TKR and PTSD
Posted , 40 users are following.
No, not THAT PTSD, although it could apply considering the "trauma" of having your knee replaced is considerable.
This is PTSD of a more positive variety designed especially for not only the "Kneebies" among us but for all TKR patients. As you know by now, I do these posts because I get tired of writing the same words over and over again. There comes a time when I type that one extra character, fall off the cliff and end up in a heap writing another BIG post. So here's my humble offering on our version of PTSD:
Patience, Time, Strength, and Determination
PATIENCE
When we first come home, we're all faced with the question of how long this pain is going to last and how soon will we be "normal" again. Let's get the "normal" part out of the way first. You will NEVER be your old "normal" self ever again. You now have a 2+ pound mechanical device implanted in your body. That's not normal...except for a robot. You will never be able to play competitive sports, do a slalom ski run at 60 mph or even just plain run. Anything involving knee impact or twisting motions is verboten! (Check my other post on acceptable/forbidden activities.) My hip doc told me years ago that I could have a hip that lasted 25 years or go back to playing hockey and having it last only three. Your choice...except that having it done a second time is NEVER as good as the first...never as tight...never as strong.
Back to patience. We live in a world where the value of patience is completely discarded as we demand whatever we want NOW! There's an old book entitled "The McDonaldization of America" which speaks eloquently to this point. We want our food fast and healing faster. For us, patience cannot be a virtue...it must be a necessity. We cannot speed up a healing process that takes a long while to complete, no matter what we say, want or wish. In other words, getting past a TKR is something mostly out of our control. Yes, we can do our PT and exercises without which we'd never get better; but the rest is not something we have any say over. Therefore, patience with the healing process is an absolute requirement for us to get past this. Just like those car rides with our parents when we were kids ("Daddy, when will we get there?" "When we get there!"), be more Zen: "I'll be better when I'm better."
TIME
Lockstep with patience is time. If you haven't noticed already, a TKR recovery is not measured in days or weeks but in many months, up to 18 or more in some cases. (Check my other post on The TKR Bell Curve.) If you think you'll be on your feet in a day or two, you're CORRECT! You have to be! The best thing you can do is walk and exercise. However, if you think you'll be back to work in a month, you are flat out delusional. What else is there to say? Except for the extreme, rare cases, this is just not going to happen because a TKR recovery takes a lot of time. At the beginning of mine, I slept an awful lot...actually, unconscious would be a better description. When I asked my GP why I was sleeping so much, she responded: "All the healing energy of your body is being directed to your knee."
Expenditure of energy can lead to exhaustion and sleep. That's what's happening to your body too. You have to be prepared to give your body time to heal and recover. We all know that you cannot push a knee...when you do, it slaps you back by swelling up, getting hot, causing pain, etc. Don't do that! Listen to your body...do your exercise work but give yourself time to heal. Don't push to drive again especially if you're still on opioids (absolute no-no) or don't have the motion/strength to depress a clutch. Very dangerous. And don't rush back to work. There's no way a nurse can run the halls, a construction or factory worker can bend and lift, or even a desk-jockey sit there for eight hours without pain and swelling. Most people return to work around six months, some faster and a few slower. Give yourself the time to heal before resuming your life.
STRENGTH
This one involves three things, specifically, mind, body and spirit. Regardless of how your body feels, your mind has to be strong. Any depressive thoughts should be dealt with and discarded immediately. Post-Operative Depression is a real thing for people that have body parts replaced. The docs never talk about it so be prepared for those crying jags 10 days post-op. Know what it is and discard it. Any feelings of depression down the road are usually caused by having unrealistic expectations about your recovery, like "Oh poor me...I should be doing better by this time...". Bullpucky!!! Just a bunch of Jedi mind tricks you're playing on yourself. STOP DOING THAT! Focus your mind on the positive; distract it with other things like reading a good book, being with friends or killing zombies on XBox. Strong mind...do it!
Your body also needs to be strong. PT only gives you your range of motion back; it does nothing for your atrophied quads, glutes and core. After PT, you MUST do the gym (or home) gym work to regain your physical strength. This is the only way you're going to climb stairs unaided again or walk without a cane for the rest of your life. If you can't get to a gym, get a set of resistance bands and use them. Also: Eat healthy, lose weight (if necessary). hydrate a lot, eliminate artificial sweeteners and processed foods, eat good protein. You have to rebuild all the leg and hip muscles that will support your new knee.
To get all this done, you'll need to look inside yourself and find your peaceful center. It's the place you need to go when you're all alone, times are tough and things might not be going as you thought they would. Pray, meditate, practice yoga, read from your favorite spiritual books or other resources. Do whatever you normally do to find some peace in your life. Concentrate on bringing that healing, spiritual energy into your body. Do not discount this source of strength...it is very important.
