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I'm 45 years old and I've had TN or TMJ since 2nd grade. My mother remembers me waking up crying in the middle of the night saying my face was hurting. I had an mri done to rule out a tumor and/or cancer which was negative
As an adult more then one dentist/oral surgeon called it TMJ but i call BS. what happens is it 100% happens at night, usually it happens in my dreams first then it literally shocks me awake. at that point i become hysterical and start crying for 2 reasons, first the pain is bright and sharp just like a jolt of electricity shockong me on either side of my jaw, and the knowledge that the next 48 hours will be pure hell.. it bursts from my jaw into my temple .it shocks me every 5-10 seconds and lasts 48 hours. if the u.s government needed a new torture program they'd design a way to inflict this type of pain upon prisoners. it's debilitating to the point when my skin starts to crawl I know it's coming. i have to stop what i'm doing whether it be talking,eating, moving, whatever. swallowing seems to bring it on as well as being touched especially on my face but touching me elsewhere makes it hurt as well.. i can even at times be shocked by feeling a breeze on my face or arms. i actually will flinch away when someone comes close enough to touch me. If i'm talking I have to hold my head to one side and wait for that wave to pass before talking again. I know I must look like I a mentally handicapped cause i'll flinch away when someone comes close enough to touch me to stop them and will suddenly stop all of a sudden, waiting for a wave to pass. So I walk a few steps, stop, wait for the spike then do it all over again.
my burning questions are these.
Why, if I wake up AFTER it comes to me in my sleep but BEFORE I feel it awake it won't occure Again till I fall asleep. I've stayed awake up for 48 hours straight before in order to beat it.i'm literally a walking zombie after that. I literally have to be knocked unconscious to have the pain stop but thats only cause i'm knocked out. Over the years i've had every drug known to man to try and stop it but I never have. Nothings ever made it stop. I have gastriparesis and narcotics wreak havok on my intestinal tract. I'd love to try marijuana but I don't want the stigma associated with it.
Thank god it only occurs every several months, i've been noticing the spikes are getting worse/sharper but lasting shorter like 36 hours instead of 48 hours
In the course of 48 hours i'll have been shocked over 28,000 times. I would not inflict this pain on my worst enemy.
I was breached before being born, I was born with meconium stain and was flaccid upon birth my mother noted that a pediatrition had to come work on me., no one knows how long I was in the womb like that. I was supposed to have been born breached as I mentioned but I flipped round and was born correctly, could this have in some way affected me neurologically? She does mention I was slower a
Funnily enough I also have ideopathic peripheral neuropathy which, again, i've had all my life on the outside of my calves, the only way i've gotten that to stop when I have episodes is to make a shower as hot as I can stand and lay in the bottom so the hot water almost burns my legs. its almost like making my legs hotter then the sharp burning pain i've felt. Thatss how i've dealt with sleeping. I've taking upwards of 14 showers a day to try n get enough sleep, yes, instead of a bed I slept in the shower, now that pain lasts for months, thank the gods its not happened in quit a number of years which I am thankful for as I am now disabled and cannot get on the ground and if somehow I slipped and fell down i'd have no way of getting up
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