Total Elbow Replacement - I have had this done. Anyone else?

Posted , 57 users are following.

In June 2014 I had my left elbow replaced.  At the present time this is 9 weeks ago. I have had good progress but concerned about doing anything that will make it come loose.

Has anyone else had the same operation and how has it been and has there been any problem with the joint coming loose? 

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  • Posted

    I decided to cancel an operation offered to replace my left elbow. I have had rheumatoid arthritus for 15 years resulting in both my elbows being severly damaged. I'm now on Abatacept and the RH seems to be under control. I thought readers might be interested in a letter I sent to my orthopaedic surgeon to which he replied that he though I had made the correct decision. [Both my knees were replaced in 2005 and I have never had a problem with them].

    Dear Prof. Rangan, 

    I have recently read about the methodology used in elbow replacement surgery and also read about the experiences of patients and their outcomes following elbow replacement. 

    My own situation is that notwithstanding the limited articulation of my elbows and the pain, I am able to drive a car, hitch up a caravan, carry bags of shopping or cases and undertake a variety of DIY and gardening jobs. 

    It seems that if I have the procedure the range of activities I currently undertake could be significantly reduced to protect the integrity of the artificial joint. There is also the risk of something going wrong. 

    I have also to consider the burden on my wife who already takes on an unfair share of the household work and has to help me in a variety of ways.

    I have concluded the the benefits of having the surgery are significantly outweighed by risks and potential reduction in activity level. I am prepared to put up with the pain as I have been for several years.I therefore do not wish to proceed with the operation. I apologise for any inconvenience to you and your staff. 

    Yours sincerely, Nigel Wilson

    Thanks to all who contribute to this forum and helped me arrive at my decision.

     

    • Posted

      Hai nigel,I saw your post and I am wondering if u could just share something more about ur elbows. Like do you have full range of motion or any stiffness kind of thing. Because I am having similar problem with my right elbow due to RA since 8 years. I am 29 now and as per the doctors, the only option left is replacement because by elbow is fixed at right angle I cannot extend it completely neither can I flex. Its unacceptable for me to think of a life with restricted activities. I am researching on other methods to regain my joint health. Hoping for a reply. Regards
    • Posted

      Hi Chythu I am delighted with my replacement elbow. I didn't really have a choice to have it though as my arm was in a very bad way. I can't use it for lifting heavy objects and whilst I still swim I don't use it for any weight bearing exercise. I have all the movement to match my normal arm. I do find ways to carry stuff by leaning laptops etc in to my body or under my arm. If you have severe restrictions and if you have pain... I have had no pain whatsoever... then I would consider it if I was you. 

    • Posted

      I had an elbow replacement in January 2017. My arm is straight, I can curl my hair, and move my arm in any direction. I do have a 5lb limit. So I use a smaller purse. It is a pain sometimes especially when shopping but I am pain free, which is everything.
    • Posted

      Hi Chythu,

      I can bend both my elbows to touch the top of my head. I cannot straighten them fully. If I rest my arms on the desk whilst at t he laptop I get a lot of pain in the elbows when I lift them off the desk again. I can still lift bags of shopping and push a hand drill. I have difficulty in putting on a jacket or overcoat and need help.

      I have hardly anything between the elbow bone joints. I have no pain at rest. Overall concluded that the removal of the discomfort which the operation would bring was insufficient benefit if it limited my ability to do the things I can do .

      Overall I came to the conclusion that the operation could limit my ability to do somethings which was more important than removal of the pain.  It's a very personal choice, your circumstance may be very different.

    • Posted

      deb66157, hello, my elbow is gone, and I am awaiting the humerus bone to heal from previous screw holes to receive my new elbow. I read that you have a weight limit but are pain free, what is your weight limit. I'm told everyone has a different limit.

    • Posted

      Jeannie,

       I had a total elbow last October, 2016. I am pain free and pretty much have full range of motion. I still have instability in the elbow and have to wear braces because there was so much damage in my joint and erosion, there was nothing to attach the outside ligaments to, so I have a "flop" when I am moving my arm side to side. My weight limit initially was 2 pounds, and now it has been raised to 5 pounds since I have muscles in my arm again to help support the elbow. ALthough I wish it was  completely normal, I am glad it is pain free and more functional than it was, and the surgery had to be done due to constant dislocations and occasional paralysis of my arm from nerve impingements. I also had a hip replacement, which also had to be done so I could walk instead of needing a wheelchair and a nursing home (I live alone/ no partners or family to help). Both surgeries were only difficult in the first  few months and then I started to get better and return normal function and movement to my life. It is always worth it to do these things if you are at the places I was at where my pain and problems were greater than the risk of surgery. Good luck and I hope you will get better too after the surgery!

    • Posted

      My arm was the same as your, pre op and there was nothing left to do. I could not do basic things and it was my dominant hand/arm that was affected. It was worth it for me to do this as I gained back normal functions and lost all pain. Read my other post below for more info. Good luck!
    • Posted

      Hi not sure who to reply to here but hopefully all interested will find what they need Jeanne55 hope you see this too

      I read with interest all the comments in this forum, thank you all. 

      To sum up a thus far,  a very successful right elbow replacement surgery September 10 2017.

