TKR never ending pain

You may want to contact a lawyer first and then maybe go to a medical university for a second opinion. Good luck, I am so sorry.

Kristen

I hear your pain, I have been two years in pain, and went to another doctor after first one pretty much blew me off and referred me to chronic pain management.  This one was sports injury doctor (excellent) who worked with another popular Orthosurgeron.  The second dr has done everything in his power to figure out the problem, as it was aligned correctly, but I kept getting big Bakers cysts and it filled with fluid and would push on nerve.  PAINFUL...... big time.   They were baffled that I would have the fluid, and identified it as synovial fluid because they kept aspirating the Bakers cysts, and eventually the front of the knee was getting fluid too. All signs said must be infection but blood work said no infection. After a year of him truly trying to do everything he could think of, while being very mindful of the nightmare and possiblity of infection everytime he stuck a needle in,  the orthosurgeon did a debridement/synovectomy where they go in arthroscopically with camera and tool and scrape all the scar tissue off bones and apparatus, and clean up any little fragments or cement, or other things that could be causing irritation in there. During this procedure, he diagonsed me with rare PVNS disorder.  His assistant gave me diagnosis at follow up visit, but didnt give me any plan of dealing with it, and didnt really even know what it is.  I feel your pain, I am actually 59, and my house is a testament to the pain I have been in cause nothing much gets done.  I just thank God my job does not require me to be on my feet.  I would definitely have someone test for that or go to an expert for follow-up, they may have to redo the TKR, hard saying.  I wish you luck though, it really sucks being in constant pain and not being mobile, able to do simple things you did before...  Nerve problems hurt, can they do a release?  I have heard there is something they can do to get the brain not to recognize the nerve pain, but I dont pretend to be a doctor.  Just wish you well .......

Wow. I am so sorry you are in so much pain Kristen.

Would your family Doctor recommend someone more reputable than the surgeon that you had or is that the one they sent you to.

I am lucky that I have some friends or friends of friends that have had this procedure done. I listened to the pros and cons of different Surgeons and was lucky enough to get a grip one. Good luck to you. It cannot be good to be going through so much pain. I hope you can find a Doctor that can give you some relief

I would ask for a second opinion from a different facility. US insurance companies generally are ameniable to the request. A simple xray will show If the prosthesis is straight and working properly. You can go from there. Having had something go wrong after the surgery isnt common but it sure happens. That's why a lot of revisions. I was never sure my original was done correct. My foot always flew open when I walked which had me in various levels of pain. I don't know where in TX you live but if you are close to a medical school like UT or Baylor contact them. They have a huge staff with every disciplinecat their finger tips and they don't mess around with getting to the bottom of the problem. I switched from a private practice and a local hospital to the University of KS medical center and Hospital and couldn't be happier.

Wow, I did not see that you also had PVNS.  From what I hear it is so rare alot of doctors dont know what they are dealing with. I did look online and found some specialists in the states.  That is the wierd thing is most people have a TKR like you, to fix the PVNS, but supposedly I didnt get it until after my TKR, unless first doctor missed it...... I keep getting contacted by lawyers who somehow know I got a replacement, urging me to join class action lawsuit, I hate frivolous lawsuits, and dont know if it is the doctor, the apparatus, or what, but if I end up having to have a revision, I would sure like to make someone else pay for it if it is their fault, I dont care about money, I just want my life back, and I am sure you are the same.  My daughter has a rare issue with a venous malformation in her foot that wraps around main artery, and causes pain.... she is in pain management for that and something was said to her about this nerve block you can get, I guess the problem is you can injure yourself and not know it with the blocked nerve, I dont know, I just know pain is not fun and I feel for people with chronic pain cause it not only hurts but the depression becomes overwhelming..... I truly urge yout to keep pushing for answers, I intend to do the same....

 

I also had a 'botched' left TKR done in 2012. I gave it one full year to heal and when I went back to the surgeon, he took xrays and basically just dismissed me saying 'get a second opinion'. That's how they roll, they will never own up to any errors or miscalculations of your components He just washed his hands of me. I did a lot of research and found a wonderful new surgeon for my right knee. Truthfully, any surgeon will not be too anxious to 'fix' any other surgeons botched knee. But my new surgeon did xray the botched knee and it definitely is out of alignment. It gives me more pain than the one I just had done in November. I will have to address the issue of increasing malalignment pain in the future. It will require a revision and being fresh out of surgery for my right knee, I'm not too anxious to go through a revision right now on my left.

Omg I have been so depressed due to lack of bend since sept 2014.  Two physios say so ething wrong and they cant help.  Surgeon says x rays arw fine so ge cant help.  Second surgeon said go back to guy who did it.  Suffering but dont know where next.

carol Scotland