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TMD or ETD ? I am not losing my mind !!

Posted , 4 users are following.

abhishekshah
abhishekshah

Hi all i am Abhi,

It has been 3 years since i have been suffering in pain and i honestly would either like to reach to the bottom of the it or leave this body as the pain is beyond what i can handle.

I am unable to travel in any car or even take the elevator, if the car goes beyond 60km per hr my ears get full of pressure and i am able to release it no matter what i do, i need to stop the car and swallow, in the elevator as the the floors start to climb, my ears start to get full and i start to choke and my muscles start the spasm, my heart starts to pound and i feel like i my body is about to go into a complete lock down.

I have constant pain in my jaw, specially the right jaw, i can feel like there something in the ear, but near the jaw bone.

All of this started 3 years when a wrong crown was installed on the right jaw after a root canal and i was exercising pretty heavy during that period, i still remember the first time i had pressure in the ear after finishing my workout, it almost felt like i was drowning.

Anyway since then i have diagnosed with TMD, apparently the disc has slipped, i can send a scanned copy of the MRI to someone who can help.

Since then i have used night splints they helped a little but did not cure the Ear issue or the jaw issue, i have used splints during the day as well but they have helped only a little, i did a treatment called the DTR where the dentists grinds a small portion of the teeth to correct the bite but that didnt help either.

The muscles around my face are going crazy and my etd is horrid to a point that i cant sit in a car over 60, people cant understand the pain i go through or how i feel but one can see the muscles in my neck spasm/expanding and contracting when i am in motion.

Any help or guidance will be appreciated and yes i have 3 teeth missing in my jaw, two on the right and one on the left, even while typing this message i have had to pop my ears open twice, my vision is blurry and i have pain under my left jaw.

Please help.

0 likes, 7 replies

7 Replies

  • ChimpLegs
    ChimpLegs abhishekshah

    Posted

    My friend. I have some problems which are the same as yours. I know how frustrating it can all be. I also have Tinnitus (ringing in the ears).

    I think what you might need is someone called a Neuromuscular dentist, and also a Neurologist. The neuromuscular dentist is a specialist in the type of things you are describing. And the neurologist deals with the neurological system which controls all the muscles & nerves.

    Jaw problems can cause ear problems as well. Its all related.

    I wish you the very best. Please dont give up. My thoughts are with you.

    Chimp.

  • claire71812
    claire71812 abhishekshah

    Posted

    Hello, you have my deepest sympathy, people who do not suffer ongoing pain think you can just take a paracetamol and it will all go away.

    I don't know if any of this will help you as you have a disc displacement, but these things have helped me a little. Visit TMJ.org website. Make sure you have a HARD UPPER night splint that is custom made ( I had to go private). Excercises from the followings books , everyday.

    Pain free a revolutionary method for stopping chronic pain by Pete Egoscue. Living pain free healing chronic pain with myofascial release.

    Taking control of TMJ. Robert O Uppgaard.

    I take 2 x b12 sublingual tablets 1000, a day for tinnitus. Celluvisc saline eye drops for dry eyes which cause blurred vision (doctors can only order 90 capsules at a time ), don't have anything with preservative it makes it worse. I have done cbt, it helps deal with your thinking/panic to some degree. Alexander technique, laying on the floor with books under your head to release neck tension. Epilepsy drugs/ valium,*( i reacted so be careful.) You can look up all this information online. Best of luck. Claire

  • claire71812
    claire71812 abhishekshah

    Posted

    myofascial release book is by amanda oswald. talk to your doctor about referring you the IA PT cbt programme, I am presuming you are in the UK? visualising beads of tension streaming out of your neck and shoulders.

  • abhishekshah
    abhishekshah

    Posted

    Thank you for your replies, i was wondering if the missing teeth could be causing all the agony ? would getting dentures made be a good idea ?

  • claire71812
    claire71812 abhishekshah

    Posted

    maybe an uneven bite can make things worse. i have teeth missing as well. my problems started with dental infections that couldnt be dealt with causing 6 months of pain. i lost one tooth and a crown on another. they say not to bite on front teeth and to chew evenly on both sides. so that is where dentures might help? ask your dentist for advice. my dentist i trusted left and i had to see a dentist that was may be interested in making money more than what was best for me. i have really bad stressors in my life at the moment, so my tmj is bad. it is hard to remain hopeful.

  • ChimpLegs
    ChimpLegs abhishekshah

    Posted

    Just want to wish everyone here, an happy new year. I hope for all of us our health improves in this new year.

    Peace & Love to you all.

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