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TN gammaknife experience

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susan70485
susan70485

I am interested in people's experience following gamma knife procedure to treat TN. Did you continue to take anti-convulsants? Did you experience deadening of the face? Anything else important to know? I opted not to have cyber knife following the TN surgeon suggesting I would continue with anti-convalsants and possibly have symptoms of TN return within 4-5 years.

0 likes, 5 replies

5 Replies

  • Tnhurtsme
    Tnhurtsme susan70485

    Posted

    That is longer then i thought for relief I have neuropathy in my face from an ear infection
    • Tnhurtsme
      Tnhurtsme susan70485

      Posted

      Nothing I can do about it I have had it for a year I feel like I had a virus in my ear infection because antibiotics didn't work on it and it took almost 2 months to cure it

  • greg66242
    greg66242 susan70485

    Posted

    Hello Susan,

    I had Stereotactic Radiosurgery(Gamma Knife Radiation) 20 months ago, and I am now starting to feel all the side effects. Oh, it was a failure. Well, here they are: weakness of the mastication muscles for chewing, numbness on side of face that was done, pain on side of face that was done (anethesia dolorosa), eye numbness on side treated, irritation of the eyes, hearing loss, double vision, gait is off (balance), and difficulty swallowing. Oh, I have bi-lateral TN. Do not mean to alarm you, but ASK questions, and do RESEARCH, RESEARCH, AND MORE RESEARCH, until you are satisfied with what you find out. I hope everything works out for you, and may God Bless You with your decision.

    • Tnhurtsme
      Tnhurtsme greg66242

      Posted

      That sucks I'm sorry for you greg I'm very afraid of ad I probably only going to do something if it cures it but I'm 31 now I got tnp from an ear infection which is neuropathy I don't think doing surgery will help me in my case my pain is constantly hurting non stop if I don't take medicine I'm screwed hope you can find relief gregoery God bless

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