TN and Facial Pruritus (Itching) could they be linked?

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Hello All,

I've had my TN return after a gap of some 10 years. Under reasonable control with 1200mg Oxcarbazepine (per day). But I've had some Pruritus for a number of years. No skin condition has been identified and it's been hinted that it's neurological in may in fact be linked to my long term TN. Is there any evidence to suppor this either by members or other sources. It's actually got worse for me than the TN in terms of it's discomfort and frustration. Thanks.

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  • Posted

    Oh that's horrible.and yes, a quick search on "Oxcarbazepine and itching" gave many results stating that it can cause itching and to watch out if it starts itching or making a rash down your neck in particular. You really need to see a neurologist and ask for something else to try esp since it is now becoming painful/hard to tolerate. that sure sounds like lot of Oxcarbazinpine. Oh, just did a netsearch and its apparently the maximum dose but you really need a Neurologist opinion soon in case it gets worse or intolerable. Often they can drop the dose of what you are on and add something else to compensate. Good luck alan, and dont wait it may take weeks to get a Neuro appointment.
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  • Posted

    Hello Valkyrie,

    I dindn't fully explain . I've had 10 years without any TN symptons. The itching started before I commenced on the Oxcarbezepine unfortunately. I'd had a reaction to some hypertension med' that I had since stopped and blamed my alternative med's. Unfortunately for me (having stopped them all temp') I've got a permanent/semi permanent itch now. So don't believe it's any of my current med's unfortunately. 

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    • Posted

      sorry Alan,I got the wrong end of the stick there. I did find somethng called trigeminal trophic syndrome that talks about itching. Try googling that and see if it fits any of your symptoms. It must be awful.
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