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Tn in outer ear and neck?

Posted , 4 users are following.

sarah48603
sarah48603

I have a benign tumour on my trigeminal nerve which causes facial numbness and occasional trigeminal neuralgia. I also have tmj. The last few days I have been getting a shooting throbbing pain in my outer ear and neck. Its now every couple of minutes and kept me awake last night. Ive never had neuralgia or any numbness on my ear or neck but can it spread that far? Or is it likely caused by something else? Ill phone my Dr tmw but wondered if anyone gets anything similar

1 like, 5 replies

5 Replies

  • carol97610
    carol97610 sarah48603

    Posted

    Hi Sarah... I had the same ... it was caused by arthritis in my tmj...

    I have recently 6 weeks ago had a total jaw replacement.. made of titanium...

    I have now started with Trigeminal neuralgia in the left side of my face... as well as the pain in both my jaw joints I now have this terrible pain..

    I do hope you get to see a oral surgeon and things get better for you... this pain is awful I can't go to work as the medication I am on makes me very sleepy so I have recently became unemployed...

    a friend of mine has applied for pip as when I have the pain I take to my bed. I can't eat , can't sleep 😭

    • sarah48603
      sarah48603 carol97610

      Posted

      Hello carol thank you for your reply. I was thinking this was due to my tmj. I phoned in sick at work today and am just trying not to move my jaw see if that helps!

      Are you saying tho you didn't have trigeminal neuralgia until you had the surgery for tmj?

      Sorry to hear that sad xx

    • carol97610
      carol97610 sarah48603

      Posted

      Yep I only started with face pains like being electrocuted it is.. after my surgery xx
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