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I was diagnosed with crohns last November after 2 years of tests. I was given a 3 month course of Budesonide which made me pain free for a month but then when I had to lower the dose the pain came back. I took azathioprine for 3 days but had to stop due to bad side effects yet all the time I was constantly tired.

I had 5 consultant appointments cancelled over a 6 week period after finishing the med, but then had a flare up, passed out and was given an emergency appointment. They have had to start me on another course of Budesonide because of the gap with no medication and they have given me mercaptopurine. I had some side effects which seem to be subsiding a little each day but I can't seem to shift the tiredness. I'm lucky to last 4-5 hours before I need a 3 hour nap and I'm sleeping 9-10 hours on a night time. Also the medication hasn't taken the pain away completely this time either. Has anyone else had this...or is this normal and how long can it last.

Need to know as I am back at work in a week but don't know if I'm going to be able to manage the 5am wake up alarm and the 1 hour drive and the 5 hours at work. I also have a afternoon school run to get my boys from school so won't have time for a nap.

Any suggestions or recommendations would be greatly received.

Thank you.

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4 Replies

  • Posted

    Hi bella,

    if you look at some earlier posts by Jon,

    we had quite a big thread going on tiredness!

    have you had your bloods done? Iron levels and b12 can cause fatigue.

    i think a lot of us feel tired and I read somewhere they're doing research into fatigue in crohns.

    im guessing inflammation, not absorbing nutrients all play a part.if you're in the uk crohns colitis uk has good info and stuff about asking to change your hours at work, starting later etc 

    maybe worth seeing if you can see your gp.

    i know how you feel with appts being cancelled.its really frustrating!!!


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  • Posted

    I agree with Alfielefoo regarding getting blood tests.

    I find tiredness the first warning sign of a flare up also it's the last symptom to go as I recover.  It will take a while but when you become more stable it will start to ease up.

    I find steroids give me a much needed energy boost!

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  • Posted

    hi bella75

    since my diagnosis14 months ago I have experienced tiredness and some bloating consistently whilst other symptoms have ebbed and flowed.

    I too was prescribed Azathioprine but had to stop as the side effects were awful after about 2/3 weeks.

    Then I was on 6-MP (mercaptopurine) for around 7 months. This took away the aching and discomfort mostly but my liver and pancreas indicators went up too far and I have been put on a half dose and most recently on a quarter dose of 25 mg per day. In addition I am to begin Humira injections from next week as a supplement or in combination with low dose of 6-MP.

    I hope this gives me longer term stability.

    Good luck to you


    Pete W

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  • Posted

    I am just diangosis with Crohn I feel tired more than before. I also can t sleep. The specialist gave me Pentasa 1mg and I have to take two of them. He told me to take it one day first and then two later. I still need to go through CR scan for my small intestine which I hate it but I have no choice. I stop eating high processed food and taking enzyme digestive I think it is getting better because it just the second day. I will let you know if it is working for me. Has anyone use Pentasa and have skin rash problem please let me know. That is what dr told me if I have I should stop.
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