      History: elbow dislocation age 6 badly set, lived with it w limited motion and self imposed weight restrictions but pain and extremely limited mobility issues from jan 2017 changed things. 

      I was fortunate to get an excellent referral to Tom Lawrence and Chet Modi,

      a specialist Orthopeadic team of surgeons (based at Coventry University Hospital UK) surgery done 

      and replacement w a Discovery elbow joint has been very successful for me. 

      Tips Pre Op

      Found a fantastic traditional Chinese medicine acupuncture/cupping therapist before surgery and booked successive appointments starting 10 days after and then weekly for 2 months. I believe this has great improved the healing time, targeting inflammation and increasing blood flow to arm. 

      Buy a V shaped pillow, best for post surgery arm elevation elbow above heart to minimise pain swelling and provide a comfortable resting and sleeping position

      Buy a plastic sleeve for dry showering

      Organise pain meds’ in advance, there is no need for pain if you medicate properly 

      Ora morph liquid is fantastic stuff

      Save the small oral syringe to take home for accurate dosing and easy reducing of moraphine ( you have to special request this to take home) ask for max pain meds while in hospital!

      Explore meloxicam, a stronger anti inflammatory (pain is caused by inflammation, so any reduction will help) paracetamol was a waste of time for me. 

      Gabapentin to reduce nerve pain was also effective right after surgery and for the 4 weeks following 

      * Do your medication homework in advance, ask and you shall receive.

      *Take earplugs or ear buds to distract from noise and an eye mask!

      *Take chocolates or treats for your overworked nurses. Be a good patient. 

      *Leave the hospital w adequate meds and prescriptions. Get them filled from the hospital pharmacy as some prescriptions are only available from prescribing hospital!

      *Codeine and surgery can be constipating, think ahead ...

      AFTER SURGERY I left hospital w half cast  and a sling...removed 1 week later,no stitches and then continued witha sling. No physio recommended... they can be too rough.

      Arm is just gradually moving and motion w out pain being regained. 

      Wearing sling when out walking mainly to self limit movements and protect against outstretching in a fall.

      This is life changing surgery.

      Learn to use you other arm for lifting and carrying, door opening etc 

       be kind to your elbow and make it last. To wash my own hair, put on make up, cook, and drive and do so many things that i simply could not do without extreme pain or at all, is a gift, a technological miracle, i do not need to lift weights and bags of groceries to appreciate this wondrous improvement to my lifestyle.

      if you are in pain, do it, 

      I am reading all the discussions on weight limitations and for me it was a small compromise.

      Best of luck to all and thank you all for sharing, your advice and tips were so helpful to me.

  • Posted

    Hai jaw, I know u posted this years ago. How r u now? Hope you feel much better now and can do ur activities. I am curious to know much more because I have RA and my right elbow got fixed at 90 degree angle. Doctors say the only option I am left with is replacement surgery. I am really concerned, just that would it be possible for me to have an active life ahead. Hoping for a reply.
  • Posted

    Hi I had operation in my left hand elbow before 1 month. To plate in my elbow. Dr said 100 %movement not possible. I can't comb my hair.. Do excersize regular.. What should I do

    • Posted

      Hi - Plating your elbow is something different to Replacement of elbow. Maybe you should see a different doctor and see if a replacement is suitable. There are still restrictions but I swim, I drive, comb my hair etc . I do think it is important to get a very good surgeon though.    
    • Posted

      Hi,

      Its great to hear your success story. I was 2 yrs old when i had a bad fall on my left elbow and due to the improper surgery later it developed into the rheumatoid arthritis. Since then I lost the range of motion, max I can stretch my elbow to 90 degree, also the muscles have become weak and doctors say only treatment is elbow replacement but the only fear I have is lifting restrictions because I'm 25 years old now. Although I can do all my day to day work, the only thing I want is full range of motion. Now I'm waiting for some technology advancement in TER.

      How old was you when you had your elbow replacement?

    • Posted

      Hi

      I was 55 when I had mine done. I too broke my arm when I was young and the surgery was done badly. It broke again when I was 55. I am not sure if a new elbow at 25 is a good thing as they suggest it will last around 10 years and it may only be possible to have a total from 3. However there are advances all the time so this may well change.  Maybe you need an opinion from more than one surgeon to get advice.  If you can do everything you want to now then potentially you might want to wait. 

      Best regards

      Jeanette 

  • Posted

    Hi, I am about to have the elbow replacement surgery here in a couple weeks. I wanted to ask you how you are faring with your new elbow? Have you had any issues? I am concerned about having this in my arm. I fell12/21/2016 and crushed my elbow and broke my shoulder. The elbow injury had issues with the repairs. Pins and plates had to be removed in March 2017 due to infection. We have been waiting for the holes in my bone to heal closed, this way my bone cement will not squeeze out. I have had this nearly a year, and am actually looking forward to the replacement. Please, if Ok could get some real people feedback, I would truly appreciate it

    • Posted

      Hi - My operation was done in June 2014 so I am quite a way down the line. It is great compared to what I was left with. Sometimes I wish I could lift heavier objects but if it is something a little bit heavy then I hold it into myself or under my arm or in a bag...or something. Very happy with it overall. No pain really worth mentioning, 

         

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