TN gammaknife experience

Posted , 3 users are following.

I am interested in people's experience following gamma knife procedure to treat TN. Did you continue to take anti-convulsants? Did you experience deadening of the face? Anything else important to know? I opted not to have cyber knife following the TN surgeon suggesting I would continue with anti-convalsants and possibly have symptoms of TN return within 4-5 years.

0 likes, 5 replies

Report / Delete

5 Replies

  • Posted

    Hello Susan,

    I had Stereotactic Radiosurgery(Gamma Knife Radiation) 20 months ago, and I am now starting to feel all the side effects. Oh, it was a failure. Well, here they are: weakness of the mastication muscles for chewing, numbness on side of face that was done, pain on side of face that was done (anethesia dolorosa), eye numbness on side treated, irritation of the eyes, hearing loss, double vision, gait is off (balance), and difficulty swallowing. Oh, I have bi-lateral TN. Do not mean to alarm you, but ASK questions, and do RESEARCH, RESEARCH, AND MORE RESEARCH, until you are satisfied with what you find out. I hope everything works out for you, and may God Bless You with your decision.

    Report / Delete Reply
    • Posted

      That sucks I'm sorry for you greg I'm very afraid of ad I probably only going to do something if it cures it but I'm 31 now I got tnp from an ear infection which is neuropathy I don't think doing surgery will help me in my case my pain is constantly hurting non stop if I don't take medicine I'm screwed hope you can find relief gregoery God bless

      Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up