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Greetings Forum:) My name is Daniel. I am from the midwwest US, on medicaid, 41 years old and would like to share my story and additionally ask those who frequent this forum for any helpful input they may provide!
I experienced what I thought was a bladder or uti infection in Oct of 2018. The pain came on one night after I ate an entire large pizza and passed out on my couch. I awoke with a deep pain in my lower left quadrant and by the next day I headed to the ER. CT scan results showed I had
DV. I was prescribed with Ciprofloxacin plus metronidazole (7 day course). This by far was my most painful flare-up to date. Within a few days the pain began to recede and was entirely gone in less than a week. I had been a rather heavy whiskey drinker (Jameson) for about 6 years before this condition arose. I stopped drinking after this flare up and that lasted for 3 weeks. I began drinking again and within 2 weeks I had another ER visit. This time they gave me a 10-day course of Ciprofloxacin/metronidazole. Same deal again, I quit drinking a few weeks and like a pro drinker I was back to drinking once my meds were all taken. A month passed and I had my third ER visit. This time they gave me Amoxo-Clav 10 day course. Finally on the third ER visit they suggested I go see a GI (this should have been recommended on my first visit). Each time the problem would come back although a little less painful each time; however, other symptoms began to develop and so began my education in lifestyle changes etc.
My first colonscopy/endoscopy was performed in Feb 2019. They found a few small polyps in my colon. Those were removed and came back clean after biopsy. There was some scarring from an ulcer in my stomach that did not need any treatment as it was on the mend. The doctor told me that I looked clean and was looking good. He only stayed and talked to me long enough to say a few things while I was barely coming to from the "michael jackson drug" they gave me, Propofol. The impression I was left with was that I had been misdiagnosed at the ER. Perhaps time to see a Urologist?
I had begun to experience urinary problems around the time of my 3rd ER visit in December. Generally these episodes of urinary retention would happen about 24 hours after a drinking binge. They would occur like clockwork each and every time I stopped drinking to take a several day break, never during the binge, always after. I should also add that I was a cigarette smoker when I was drinking. Additionally I was using cocaine on weekends with my friends at the bars. All of these no-no's were most certainly taking a toll on my condition not to mention my overall health. I decided that it was of importance to be totally truthful with my doctors about my usage so they had a good picture of what I was putting into my system.
I should also add that all my bloodwork came back clean. Kidney/Liver function, STD's, prostate all came back clean. The urologist put me on Flomax to help with my urinary problem.
It helped for a bit but then that feeling of urgency was still there, although not nearly as bad as when I was drinking. After the urologist said my latest CT looked clean for my urinary system they sent me back to the GI stating that my DV was still there. The GI gave me yet another round of antibiotics, this time a 10 day course of Levofloxacin. This did hardly anything for me accept give me some hope that I would heal.
By May 2019 I was starting to make some huge changes in my lifestyle. I had already cut the cocaine out a week before my colonscopy in Feb, so I decided to go all-in and stop the alcohol and cigarettes as well. To this day I am 100 percent clean. I began exercising again and changed my diet to things like chicken, salmon, soups, mashed potatoes, no skins from fruit,
no seeds etc. I have been drinking aloe vera juice and taking licorice extract pills to reduce inflammation. I am very proud of my lifestyle change but I must say that the problem still exists.
Most days of the week I am feeling ok comparatively but I will have one to two days a week where I am sore, bloated, cramping in my lower left quadrant. This is generally the times when I experience my urinary issues as well. Generally it can take me up to a minute or so to get a flow going when I need to use the bathroom. I am never able to push the urine out without that pain in my lower left quadrant, so most of the time I just let it slowly come out. Today, I had yet another CT scan and in two days I am back in to see my GI. The appointment is cleary going to be one where they are going to suggest me getting the surgery I am certain. Despite all my changes in my lifestyle the problems keep coming and I have to walk a very very fine line with my diet in order to keep myself feeling at 75%.
At first I was determined not to get the surgery but the more I live with this condition after nearly a year of this I am just about ready to crack and agree to the resection. It's too bad that all of my bad decisions in the past have perhaps led to me being here now but it's where I am.
I do have a family history of DV in my paternal side of the family. Nearly all my great-aunts had or have DV. None of them got the surgery, they just adjusted and lived with it for many years.
I could go on and on about all these things but all of this sounds mostly familiar to everyone here at this forum. If anyone has any questions I'd be glad to answer. I wanted to give an overhead view of my situation and get some advice from those who can say anything about the surgery. Is it worth it? Will my quality of life return? How long will I be out of commission after the surgery if I elect to do so? I am a music teacher by living so I'm able to just sit and teach, nothing physical really. I am also investigating doing some acupuncture / chinese herbalist therapy but not sure if that will even help my colon at all.
Thank you for taking the time to read my story. Looking forward to any replies.
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