1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

Today

Posted , 5 users are following.

diagnosisisalie
diagnosisisalie

Today I went to take the several labs that I was suppose to do before seeing the doctor again. NO where did it say to fast , I took two sips of diet Pepsi before the test , I had to take meds and well No one said the FAST .

The lady who drew the blood asked me about fasting and I was honest about the two sips. I went ahead with the test after waiting over an hour.

My Newest symptoms:

1. my eyesight is sometimes cloudy

2. I can not ope my front door as it is to hard

3. My husband says I am weak , when asked to push on him after the door incident

4. My heels feel as if I am walking on some sort of knives.

5. I wanted to stay in bed and say no more getting up

6. My chest is hurting again , is it my heart , is it bruised , what?

7. I stopped falling ,so far. I fell 4 times .

8. I am so so on the whole bladder thing

9. My hand is hurting , but I can't have surgery till the pain is gone

 

2 likes, 12 replies

12 Replies

  • diagnosisisalie
    diagnosisisalie

    Posted

    Oh and my speech is broken , and eyes heavy
  • kirsty08752
    kirsty08752 diagnosisisalie

    Posted

    Hi diagnosisisalie I feel for u an I understand your pain.. Nhs is so bad an no way helpful at times.

    These new symptoms which keep coming all the time is so horrible an if your like me feel like your getting no where hugs Kirsty xx

    • diagnosisisalie
      diagnosisisalie kirsty08752

      Posted

      EXACTLY, I just ran out of my Lyrica . My RA gives me samples (which is nice) because my insurance doesn't cover it. I just ran out, so his assistant gave me a card for what everyone thought was 25 dollars a month for the medicine at the pharmacy but it is misconcieving it is 70 dollars of a 30 day prescription which cost 600-1000 dollars for the milligram and amount where I live. I have a hard time paying for something when I don't see it working and is actually harming me. I know that I can't stop cold turkey. The RA will not change the meds as I think he is very textbook and afraid that something else could help.
  • charlotte1824
    charlotte1824 diagnosisisalie

    Posted

    Have u had a brain MRI?
    • kirsty08752
      kirsty08752

      Posted

      Do u get puffy eyes as well my eyes swell all the time looks awful
    • diagnosisisalie
      diagnosisisalie kirsty08752

      Posted

      I don't know if they are puffy but my husband will say at times that I have Lyrica eyes ( as if I was messed up or something) , I never notice it . I guess that is because I never have been.
    • charlotte1824
      charlotte1824 diagnosisisalie

      Posted

      To rule out MS or other neurological issues. Seems absurd to me that they haven't done one if you falling and have weakness. Does the weakness remain? Is there any muscle wastage?

      The meds probably cause a lot of the additional symptoms as well as the fibromyalgia but you should have other things ruled out. I know you've done all the blood tests but a brain MRI I thought was a basic requirement for muscle weakness, sensations etc. I've had one privately and it didn't give any answers but at least I know and now have a comparison for later years.

    • kirsty08752
      kirsty08752 diagnosisisalie

      Posted

      I was just wondering as mine go really puffy at times like I have a black eye but with out the brusing I asked my doctor but he never said anything about it
  • christine26761
    christine26761 diagnosisisalie

    Posted

    Aawww, poor you diagnosisisalie, such horrid symptoms...I get some of them but it's not from my Fibro..., it's  Sjorgrens   Syndrone..another autoimmune condition.....I really feel for you, gentle hugs from over  the seas..hope things improve for you really soon...you certainly sound rotten...be blessed and try and have a lovely weekend...:-) xxx
    • diagnosisisalie
      diagnosisisalie christine26761

      Posted

      Thanks, I was texting my husband's aunt in N ew York and she said that a friend of hers takes Lyrica and he feels as if he is walking on razor blades as well.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.