DETERMINATION
This is where you get to kick some serious a$$... This is all about motivation and focus. The hard part is that it all has to come from inside of YOU. Yes, there are great posters, books, t-shirts, coffee mugs and more that can provide inspiration but it really all starts and ends with you. The easy part is Physical Therapy, really. Do you actually think you'd go back to your surgeon for your six-week alignment check and tell him that you skipped all your therapy sessions? We all know that's not going to happen. You have to break down the scar tissue that's forming or you'll never walk correctly again. That's a pretty powerful incentive. It's what comes AFTER PT that will make all the difference.
The only way to get your strength back is by exercising your quads, glutes and core that have atrophied over these past many months. You'll look down at your leg and see a toothpick where there once was a strong quadriceps muscle. Gotta fix that...and the only way is to get out of your chair and do the work. (See my post on Post-TKR Exercises, designed for us by a pro.) And the only way to get out of your chair is to make the determination that exercise will now be a part of your daily like. I won't be something you do occasionally or when you "feel like it"...instead, it will be part of your SCHEDULED daily activities. You have to keep your focus on getting stronger and not give into depressive thoughts and actions. See yourself better then MAKE yourself better! My mentor for my master's degree had an old IBM punch card on his office corkboard containing five simple words that have guided me since I met him in 1971. Those words: "NO EXCUSES. DO THE WORK." Determine to do the work necessary to get well again...no mind games...do the work!
CONCLUSION
Just my thoughts on a lot of topics and questions that keep getting asked over and over again. Just an old guy musing about the past year trying to recover from what everyone calls the most "brutal" of all surgeries...and I concur. It can be life changing in many ways, not just the physical. You can really find parts of you that you never knew existed or had forgotten about for a long time. Recovering from a TKR is an OPPORTUNITY to find strengths that you never knew you had and make you a better person for it. Or...you can wimp your way through it...your choice.
16 likes, 55 replies
Jeanie1125 CHICO_MARX
Posted
Guest CHICO_MARX
Posted
faybubbles CHICO_MARX
Posted
I so want to say Thank you from the bottom of my heart, I really needed to read all of this. Very very inspiring. You have helped me so much in the last week since I joined this site. Thank you again!!😊
Jimbo1700 CHICO_MARX
Posted
CHICO_MARX Jimbo1700
Posted
Youzeguyz all needta unduhstand... Dis iz gonna take fuh-evah!!!
Got dat? You would if you were a Sicilian from Brooklyn. Sopranos? Godfather? Yeah...I grew up in that.
This is not an operation for panzies. If you were one, you aren't one anymore. You will find strength you didn't know you had. Once this is done, you will be changed...transformed...born again. A TKR is the Great Redeemer...the fiery crucible in which only true heroes are forged! (Sorry...love Edge of Tomorrow...)
No kidding... I'm 14 months out but my recovery was interrupted at 8 months by spinal stenosis at L2/L3. I endured that pain PLUS the knee from October '16 through March '17. Had the LLIL fusion and I have to still recover from all the post op nerve pain BEFORE I can resume my knee recovery. Hope to be done by September. Yes, mine is an odd case, but what choice to I have other than PTSD? Patient, heal thyself! Believe me...I talk the talk AND walk the walk.
In all of this...
1. Don't take crap from ANYONE...especially YOURSELF!
2. Pay zero attention to all the Jedi Mind Tricks in your head.
3. Focus on your path which is yours and yours alone
4. Make sure that YOU come first...everything and everyone else comes last
5. OWN YOUR RECOVERY!!! It's time to embrace the horror! (Sorry...Armageddon...)
Lastly...
"Never bet against a Sicilian when death is on the line." - Vizinni, The Princess Bride
...and never go up against me in a movie quote faceoff!!!
yasmin66402 CHICO_MARX
Posted
You're so darned right, Chico ! Had I not read your treatise on knee replacement, I'd have already given up! I'm 4 weeks post op..had the worst time in my life with the cold turkey from morphine being ejected from my system . I did think I'd have adverse reaction to morphine but this was living hell ! Anyway .I'm back in the game ..doing my walking and prescribed medications. They still knock me out but...I'm best out there grappling with london transport ..buses ,tube .
Knee us very swollen.scar is very healed , I'm a work in progress !!?
