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TN2 & Cold weather is killing me!

Posted , 7 users are following.

RachRoux
RachRoux

Hi all hope everyone is doing okay.

I just wanted to post on here and see if anyone else was in the same position as me. I am really strugglung with the cold weather as it is my biggest trigger. I can't leave the house, I can't do anything. I am in so much pain i am just sleeping all the time as i am getting so exhausted with it! I have the heating on full i am wearing a thermal balaclava and hoody and i have a huge blanket wrapped round me and have heat pads on. Still my nerves seem to be imagining a breeze and it is just excruciating! Arghhh! The dull pain i have 24/7 is wearing me down with this weather as the intense pains are just so frequent. Tegretol seens to be doing nothing. I am so sorry for any of you sufferers who have extremelt cold winters this must be hellish. I'm in the uk and its currently 0 degrees C. I know it could be so much worse.

Anyone have any tips or anything it would be much appreciated I'm kinda losing the will here.

Love to all Xx

1 like, 36 replies

36 Replies

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  • anne40307
    anne40307 RachRoux

    Posted

    Sorry to hear you are suffering so much from the cold weather. It seems wherever we are TN catches us up! I’m in Kenya at the moment, it’s very hot but also windy and even the warm breezes are zinging across my face. It’s even difficult to wear a hat as that triggers pain from the top of my forehead. Makes me realise how much I took for granted before TN started.

    Hope all sufferers feel better soon.

    • RachRoux
      RachRoux anne40307

      Posted

      Well there goes my plan to move somewhere hot haha!

      I too get the awful pain when i wear a hat it's so annoying!

      I hope you manage to get some wind free days.

      Take care of yourself Xx

  • vicki78970
    vicki78970 RachRoux

    Posted

    Also besides the over the counter things I take. I found a video on youtube. If you go the the opposite side of the face, take your full hand and tap your face repeatedly you do get a relief. For some people it's permanent, some temporary.

    • RachRoux
      RachRoux vicki78970

      Posted

      I was told this by my accupunturist and it really can ease the intense pains but i find it only works when you manage to find the points so it's a bit of prodding and poking around on your face until you find some relief. Xx

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