Too Young for Op? - Severe Patellofemoral Arthritis
Posted , 10 users are following.
Hello everyone,
My MRI and X-ray results said I have severe patellofemoral arthritis and mild medial joint line arthritis in my right knee, as well as a lose kneecap.
The specialist told me I'd need a full knee replacement but as I was 47 years old it would be best delay it. So I had a cortisone injection that didn't work. I've just been back to the specialist and he is now saying I'm too young to have a partial knee op (yes it changed to a partial), so he's not prepared to do it yet. He's decided to do an arthroscopy to look inside and see if he can delay things.
I've got pain walking, bending, kneeling etc etc. I'm really upset that my age has gone against me when I'm approaching 50 years old. Has anyone had to wait for a knee replacement Because they were 'too young'? I've looked into severe patellofemoral arthritis and it sounds like it needs sorting out asap, does anyone agree?
I feel really let down because of my age
Thank you for reading
0 likes, 32 replies
johnny17592 Heids
Posted
Hi Heids
I have suffered all the same problems as you in my left knee
From a very young age fast forward about 48 years i fanily had a TKR a year ago i syffered realy bad pain from my late forties and like yourself eas told by different doctors it's so frustrating and i feel your pain and annoyance there seems to be this stigma that you have to be in you sixties before being considered you need to keep plugging away at your GP and stress to them how it is affecting your life
I really hope you get some better news soon take care
Johnny.
Heids
Posted
Hi everyone,
Thank you all for your replies. It's been so nice to receive such lovely responses and to read about other people's experiences.
I wouldn't say I'm overweight, like everyone we all would like that lose a little, but I'm happy with my weight. When I was in my early teens I was unhappy with my weight mainly my legs, but I've lost a lot since then. I weigh under 9 stone (probably 8 1/2 stone), so it's not too bad.
What I think is annoying is if I had seen the specialist with exactly the same problem and same results but I was 50 or over then my name would be down on the waiting list and for the sake of 3 years, why couldn't he just say it's fine to do it now rather than try delay it. I don't like the idea of waiting 3 years or more with pain when I'm ready in my mind for the operation now. It's probably cutting costs for them.
Thank you Johnny, it's nice to know someone else has had the same experience, hope you're knee is really good.
jenny80029 Heids
Posted
Heids jenny80029
Posted
Thank you so much, I appreciate all your advice
johnny17592 Heids
Posted
Thanks for your reply yes the knee is great you keep plugging away at the doctors lay it on more than you have to hopefully you will get a result i really hope you do keep us informed stay strong
and good luck
Johnny.
pam02060 Heids
Posted
Beloveed Heids
Posted
I had bilateral replacements in my knees in my 50's. If both had not been done I would not have had the surgery because of the issues I've seen others experience. Them I'm very allergic to a Lot of meds. Age has NOTHING to do with pain!!! Since the surgery and pt my life has improved tremendously. I'm working every day and very blessed. By the Grace of God my knees do not bother me. I'm very thankful for Dr. Murray listening and for him doing time surgery.
For those who are experiencing soreness, if you bathe your knees with Witch hazel it helps pull the soreness out and if you can use shea butter mixed with coconut oil after patting the knee dry, rubbing it in thoroughly for 5 minutes or more will help. You can mix half cup Shea butter/ 3 Tablespoons coconut oil I use a clean chop stick to blend this together until very smooth. Keep in a cool place and cover. If it spills it is a greasy mess to clean up. I use a rubber maid container to mix and keep mine in.
Take just a small amount, rub your hands together and then massage your knee with it. It works. You may not see immediate results but, keep using it will really help over time. It also helps the skin of your knee. When you relax your knee you should be able to move your knee cap and that also helps at least my pt.recommended that I should be also doing this every day to help with the healing. At first it did not feel good but, I'm so glad I did. Don't have any knee cap issues and it does just fine. I'm praying that you will improve quickly. Blessings, have to go to work.
Rach1977 Heids
Posted
I’m 39 and I’m 40 next month. I had a couple sporting injuries start of the year and I needed a MRI as the orthopaedic surgeon through I tore my meniscus. What my scan highlighted what a lot of chronic stuff that was already there. I have absolutely no Cartlidge on one side of my knee, patellafemoral tracking and severe arthritis. I’m on a huge lifestyle change and have been for 18 months and have lost about 50 kilos with more to go. It’s ironic I had no probs with my knee untill a recent injury. The long and short of it is I’m doing specific s physio in regarding patella femoral work to try and strengthen the quads to pull my knee cap over a bit to take the pressure off. Essentially he said that will help but won’t fix the problem as I have bone on bone and I can’t manufacture cartilage and I am inline for a partial knee replacement. I get a lot of knee cap pain and lateral knee pain. Sometimes it’s better than others. Sometimes it feels like giving away. ATM I can still function and do things. I ran a half marathon last Sunday I prob shouldn’t of done lol but it was a bucket list thing of how far I’ve come. So for me atm my treatment is contained weight loss, physio and cortisone. I’ve had one shot that lasted 2 months. The surgeon said they don’t treat the scan they treat the patient. So he said when I can’t handle the pain anymore that’s when I need to get it done. He said some might do a arthroscopy but he said he doesn’t see the point esp on my case. I’m hoping this surgery is a few years off yet but I’ll just see how things pan out. I guess there is the question of the arthritis getting worse or spreading as I get older and other question is is it better to get it earlier rather than later to have a better chance at recovery. I don’t know
CHICO_MARX Rach1977
Posted
Bone on bone and running a half marathon? Really? Probably not a good thing to do...ever again...
