TN & turmeric supplements?

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Hi can anyone tell me their experience of taking turmeric supplements for TN pain (my worst is residual in top of left shoulder & that side of neck)? roughly how long does it take for turmeric to give any pain relief & at what dose? thanks in advance x

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  • Posted

    Turneric, like most other "alternative" medicines or techniques, has been thoroughly debunked as having any sort of pain or inflammation reduction effect.

    http://time.com/4633558/turmeric-curcumin-inflammation-spice/

    Just one of a myriad of different studies showing it's pseudo science. Are you taking any real medicine for the pain such as those commonly prescribed for TN?

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  • Posted

    Well I take 1600 mg of Carlson fish oil 2 times a day. I take Life Extension's Advanced bio curcumin. I think it's two bottles for $30. Another thing I strongly recommend would be magnesium glycinate I take 400 mg 3 times a day, this helps a lot. I've had TN for over 20 years. This seems to be the sweet spot.

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  • Posted

    TN is not in your shoulder its in your brain the nerve touches the blood vessel and causes like electric shock very very painful i take turmeric every day  to ease my aches and pains it has no bearing to TN
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    • Posted

      Hi Chris/Nascar/Colin. Thankyou all for replying. 

      My gp diagnosed TN sept 2017 after 3wks of constant intense headache(, flashing/searing  pain in face-cheeks,jaw, scalp, front of ear, & left neck & shoulder pain of which didn't respond to any painkillers. she tried a week of diazapem first - did nothing, then started me on carbamazapene which took the headache away within about 3-4 days. she gradually increased the carbamazepine which relieved much of the facial & scalp pain over the weeks ahead as the dose increased, but i have been left with randomly good & bad days/hours of searing neck & shoulder pain on the left side. its along the top of the shoulder not any joint. I also take a low dose of amitriptilline at night for ibs pain & to slow bowels down as ami has an anticholinergic effect on digestive system, but apparently they also use this drug for nerve pain.

      i find the pain worse at night.  I had heard turmeric was good for inflammation/pain so have started a supplement hence me asking on here what to expect if anything. i dont want to increase the carbamazapine as i work, & it does make me feel tired/groggy the more i take.

      I recently had a bad spell of anxiety caused by work stress which really flared the TN all up again - facial & scalp pain back - the lot. my doc told me stress can exacerbate TN.  Now the anxiety is under control, the facial & scalp pain have died down considerably, but again the left side of neck & top of left shoulder is still very painful most days, so I'm just looking for other things to try. x

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  • Posted

    Hello I'm ready sorry for your pain I am a TN suffer for almost 2 years now. I am lucky with the pain meds I am on control my pain but sorry I don't agree that turmeric does not work. Turmeric with Bromeline worked for a severe concussion I had severe headaches it was the only thing that worked I had to take 2 capsules I think twice a day it takes a few days in your body to build up and start feeling less pain. I still use it today. Now my main pain flare ups is I'm sensitive to cold even cool breeze still triggers my pain even with my meds so I cover my left side of my face with a scarf and hold it in place when I go anywhere with air conditioning or if I have to leave the house and it is cool out. I use hot packs to help lessen my pain. I already had the MVD surgery but it was unsuccessful. So I keep myself in a control temp environment this makes life limiting but helps to keep pain under control. I hope this helps you.

    I am going to be trying the oil that medicinal marijuana not sure how to spell sorry it has been said that the special blend they make specifically for your pain areas works wonders. Not sure what country your in but I'm in Canada so this has just started here in the last year.

    Everyone is different at to what works for them so keep hope and try somethings you learn on here to see what works for you. I wish you success in finding something that works for you.

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    • Posted

      Hi Marilyn, thanks for your reply. I am in GB & had looked into a  bit about marujuana oil too; its very expensive here & taste of it has been reported to be bad, so looked to turmeric instead. my doc mentioned that having an mri was pointless as if a problem with nerves or trapped nerves found, the surgery to treat is often unsuccessful & risky in terms of paralysis. they generally only consider surgery if all avenues of meds dont work.

      i also have to be very careful with alternative medicine (eg natural supplements) as i have ibs(d), colitis, & bile acid malabsorption, & have a very delicate digestive system, so have to watch nothing upsets that! I have started on 500mg turmeric capsule with black pepper (apparently it aids absorption) after my evening meal. the recommended dose is 1000mg a day total taken in 2 doses. so i plan to increase to twice a day soon, (have been taking about 8 days, no difference yet) x

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