1. Community
  2. Brain and nerves
  3. Trigeminal Neuralgia

TN Do you think my dosage is too low?

Posted , 7 users are following.

Glor888
Glor888

Hi,

I know a lot of you are on different medications, but some of you are on the same as me, Pregabalin. I'm presently on 200mg a day.

What I don't understand is why I had to start off on 25mg, as according to my Dr the drug is strong and therefore the increase in dosage has to be given gradually. Yet I noticed that some of you started off on a higher dosage.

It's not the same as when I was on Tegretol I had no problems. But unfortunately they don't agree with me now. 

Ive requested a call back from my Dr as I'm noticing a small shooting electric type pain coming through again.

Can I just ask what dosages some of you are on please?

Thanks.

Best Regards

Gloriana

 

2 likes, 30 replies

30 Replies

Prev
  • caryl33332
    caryl33332 Glor888

    Posted

    I was on tegretol for 7 years until I could no longer take it because it was negatively effecting my kidneys.  we tried several drugs, then I had MVD which successfully stopped the pain for 5 years.  I then had another MVD, but it was only effective for a year.  I am currently taking 450mg of Lyrica each day, but we are thniking taking it to 600mg because of recurring pain.

    Every person is different in terms of dosage.  The lowest dosage you can take and effectively deal with the pain is the best.  Trigeminal Neuralgia (TN) is something you learn to live with. Over the years you may have dosage increases and/or changes in the type of drug you are taking. Hope this helps.

    • Glor888
      Glor888 caryl33332

      Posted

      Hi Cary

      Yes I've lived with TN for over twenty years and when it stopped for six years I thought that was it. Then it returned. I'm keeping my fingers crossed that I don't have to increase my dosage again. I'm always wary especially when taking other medication. It certainly can't do the Liver any good.

      I hope you find a happy ending with your medication and dosage.

      Gloriana

    • Valkyrie
      Valkyrie Glor888

      Posted

      apparently Tegretol leaches the salt out out of your system and its recommended that you have liver function tests but nobody tells you anything, they think you automatically know what they know. A person could drop dead because of the weight of the things doctors dont think to tell a patient. sigh..

       

    • Glor888
      Glor888 Valkyrie

      Posted

      Hi Valkyrie

      Im not on Tegretol now. But I can imagine this sort of thing happening with any drug. To think we take them for years for one thing or another. I think I'll just check online to see a Homeopath maybe that will do the trick.

      All the best

      Gloriana

  • paula76255
    paula76255 Glor888

    Posted

    Morning Gloriana

    Im on the maximum dose of Pregabalin, 600mg per day.  300mg am and 300 pm.  I think I started off at 50mgx2 daily for a couple of weeks and then gradually increased it.  Ive been on this drug for two years now as Tegretol put me in hospital on quite a low dose.  

    The pain did level off at 600mg per day but the last couple of weeks it has got worse and Im now panicking as I cant up it any further.  Im not happy mixing drugs as they can damage the liver.  

    I hope you doctor can help you as electric shocks (for me) are the worst!

    Feel better soon.

    Paula x

    • Glor888
      Glor888 paula76255

      Posted

      Hi Paula,

      I didn't realise that 600mg was the highest you can take. 

      Sorry to hear you're pain has got worse now. Hopefully they can give you a different drug rather than having to mix two lots.

      I find the electric shocks are the worst. When I couldn't take Tegretol the Drs tried different drugs, I had side effects from all of them.

      Now I'm finally on Pregabalin. But last year, at first, I was still in pain two months later whilst all these trials were going on and not relieving any pain whTsoever. Not nice at all.

      At the moment I'm taking medication for a Hiatus Hernia, Vertigo, of which the Dr won't increase dosage, my Pregabalin and paracetamol for pain. Not good.

      Gloriana

      I'm seriously thinking of resorting to a Homeopathy remedies. 

  • Glor888
    Glor888

    Posted

    Hi Everyone.

    My Dr phoned me back last night and said he can increase my dosage by .50mg twice a day. So now I'm on 150mg twice a day. I took the dose last night and this morning I could hardly get up. My whole body felt really heavy. This morning I felt like I wanted to crash out on the bed. I'm out at the moment and I feel like a drugged up zombie.

    Then I realised I should've had an increase of 25mg first. I think shooting up to 50mg extra like that makes me feel like I'm going to O/D.

    So I'm going to take 125mg tonight and see how I get on.

    Glorian

  • fed-up
    fed-up Glor888

    Posted

    im on 2100mg of Gabapentin and 2400mg Oxcarbazepine, my pain keeps breaking through the tablets every other week i don't know what im going to do if it carries on like this
    • Glor888
      Glor888 fed-up

      Posted

      Hi Fed-up

      Wow! That is a lot of medication you're on. Have you gone through all the options on offer with your GP/Consultants?

      Have you tried Carbamazapine tablets? They are the best.

      All the best.

      Gloriana

  • maggie80535
    maggie80535 Glor888

    Posted

    Hi Gloriana. I am on Lyrica 2x75 mg.Have a look at Lyrica Survivors group on Facebookit will open your eyes and you will thank God you can quit easily.Best wishes
    • Glor888
      Glor888 maggie80535

      Posted

      Hi Maggie,

      How are you? That's what my Dr increased my dosage to. I felt really awful taking that extra .50mg straight off. So I soon reduced it to .25mg.

      Ok I'll have a look. thanks Maggie, chat again soon no doubt.

      Take care.

      Gloriana

  • Glor888
    Glor888

    Posted

    I felt like I was in overdose mode after I took the 50mg increase of Pregabalin as prescribed. I felt awful so I had to go straight to bed and as soon as I hit the pillow I zonked out for two hrs. Wow! When I sat up the room spun and I felt really heady. I got up and walked like a flipping Zombie. A sit down with a cup of tea did the trick.

    The first thing I did was reduce my dosage to just 25mg increase. This is probably why they have to be given at 25mg stages. I haven't contacted my own Dr yet. But I will tell him so he can inform the other Dr that you don't give them at 50mg as an increase. Now I know why. 

    Did any any of you have this problem?

    Gloriana

    • Valkyrie
      Valkyrie Glor888

      Posted

      Wow. Cant imagine why any Doctor would tell you to go up 50mg at once. My Dr said only to do 25mg increase per week! Far out.
    • Glor888
      Glor888 Valkyrie

      Posted

      Exactly Valkyrie. I just never thought about it at the time when the other Dr said increase to 50mg. He even sent a repeat prescription for 50's and 100's. Luckily I had some 75's left so I was able to take 125mg.

      I'll let you know the response from my Dr's.

      Gloriana

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.