Tn in outer ear and neck?

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I have a benign tumour on my trigeminal nerve which causes facial numbness and occasional trigeminal neuralgia. I also have tmj. The last few days I have been getting a shooting throbbing pain in my outer ear and neck. Its now every couple of minutes and kept me awake last night. Ive never had neuralgia or any numbness on my ear or neck but can it spread that far? Or is it likely caused by something else? Ill phone my Dr tmw but wondered if anyone gets anything similar

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  • Posted

    Hi Sarah... I had the same ... it was caused by arthritis in my tmj...

    I have recently 6 weeks ago had a total jaw replacement.. made of titanium...

    I have now started with Trigeminal neuralgia in the left side of my face... as well as the pain in both my jaw joints I now have this terrible pain..

    I do hope you get to see a oral surgeon and things get better for you... this pain is awful I can't go to work as the medication I am on makes me very sleepy so I have recently became unemployed...

    a friend of mine has applied for pip as when I have the pain I take to my bed. I can't eat , can't sleep 😭

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  • Posted

    Hi Sarah.  Is your facial numbness bilateral?
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