To all Granuloma Annulare sufferers - what else is going on?

Posted , 91 users are following.

I have GA for 8 years - we all know that this skin disease itself is not painful however I want to know if other things are going on within your body? 

I, personally, have issues with toe and leg cramps and nerve pain. Is this related or something else all together?

If you could please share your personal experience, I believe we need all info to assist each other.

Thanks,

Carole

6 likes, 207 replies

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  • Posted

    Have to go out now to meet my son.

    Cannot believe I found this forum.

    So much rings a bell.

    I too have cramps in my toes when I'm sleeping

    This all began 4 years ago right after my mom passed away.

    Wondering if triggered by stress. will contact you at later time.

    Have to leave now.

    Be good to yourself.

    Theresa

  • Posted

    Has anyone ever been prescribed Plaquenil for GA? If so, did you get good  results? Thanks!
  • Posted

    Hello Ladies,

    Interesting stuff here.  I'm 51 and have had GA most of my life.  Lately it has been much worse.  It does seem like it was diagnosed about the same time that I got an amalgam filling as a young child.  My derm treats with low dose Amoxicillan, and topical cortisol creams.  I don't like taking the antibiotic long term, so I occasionally stop and GA flares up again. I don't think I've ever had a time with no GA in my life.  I have recently been diagnosed with the MTHFR gene mutation, and it definitely has connections to possible Mercury issues and gluten.  I'm still learning about it.  I've also been taking Armour Thyroid for about 18 mos.  Additionally, I have an appt tomorrow to discuss the possible diagnosis of Oral Lichen Planus, also autoimmune.  My dentist thinks I have it, now I'm confirming with a specialist.  My cortisol is all out of whack too.  I've been doing a ton of research to try to connect all of the dots.  I only have one amalgam filling, but I'm going to get it removed as soon as I can.  

    I'm sorry I don't really have any answers, but I didn't see that any of you have tried antibiotics for GA.

    I'm in Dallas TX.  Are you all in the UK?

    Thanks!

    • Posted

      I am on Armour Thyroid too. I was on Synthroid but changed over becasue the Synthroid was messing too much with my heart beat. Safer on Armor I think. I am going to go off caffiene again and alcohol, which I do very little of, but still it seems to be stress related. I am off wheat. At least it is good to know that you can have this your whole life and still survive. I wonder about cleaning products, acetones that mess with your liver. Anyone of you out there had exposure to toxic substances?
    • Posted

      Hi Everyone,

      When I got the first one..on my ankles, it was four years ago soon after my mom had passed away and I had broken up with someone I cared about.

      The one on the ankle is fading. There is also one of my left shin..which I have to cover with make up. It seems to flare up when I have wine.

      I really believe it is stress related too...but I know foods aggravate it.

      Take care.

      Glad I found you guys.

      Terry

      At times, I have toe cramps too..when I'm sleeping.

      Has anyone tried acupunture. I think someone has.

  • Posted

    Hello everyone - it's been a while since I've been on here and life has moved on, etc.  I'm still adopting a more or less paleo lifestyle, enjoying the virtually zero grains and have been more or less 'good' although every now and again I stray.  My food intake is good, very healthy, nothing processed, no sodas, no gm (in the UK labelling is good), cut right back on sugar, etc etc.

    So the GA is still there although has diminished on my elbow to being colourless with tiny bumps, reddish hue has gone.  However I have 2 slightly raised red patches on inside of each knee and I keep finding patches of discolouration on my skin (front of torso) which come and go - not sure if they're GA related or not. 

    I'm now becoming more and more convinced that these skin issues are a protective mechanism and it makes sense to me and my nutritionist that the skin is reflecting a level of toxicity in my body and dispersing this to the far flung reaches of my body out of the way of the vital organs.  So that begs the question, if that is so, how to heal it?  Detox is obvious and I've already had all the dental mercury removed from my teeth about 6 years ago.  The dentist said he'd never seen anybody with quite so much - I come from the drill and fill generation rather than the preventative era.  Other detox has to be undertaken safely.  I live in London where recently a study talked about the high levels of nitrogen oxide in the air are causing early deaths.  I suppose the answer is to sell up and move to the countryside - not so easy with work.  We've still got a lot of old lead piping in our old houses so that's an issue, I do filter my drinking/cooking water and also my shower water so am attempting to manage that. 

    The next thing I've been strongly advised is to make sure that I heal my gut and strengthen my immune system.  I've been advised to make sure I'm not killing off the good bacteria in my gut which I probably did kill off in the past so diet is important.  Secondly to reintroduce good bacteria in the form of probiotics and particularly fermented food.  I've been making sauerkraut (my hubbie hates the smell - tough!), a daily intake of Kefir, and now investigating Kombucha.

    Work in progress is the name of the game. Will post back any 'lightbulb' moments as and when they arise. Great to know that you're all out there and hope we continue to share our insights.

    Cheers

    Sally

     

  • Posted

    Hi,

    I am still eating a normal diet (with junk food) and taking a low dose of plaquenil which keeps me from getting new GA spots.  Prior to the plaquenil I was doing cortisone injections which if done at the earliest sign of a new GA spot will eliminate it.  I intend to take plaquenil for a year then wean myself off of it to see if I am "cured."  My newest theory is that GA is some form of lupus but it only affects the skin.

    Best wishes to you!

  • Posted

    Interesting about the lupus.  I met someone in London about 5 years ago who cured herself completely of lupus through taking mega doses of a very pure form of barley grass grown in Japan.  They had to move countries because of the tsunami and the nuclear reactors being damaged so I understand it's now being grown in another very pure environment somewhere else in the world!  Maybe I'll also return to the barley grass as it can only do me good and fingers crossed encourage the GA to move on.

    Cheers

    Sally

    • Posted

      Have pm'd you about this.  You might be interested to see a youtube video by the scientist who developed it Dr Yoshihide Hagiwara which you can google.
  • Posted

    I am 56 and have generalized GA. I have had issues with IBS, bloating and gas. My GA started a out a year and a half ago. It started on my trunk, now has spread to my legs, arms ang feet. Other faily members have had autoimmune issues. I feel it is the chemicals on food we eat, as is everything else that is a result of poisoning our bodies over the years. Will be trying some of you ideas. Keep them coming!
    • Posted

      Hi Sarah,

      With IB, I would probably start out by eliminating all grains, particularly wheat.  

      My husband had IB & Crohn's disease (diagnosed by colonoscopy) for over 15 years and during that time had 3 sudden intestinal bleeds where he lost about 1/2 of his blood each time.  The only help from MDs was prescriptions for medications that coated his intestines along with instructions not to travel to countries that don't have a high level of medical care.

      Once I started having high blood sugar & almost completely cut out wheat & most other grains in addition to other high glycemic foods, he got a lot better since I no longer fixed things like pizza, pasta or sandwiches meaning he had a lot less of it too.  Avoiding that didn't help my GA and I eventually found that eliminating other foods that I tested for did help.

      Anyway, bottom line for my husband is that at his next colonoscopy a couple of years after dramatically decreasing his intake of grains, my husband now shows no sign of Crohn's disease at all!  The doctor was astounded & so were we.

      I've read posts from some others who gave up gluten grains and after about 6 months, their GA was greatly diminished.  Since grain intolerances are very common, this would be a good place to start.

      Good luck to you!

      Patty

       

    • Posted

      Thanks Patty.  I will try that. Really appreciate this forum!! I didn't have any resources until now. 
    • Posted

      Even if it doesn't help the GA, I'm betting that it will help the IB.

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