Told I need Urolift!
Posted , 14 users are following.
I have had BHP for the last 10 Years & very slowly it has been getting worse (66 now)
I have tried Tamsulosin which didn't help at all only giving me Retrograde Ejaculation so the Doctor asked me to try Finasteride & suggested I see a Urology specialist.
I picked the Finasteride up from the Chemist & read the potential side effects with my Wife which were shocking, I haven't used any!
This was 4 months ago & last Saturday I went to St James Hospital in Leeds to see a Doctor Prescott.
A nurse immediately gave me a cup & a jug of water & told me I would be having a Flow test.
An hour later I had the test & then the Nurse scanned my Bladder.
15 minutes later I met Mr Prescott who briefly asked what my Symtoms were. I explained the poor flow, stopping & starting, never quite sure when I have finished, dribbling etc. I get up during the night twice on average I don't have a drink after around 8pm. Going out with the Guys for a few pints on an evening are a thing of the past!
I then had an internal inspection which lasted all of 2 seconds! The Doctor said indeed my Prostate was enlarged maybe 50-60?
He then informed me I needed a Urolift procedure, a PSA blood test in a couple of weeks & a Flexible Cystoscopy which he said he would organize quickly.
There was no explanation of how the Urolift works or any other procedures that might be available.
I was sent away with a couple of leaflets for Urolift & information sheet about the Cystoscopy.
It all felt very rushed.
Can anyone out there tell me if Urolift is the preferred procedure for the NHS & how successful it is?
0 likes, 27 replies
gene97713 paul185
Posted
Very well and wisely formulated by Motto. My experience is exactly the same. Now I'm 20 years back anatomically after successful PAE but would I have a pack of disposable catheters back then, 5-6 years ago it would save me three trips to ER and annoying Foley installed for . a week with ensuing infection of LUTS. Having a spare disposable catheter around will save you money and time. Foley is needed only after Urological surgery. Most ER and Uros abuse Foley practices (it brings money to the ER or Doc and very sizable amount).
Listen to Motto's reasons.
liftednow1015 paul185
Posted
Tests like Rectal Ultrasound and cystoscopy are routine before any procedure to alleviate BPH.
I had a Urolift by choice(Turp alternative) because I wanted to preserve "normal"sexual function(see effects of Turp and retrograde ejaculation).
My prostate was measured(by Rectal Ultrasound) to be around 85cc. Which is "on the upper limit" for Urolift, but I chose to go ahead with it.
After 3 years of reasonably normal bladder function( but with some PVR = post voiding residual) I experienced AUR(again) and had a TURP(no realistic alternative). I am fortunate, and have a very good Urologist(private ) I do not have RE(retrograde ejaculation)lucky me!
I am in a (small) minority (approx 85% of post Turp men have RE?)
We are all individuals. I researched the symptoms and prognosis of BPH thoroughly so that I was able to make informed decisions about my treatment after consultation with my urologist.
Medication for BPH has its place, but it was never going to be for me, my personal decision.
lester07305 paul185
Posted
Paul,
Had a problem with Tamsulosin myself. Told the doc and he recommended Alfulosin. Much improved and worked quite well. On it for at least 4 years. 71 here. Also on Dutasteride. Seems to be helping quite a bit. Some side effects but livable. Don't read the small print on the bottle. We would all be on no drugs at all if we did that. Worst case scenario which effects a very, very few. And if you are one you don't like you can drop it. 2 times up a night is not excessive for folks our age. The start, stop, dribbling is annoying but can be dealt with. A little extra time. Start, wait 15 seconds and go for a second round. Dribbling, just spend a little more time at the end and then accept the results, not bad. Go from bitters to a cocktail. Less volume and less trips to the head. Urologists aren't the most expressive and warm physicians (direct from my GP doc, I had to laugh at that one and he did too) on the planet. Funny generalization but that is what he said. I have found it to be totally accurate. So do extensive, extensive homework and research on the Urolift. Had one and it was a bust. Caused some minor permanent issues but nothing too serious. Good luck sir.
D.
gene97713 lester07305
Posted
Not a great advice Lester. Actually, a bad one.Finesteride and especially dutasteride kill libido in most ageing men and in many causes impotence. Well documented. In most results are permanent even after terminating the drug. Research the publications yourself. It took me 6 months to return to normal after two weeks on dutasteride.
Putting up with PVR,dribbling is even worse than impotence. It either leads to an enlarged bladder that is not able to contract and requires Self-cath for life + ensuing infection of LUT or contraction of the bladder and super-sensitivity due to the thickening of the bladder walls. As a result, the number of night and day trips to the loo will multiply to unbearable. The earlier you do something to decrease the obstruction created by the BPH the better for your bladder, kidneys and quality of life. Sexual life as well... Period.
Good luck to everybody. Everybody is different but not when it comes to obstruction of the bladder neck. Pretty much the same for all men suffering from long time BPH. It won't dissolve itself... Don't bet on it. It will grow and grow.
owen35669 gene97713
Posted
Up for a pee break right now at 4 a.m. I might disagree -- for, as you say, we are all different.
I am age 73. My first BPH symptoms developed around age 40. I visit the uro once per year. I have the urine retention test each visit. Thus far, I continue to void 90% + and have been prescribed the lone therapy of alfuzosin and 5mg generic Cialis once daily. I assume from this that my condition has not worsened and that my bladder is not any worse for wear.
