I am 31 years old and was diagnosed with TN when I was 29. At the time, my neurologist tested me for many things, with a primay focus on Lyme Disease as I was living in the American Northeast. He didn't bring up MS, which was a huge oversight.
I started with a new GP after moving to the American Northwest, who asked if I had been screened for MS, and immediately ordered an MRI. If you are not aware, TN at a young age is highly correlated with MS. It's extremely rare for someone my age to get it. I also fit all the other criteria for MS in terms of genetics, location of upbringing, sex, etc. and have some other symptoms I didn't realize could be related.
My first MRI showed one significant lesion large enough to be MS, and tons of smaller ones. I have another MRI in a couple months to look for progression and check other areas, as well as looking for another possible cause for the TN.
I am wondering if anyone else has MS and TN, and if anyone else has both kinds of TN. I get it on both sides, not at the same time. I also sometimes get the stabbing random "typical" pain, but most often get a gradual build up to a debilitating constant agonizing pain that can last for weeks without medication. The "atypical" kind. Gabapentin helps me with that, but doesn't really help with the stabbing kind. I am allergic to carbamazepine, so I can't take that.
Anyone have similar presentation? It's got to be something neurological due to having both kinds on both sides... right??