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  3. Granulomatosis with Polyangiitis

TOLD I HAD LUNG CANCER BUT IT WAS WEGENERS

Posted , 9 users are following.

ganor
ganor

AFTER MANY MONTHS OF ILL HEALTH AND MY GP COULD NOT FIND OUT WHAT WAS WRONG WITH ME.IN MAY 2009 I WENT TO HOSPITAL BECAUSE I WAS COUGHING UP BLOOD THEY DONE XRAYS AND CT SCAN AND I WAS TOLD I HAD LUNG CANCER.MANY BIOPSIES LATER AND A SURGICAL BIOPSY WHICH CAUSED ME TO GO INTO RESPIRATORY FAILURE AND WAS IN CRITICAL CARE IT WAS 15 DAY AFTER BIOPSY WHEN THEY TOLD ME I HAD WEGENERS .I WAS PUT ON CYCLOPHOSPHAMIDE,PREDNISOLONE AND MANY MORE TO COUNTERACT THE SIDE EFFECTS .I STILL HAVE A VERY BAD COUGH,PAINFUL JOINTS,VERY MOTTLED SKIN ,PROBLEMS WITH MY BLADDER,AND VERY TIRED I FEEL THAT I AM NOT GETTING BETTER BUT MY CONSULTANT SAYS I AM IS THERE ANYONE OUT THERE THAT FEELS LIKE I DO .

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  • susan224228
    susan224228 ganor

    Posted

    Hi Gabor your diagnosis of this disease sounds very similar to my husbands like you he suffered months of ill health told he had lung cancer only to be told by an eye specialist it was wegners granulomatosis with polyganitis he has had 2 doses of rituxamab which hasn't worked he is now due to have his 5th treatment of cyclophosmide but knocks him for six and is in and out of hospital due to shortness of breath he is ok when he doesn't move but when he does move he gets out of breath quickly so his mobility is poor it's like he takes 1 step forward then 2 back does it get better in time

  • liza02980
    liza02980 ganor

    Posted

    Hi Ganor. I was diagnosed last year with Wegeners. My voice now always hoarse. Developed pneumonia about 3 wks ago. Went into hospital and ended up in respiratory failure . Right lung abscesses with empyema. After seeing what they removed from my lung i was amazed at what a terrible serious illness i have. Status post thoracotomy. Dont feel the same. It has tsken a toll on me. The only thing i can tell you is i thank God to let me see and be with husband and 2 kids. Otherwise. I am feeling miserable as well. God bless
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