Maybe - or maybe not? But you have to listen to your body. I have avoided more invasive procedures (for some of the sadder stories I have read here and elsewhere) preferring to put up with what are now moderately frequent toilet visits. Night time frequency was recently reduced to 2x (from 3 or 4 times) by addition of the daily cialis with the alfuzosin. I live with the pee frequency figuring life could be a lot worse with prostate cancer, etc. Though I do miss the now ancient experience of sleeping through the night.
But it's all obviously one's very personal decision.
owen35669
Posted
Clarifying: I have been on alfuzosin for perhaps ten years. Cialis was a recent addition.
gene97713 owen35669
Posted
Owen,
Thank you for sharing your wisdom with us. Let me doubt that you had a BPH at age 40, by all means the peak of man's sexual health. Bu your own admission on this forum a year ago, you Doc after performing routine DRE told you that your prostate is not enlarged. Am I right? You never had an MRI or TRUS , or CT scan. Most likely you have "irritated bladder"syndrome, maybe some urodynamics problems and possibly a "normal" ageing man BPH with relatively small prostate, slow growth, and maybe slightly enlarged median lobe, but not even close to obstruction of the bladder neck and retention. I don't think that you situation qualifies you for giving advice to men with severe BPH symptoms and almost inevitable retention at the age when surgery becomes questionable or impossible.
You are lucky (like other 30% of men your age, 100%-age) who have only a mild BPH and relatively slow DHDT metabolism and growth rate. Us, the less lucky majority of 70+ men (I'm 72) should be more decisive in the world, where people often live in their 90th. My Dad passed away in November 2019 at age 102 from BPH complications. He didn't go beyond alfuzosin and avodart and suffered dearly from BPH, while not having much of other problems. He suffered from bPH since his mid-50s and always rejected an idea of any invasive surgery. For me he was a visual example of how wrong is "wait and do nothing" approach.
Best of luck.
owen35669 gene97713
Posted
Hi Gene -- 2nd time in two years or so for me being corrected in these dialogs by you (or perhaps someone else.) Let me assure that there is no intention at this end to "give advice" to anyone. I thought we were sharing experiences and suggesting possible pathways/questions forward for our respective clinicians. Multiple uros over the years have had me medicated with, oddly, BPH the official assessment. Yes, puzzling that my prostate was not said to be "enlarged" on the outside so much as growing with inward pressure on the inside --pressure on the pipeline, so to speak. Hence the less drastic drug therapy that has been my experience through my 40s to now age 73. Perhaps your contrasting diagnosis is the correct one, but you may appreciate lthat -- short of the often burdening invasive options often chronicled here -- we are commonly slave to our own doc's best guess. May the record stand corrected if it can be determined that yours is indeed the more accurate perspective.
paul185
Posted
Thanks Guys for your feedback its really useful. I will have the PSA & Cystoscopy done & then re-evaluate.
I know knowing the actual size of my Prostate is important but getting a 3T MRI scan on the NHS I guess will be difficult, but I will ask.
rdemyan paul185
Posted
Paul: They should be willing to schedule you for a transrectal ultrasound (TRUS). It is the most accurate ultrasound method available for the prostate, and it is fairly accurate (almost as accurate as 3T MRI). For purposes of sizing the prostate, TRUS is accurate enough. 3T MRI has the advantages of also being able to evaluate the prostate for prostate cancer (using PIRADS) and provides nice pictures of what the prostate actually looks like. But if your PSA test and DRE exams are normal and you have no other reason to suspect cancer, TRUS should work well for providing an accurate prostate size.
Now, I don't know about how well TRUS works for evaluating a possible median lobe. 3T MRI will show the median lobe in nice detail. I believe that uros can diagnose a median lobe via cystoscopy, but am not sure. Perhaps some other posters will chime in on this.
One other thing about TRUS. Based on personal experience, the upper limit for measuring the prostate size using TRUS is around 120 grams or so. I was at that upper limit and my TRUS pictures required some guessing by the uro as to where the end points for measurement were. Just keep that in mind if TRUS comes back with a number of around 120 gms or so. But either way, you will know that it is at least that large and that you probably need to do something. If you get a TRUS, ask the uro what the measurement size limit is. Size may be an issue with certain prostate procedures that have size limits (although those limits are being expanded upon with new studies).
Motto paul185
Posted
soso everyone take this with a grain of salt but I just talked to two medical students who went through the urology rotation. they said that some of those urologists are making a lot of money redoing and taking out the clips from the euro lifts. that they don't really work. And that the doctors get paid by the clip so they do too many of them. I'm glad I didn't get one now.
I I ended up having a resume and turp of the bladder neck.
paul185
Posted
Just an update.
Today I paid to have a second opinion & saw Mr Oliver Kayes at Spire in Roundhay Leeds. He specializes in Rezum privately but also works for the NHS at St James Leeds.
He is really easy to talk to & was upset at the Treatment I had received with the first Consultant I saw.
To cut a long story short I am booked in with him on the 19th February for my Cystoscopy & TRUS Ultrasound at St James.
He will then sit down with me to discuss which procedure is best for me.
If we decide on a Urolift I want him to do it as he has lots of procedures behind him. If its a Rezum procedure that will be around 4K private as this is not available at St James.
The only problem is he has handed his notice in to the NHS & is working his notice !!
He is so fed-up with the Managers who run the NHS he is going completely private.
This will be a major loss to Leeds Urology as I believe along with Mr Prescott they were running a very successful one stop Clinic.