years. sad

I am also worried that i am beginning to feel a bit down, more than usual. I have an appointment with my occupational health doctor next week, so we'll see what she says, hopefully she'll understand the condition. :roll:

My GP has referred me to the Homeopathic hospital, they have a clinic for these conditions, unfortunately there is a big waiting list, approx 6 months sad

Hope you are all having a good day!

Teedie

x

0 likes, 18 replies

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  • Posted

    Hi Teedie

    Sorry you are not feeling well. :cry:

    I have problems with this, burning thighs and heavy legs :roll:

    As I was feeling down my GP put me on Prozac :shock: which I took somewhat reluctantly :?

    Anyway my mood did lift :D and an ineresting side effect was that it reduced these muscle pains :D When I mentioned this she said they are doing studies into it as other people with auto-immune illnesses had reported similar effects. :lol:

    Might be worth a go.. :wink:

    Dale xxx

  • Posted

    Hi Dale,

    Thanks for that! smile Yes i get heavy legs too. Like you i would be really reluctant to take anything (must be the nurses in us) :lol: I am due to GP on Monday so will discuss these symptoms with her.

    My right shoulder and neck are very painful today and i'm worried it may be fibromyalgia. I've always had pain and stiffness in joints but never this.

    Teedie

  • Posted

    Hi Teedie an Dale

    I do get aches too but mostly in my neck, knees and wrists, ppl too keep telling me ive got fibromyalgia but my doc assures me i havnt, just another side affect to M.E,

    I do get down too but i try to keep my mind active (I.E chatting online or gaming) to lift my spirits again, i just refuse to take tablets (unless theres a miracle cure for M.E).

    As potentionaly this could last for years might be worth looking at doing a hobbie of some kind (not to active) to keep your spirits going and your mind active, it has certainly saved my life a few times

    Good luck with your doc

    Spk soon

  • Posted

    Hi everyone

    It's good to be finally able to make a posting.

    Yes, I too, have been in a lot of pain for the last few weeks and am beginning to feel really down as a result. My legs are so heavy this morning and everything hurts and my fibromyalgia (neck and shoulders) is already burning - I feel like going back to bed. How on earth can one feel more tired waking up than when going to bed? I feel just as if I have been run over by a huge truck during the night and my body is battered and bruised. So I think that today is going to be a bit of a dead loss. And we've lost the sunshine too and that doesn't help. sad

    Well, this is a really exciting posting folks - I will go and have a wash and brush up (somehow) and try and get myself moving and then perhaps do something positive- like stop feeling sorry for myself for starters!!

    At least we know how each other feels - I've just given up trying to explain how awful I feel to non-sufferers - I'm too tired to talk anyway, and I think I must have corrected this posting at least 93 times! :roll:

    Take care everyone - maybe that magic cure is just round the corner -(that'e me trying to be optimistic!):roll:

    Katie xx:hugsadgroup hug)

  • Posted

    Cheers everyone :ale: (can't even do that anymore)!

    Nice to know i am not alone.

    Katie i know what you mean about feeling you've been hit by a truck, i said to my husband today, "Did i run a marathon in my sleep last night" coz that's what it feels like.

    I have just started getting the burning sensation on my thighs and now my back and shoulders. I'm totally exhausted.

    Normally i look forward to the summer hols when the kids are off but this time i'm not. I hope the weather is good and they will be happy playing outside. smile

    Going for a :coffee: and carry on watchin "loose women". This is what my life has been subjected to. :wah:

    Teedie

    xxx

  • Posted

    Yes, I know Teedie, it is a bit sad - but actually I watch 'Loose Women' too! They make me laugh out loud sometimes - not one for the boys though Jay. :lol:

    In fact I watch all the reality shows as well (except Big Brother -yuk!) and feel really lost now the Saturday night 'Nancy' one is finished - I NEVER used to be in on a Saturday night once upon a time. sad

    Maybe the Beeb could come up with a reality programme about ME sufferers - mind you, how dull that would be! Perhaps not such a good idea. :doh:

    I've actually just taken the dog out for a walk this morning (the sun came out and tempted me), but felt as if I was walking on rubber the whole time - so didn't go far. Now feel achey and my eyes have gone all funny - so nothing new there then.:roll:

    Katie x :erm:

  • Posted

    Oh Katie,

    I think a reality show about ME sufferers would be better than watching Big Brother. :lol:

    I too used to enjoy an exciting social life but my weekend entertainment is what's on TV. I'm more an X-factor fan. If i go out I am home for 10.30pm when i was used to being the life and soul of the party. My friends can't get used to that.

    :cross:

    One day i'll be able to party again.

    Teedie

    xxx

  • Posted

    Yes Teedie. When we have all finally discovered that 'magic cure' and are BETTER - we will hold an amazingly fantastical party of all parties - that goes on for days and days - to make up for all the times we have had to be party poopers! Anyone else interested?

    Katie xx :bubbly:

    PS. Make mine a double:lol:

  • Posted

    Hey girls an guys

    Katie, i love watching loose women,makes me laugh sooo much, and yes im a big brother fan, infact i love alot of reality programmes and have just found out that cheryl cole will be on X-factor as a judge :D

    I do wish id shut up saying i dont suffer certain ailments cause as soon as ive said i dont then wham!! im suffering :x

    As i love challenges in my life, M.E is a challenge in that im not gonna let it beat me or get me down, think id rarther fly to the moon or run the globe a few hundred times but guess we all carnt be choosey

    Anyway if anyones feeling down just think of me trying to figure out how im gonna fit 20 ish sidecars to my bike so we can all go an have that picnic !! LMAO can you emagine how wide it would be !!

    Take care all

  • Posted

    Hi All

    Not been able to log on for a while but am here now! :o

    At least we have not sunk as low as Jeremy Kyle :wink: I will miss The Apprentice now that has ended.

    I have stiff neck and shoulders but not fibromyalgia. Have just been diagnosed with impingement syndrome in my right shoulder, which means I have a trapped tendon and osteoarthritis, requiring surgery :wah:

    I will come on the picnic :burger: but will have to go in the side-car now instead of pillion cos I aint got the arm power to hold on! :oops:

    Been stiff since my car crash but went for a new car yesterday and came out with a toy-boy!! :shock:

    BOGOF... bought the car and got the salesman free :ok:

    Life in the old dog yet :nahnah:

    Dale xxx

  • Posted

    Hi Jay smile

    I was hoping you would be offering us the use of your sidecar!!! You never let us down. :magic:Mind you, I think it might just be you, me and Teedie at this rate ........I think everyone else has given up on the forum cos it has been so very slow ........ :zzz:

    Katie xx

  • Posted

    Oh and now Dale too.smile

    Sorry to hear about your injury Dale - that's something you could have done without.Mind you, you wouldn't have ended up with a toy boy if it hadn't happened. Do keep us posted on this one ........ :diva:

    Katie xx

  • Posted

    I am still around but have not been too good will explain when feeling up to it.
  • Posted

    When is the picnic? Can I come? As long as it isn't next week cos I am going to stay with my friend in Basingstoke for 5 days, just me and the dog :wink: :D
  • Posted

    Yes, of course you can come Alicia - we'll make it the week after next.

    I'll consult with Michael Fish first though, as he always gets the weather forecast right :lol:

    Enjoy your break.

    Katie xx smile

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