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Total Ankle replacement

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Lulu_1949
Lulu_1949

hi, just wanted to hear from anyone who is still in major pain after two years. My son had the pins, the fusions, steroid injections and finally a total ankle replacement after breaking his tibia and fibia . this does not seem to be working at all. He is in constant pain and now because he is putting so much pressure on his other foot that is now hurting. He is 42 years old and i am wondering whether he should go for a second opinion. He lives in Nottinghamshire. There was a suggestion of doing a trial on fitting something to his spine that fed up to the brain to make the brain think his ankle does not hurt. This is now not going to happen because he has been told he has mechanical pain not constant pain. i.e. does not hurt at rest , just when pressure is put on it.

Any advice would be really helpful, thank you , regards Ursula

0 likes, 9 replies

9 Replies

  • lee1507
    lee1507 Lulu_1949

    Posted

    oh gosh sounds like he is going through the mill with all this i am also going through the same screws in for fusion and some bone surgery and having TAR

    IN SEPTEMBER and after reading your post

    am worried

    i did go for a private consultation with a ankle specialist ANDREW GOLDBERG

    just outside london

    who went through all scans xrays etc

    it cost i think around £250

    he did put me on the right path

    i had my first opperation in wrightington hospital preston

    is there a prblem with the TAR ?

    regards LEE

    • Lulu_1949
      Lulu_1949 lee1507

      Posted

      we thought having a TAR would be the end of the problems.......No....... it was 2003 when he fell off the third rung of a ladder and he has been in and out of hospital since. counted 32 visits for one thing or another. it is now affecting his right foot as he is putting so much weight on it. IT IS A VERY BIG DECISION TO HAVE TAR.... so when the horrendous pain is still there it seems so unfair. we are looking at getting a second opinion to see a way forward. the op was in SHEFFIELD , looking at perhaps going to London, am researching surgeons as we speak. thanks for your message. i do wish you well as you move forward. Regards Ursula

    • RichardKen
      RichardKen Lulu_1949

      Posted

      Well after a TAR in 2012 which was not done really right and started to go wrong at my four year check up I realized that if I did not find the right solution then it was very likely that I would. be looking at an amputation in the quite near future. I paid for a private consultation with Andrew Goldberg and. nine months later he removed my original prosthesis and started again. The surgery took six hours which involved firstly the removal then repairing the bone damage followed by of course putting in the special prosthesis.

      I had very little pain after the surgery and required minimal pain relief in the following days. My recovery has been quite amazing and I'm able to follow a very active life whereas the future looked pretty bleak.

      At the moment I'm enjoying a holiday in the Swiss Alps that involves quite a lot of rough track walking in the mountains. I do not need a stick to assist me and doubt very much if anyone can detect that I've had ankle surgery. My age is 77 BTW.

      Cheers, Richard

    • lee1507
      lee1507 RichardKen

      Posted

      good to hear Richard

      like i said i am going with a surgeon

      mr Goldberg has recommend and having the opperation

      in wrightington hospital near preston

      where did you have your first TAR

      and how long was you in a cast /boot for

      regards Lee 56 years and needs to be active again

    • Lulu_1949
      Lulu_1949 RichardKen

      Posted

      wow Richard, that sounds amazing. My son is 42 and think probably he needs the same. is Andrew Goldberg in London? I note you said you paid for a private consultation., did you have the operation private as well, i know a consultation is usually £300 or thereabouts but don't know how much the actual operation would cost.

      I really think they need to start again, the pain he is in is so bad and he had it done 2 years ago. thanks Ursula

    • lee1507
      lee1507 Lulu_1949

      Posted

      i know that he does work for the NHS AS well as private i would book a consoltation with his secretary and take it from there maybe not mention paying for private

      he is really down to earth guy

      and will help you

      good luck

    • Lulu_1949
      Lulu_1949 lee1507

      Posted

      thanks so much will let you know how we get on , great that he is down to earth need someone that is understanding. thanks Ursula

  • RichardKen
    RichardKen Lulu_1949

    Posted

    I saw AG privately initially and he then transfered me to his NHS list but it meant a further delay. I have no idea what the cost would b. to have the surgery done privately. Dread to think what. mine would have cost! Cheers, Richard

  • Lulu_1949
    Lulu_1949

    Posted

    dear RichardKEN,

    thanks for that, think we will go down that route. been reading up on Andrew Goldberg and all sounds good , thanks so much for your advice x

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