That said... If you have a bone-on-bone situation plus a growing arthritic condition, yes, you will need a PKR or maybe the full-boat TKR. However, you may be able to put it off for a bit with SynVisc. I've had both knees, two scopes each for meniscus and femoral condyle which left me bone-on-bone...plus the arthritis...back in my 50's. After 45+years of hockey, you have to pay the price. I spent five years on SynVisc (3 shots in 15 days) and the set of shots lasted almost a year each time. Then I moved to a much warmer climate and I needed nothing for another six years.
Pain started increasing in January '16 and had the TKR that March. Doc said more SynVisc would only buy me a couple of months and that, at 68, I was out of options. Cortisone has no effect on me.
Your situation is complicated by your patella problem. I would recommend that you see your orthopedic surgeon to work out a game plan on how to get you out of pain in the shortest amount of time. Doing ANYTHING that pounds your knee (like jogging and running) will just make it worse. PS: Those activities after a knee replacement are banned...forever...unless you want a 25-year knee to last only three.
Talk to your doc about the SynVisc. It doesn't work for everyone but it worked great for me and allowed me to put off the TKR for years. Forty is young for a knee replacement but we've had people on here who have had it done that young...depends if there is no other choice in regard to your quality of life.
Heids
Posted
Hello everyone,
Just thought I'd update you all.
I had the arthroscopy last Wednesday the 1st November. Torn meniscus was taken out and I was given a cortisone injection.
Results yesterday were, I've no cartilage at all down left side of the knee along with the patellofemoral arthritis. So it's full arthritis in the knee. He thinks the cartilage has been worn away because of the loose knee cap.
Surgeon has now decided that it's bad news and I do need a TKR.
I've to see him in 3 months time to see if the arthroscopy and cortisone injection have helped and then see about the total knee replacement if I'm still in pain.
So looks like I've finally got an answer and I'll be deciding in February next year.
🙂
davidjk22 Heids
Posted
If you need a knee replacement , go for it . You aren't too young , my knees are almost 20 and 18 years old now , and are showing no sign of wear . I have been pain free for all those years . The recovery can be hard but it is worth the effort . Plenty of physio and exercise but don't over do it , use your pain medication to control pain , don't wait for the pain to get a grip . Come here for any advice or information , there many here who are willing to help . Another tip , if you have the op go for a spinal anaesthetic , much better than a general .
CHICO_MARX Heids
Posted
I had four scopes over a number of years in my 50's...left me in the same condition. Used Synvisc (not cortisone) for 5-6 years to lube up the knee and put off the TKR. Then I moved from cold (New Jersey) to hot (Texas). Was here six years with NO injections before it started hurting again. At that point, the new doc said that Synvisc would only buy me a few months instead of the usual year...so it was time for the TKR...at age 68. The Synvisc and climate change put off my TKR for FIFTEEN YEARS!!!!
Moral of the story: Check ALL your options before doing a TKR...it's the last stop at the end of the line. The decision should not be taken lightly as it's a painful operation (especially the first 30-60 days post-op) with a one-year recovery. You will NOT return to work for 4-6 months depending on your recovery and job activities. You have to be prepared for it but the docs never tell anyone anything. People here on the Forum will tell you exactly what you're facing.
So... See if there are ways to delay this if possible. Then again, you may not want to because you're late 60's or 70's or maybe just want to get it over with. Just know that post-TKR, there are a lot of activity restrictions surrounding the pounding or twisting of the knee. That might be a consideration for you.
Talk all this over with your surgeon. Come up with a plan that: #1 gets you out of pain, and #2 fits your age, lifestyle and goals. There may be no other option than a TKR right now but it's good to check out your options.
jenny80029 Heids
Posted
Wow, well you know how things are!
I guess it is wait and see how it goes for you!
Best wishes for now! 😊
johnny17592 Heids
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I was in the same position left knee totally goosed for years had a couple of clean ups over the years until eventually got a TKR at 58 i think they fear it wont last as long if your younger for what ever reason idont k ow i hope you bget it done soon.
Johnny.
Heids johnny17592
Posted
Hi Johnny
It's great to hear from you.
I think the surgeon has finally realised (after doing the arthroscopy), that my knee isn't good and definitely not a knee that a 47 year old should have.
I've got 3 months to wait, hope the right decision is made.
Hope you're well.
Heidi
johnny17592 Heids
Posted
Hi Heids
I hope all goes well for you to
I'm sure the right decision will be made keep us up to speed good luck.
And thanks for asking i am fine
knee is good.