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Hi everyone - As we all are, I am in desperate need of some help and doctors aren't providing much. I have been in pain for about a year (which I know isn't long compared to others). Mostly it is a burning sensation on the back of my head at my neck with shooting/stabbing pains into my eye. I also have soreness around my jaw and a lot of ear pain, some throat pain. Sometimes there will be shooting/prickly pains along the side of my face into my temple. I have been in physical therapy, which helps some. My neurologist thinks it is mostly occipital neuralgia. But he was in a hurry, of course, and didn't really listen to all of my symptoms. He put me on gabapentin, 300mg 3x a day. I have only been on it two weeks. Some reviews say it takes time to build up and be effective. I have tried to remain hopeful the past cople of weeks, but this week I went on a trip out of town and being out of my routine (still tooks meds, but slacked on PT) made me feel miserable and lose what little bit of progress I have made. I am worried about whether or not I have TN or TMJ instead of ON. I want to get the right treatment. Like many of you, I am terrified that my life is over. I'm 31. After this week I feel I can't travel. I already canceled a trip to Europe, which my husband and I had been planning and saving for for years. I was planning to have a baby next year, but feel I can't in this state. I am a teacher and am terrified to go back to school because I can barely function. While I don't feel overtly suicidal, I have thought of it as the only option to unburden my husband and my mom if this continues. I am barely a fraction of the person I once was. All this in just under a year. Has anyone found successful treatment? Are you ever able to any semblance of a normal life?
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