CHICO_MARX yasmin66402
Posted
Knee will be swollen because of the surgery for a little while longer. After that, any swelling will indicate that you pushed the knee too far that day. Back off, find the pain point and increase gradually. A pedometer really helps (FitBit or any other fitness tracker works). You will be off the big meds soon. Lots of people drop down to Tramadol. Voltaren Gel is a GREAT topical anti-inflammatory...especially at bedtime.
yasmin66402 CHICO_MARX
Posted
I' m seeING My GP tomorrow! I'm taking dihydrocodeine.will check back what tramadol is .Im going to discuss pain relief..nights i get shaky and cold !!!! Zz
CHICO_MARX yasmin66402
Posted
So you're taking an analgesic and not a pure opioid for the pain. Could be why you hurt so much. Hydrocodone (Vicodin, Norco) and Oxycodone (Percocet) are the most frequently prescribed high-level pain-killers in the US. People are usually off them in 30-60 days and switch to Tramadol (Ultram) which, while still technically an opioid, is way less powerful. After that, RX-strength Ibuprofen (800mg) is the most common next step down.
The big opioids, above, are usually mixed with acetaminophen where the dose is measured in milligrams of the opioid/acetaminophen...ex: 5/325. You can find dosages from 2.5/325 to 10/500 and delivered every 4, 6 or 8 hours depending on the pain level and doctor's willingness to prescribe something weaker or stronger. When taken at the proper intervals, the medication builds up in your bloodstream delivering constant pain relief. Dosage and timing along with the half-life of the medication determine that blood level. Tricky to guess right out of the box. Docs usually start on the lower side and work up until you find relief.
Talk to the doc...see what he says...
yasmin66402 CHICO_MARX
Posted
Exactly so Chico! Is y I'm at least hopful with what I've got now...
Side effects and the dreaded constipation pale trials compared to the seseripisroous real people !
CHICO_MARX yasmin66402
Posted
Hydrocodone has a powerful cough suppressant effect which can come in very handy under certain circumstances but is also has a negative constipating effect as well. So...if someone is taking a hydrocodone drug (Vicodin, Norco, etc.) and is experiencing lots of constipation problems, they should ask their doc to switch them to oxycodone (Percocet) to avoid the issue.
yasmin66402 CHICO_MARX
Posted
Ok that's very clear..I find that now I'm actually walking about ..up and down pavements, the constipation is lessening.these drugs are a nightmare ! I'm so unused to chemicals ,alcohol in my system that it's hard to see which way is best foot foward..unless the old adage ; grin your teeth and bate it !
yasmin66402
Posted
Ps; Chico ! Like i said ,had I not read yourguide to TKR, DETERMINATION OVER pain , stiffness , etc..I'd have been unravelling at a furious rate. I take it in my stride ! Physio measure ROM last week as 94..after the op, consultant bent the leg to 120 . Physio said because of issue with the soft tissue around the knee..I know if I'm diligent ,I will keep stretching it so as not to give up and to lessen the effect on the sciatica !
CHICO_MARX yasmin66402
Posted
The bend is different now because the scar tissue is building up. PT breaks that down...that's why PT is so important.
If you're having sciatica problems, that a different issue entirely. Read the sciatica section of this...
https://patient.info/forums/discuss/the-tkr-experience-or-wish-i-had-another-kidney-stone--524499
PS: There is no "unraveling"...it's all a Jedi Mind Trick in your head.
victoria11426 CHICO_MARX
Posted
CHICO_MARX victoria11426
Posted
You're very welcome. Spent five years in a Catholic seminary...then I found out that I could still be called "father" and not have to give up sex. Hmmm....maybe I would have been good at writing Sunday sermons...
eileen15268 CHICO_MARX
Posted
Out of the blue Chico I've been invited to join friends on holiday only snag is I'm 5 months post TKR & wondered if it was too early to go on a 4 hour flight. I would love ve to go but still have that stiff band round knee & it gives me hip if I ove do things. What do I ou ynink ?
CHICO_MARX eileen15268
Posted
I have personally not flown on an airplane after my TKR. There are people on here who have. Create a new discussion titled "Flying After a TKR" and you'll probably get a lot of responses to help you.
If I was faced with that, I'd probably go but first check with my doc. The only problems I see are pain and stiffness (sitting in one position too long). To fix the former, get yourself one of those old-style ice bags with the wide screw-on cap at your pharmacy and have it in your carry-on. They have ice on board so you can empty the water and refill it with fresh ice. Keep it on your knee for the whole flight. Second, I'd get up and walk to the back of the plane, stretch and then return to my seat every 20-30 minutes. Do NOT sit in one position for four hours. Also, take your pain meds ONE HOUR before the flight. That will get the drug into your system effectively for the trip. If you wait to get on the plane, it's too late.
Again, try a new post...they will give you help through their experiences.
PS: Another thing is to get yourself into a wheelchair at the airport. Tell them you just had a knee replaced...play it up!!! You get to board first so you can settle in and not fight the other passengers for luggage space and seating. Get out the ice bag and have them fill it for you.