I had a rTSA in December, 2014. Everything you say about your experience seems to very clearly indicate that there are major problems that need a GREAT doctor to repair. The doctor who does the surgery is more important than anything else! S/he MUST be very experienced, and have a suerlative percent of terrific outcomes. The issues you are dealing with sound as if they are not going to get better without surgical intervention. But NOT with the doctor or doctors you have already gone to.
I don't know anything about English doctors or hospitals, being from the U.S. But there isn't anything more important than your health. And it's hard to be healthy when a major joint is not. If at all possible, going to America would be a really good idea. The Hospital for Special Surgery, in New York City has been #1 in orthopedics for at least 20 years. Many of the doctors their have done many rTSA, and they know what they are doing when it comes to correcting the mistakes of others, too. You can look online at the numerous research papers and presentations these doctors have made. And read about the doctors various accomplishments. Even if you can't or won't to go America for help, you can educate yourself about what youo need to know, in order to know if any particular doctor is making sense.
My shoulder was in the rTSA than anyone in the U.S. The ball of my big arm bone (the head of the humeral bone) had collapsed, so that it had gone from a ball to a "low slung mushroom", as the doctor who had taken the x-ray said. All the bone shards and debris from the collapse was still inside my shoulder for months before my surgery. On top of all that, all the muscles of my rotator cuff were retracted, and torn, so not one of them still worked. Somehow I had managed to keep a full range of motion and considerable strength throughout the 20 or so years since the first shoulder injury I had. But my shoulder was a mess.
I ended up with that shoulder being the best joint in my body. It doesn't hurt, it is really strong, and I have a better range of motion than most people who have never had shoulder trouble. My doctor made ALL the difference. And all the support personnel at the hospital were terrific.
I live near Chicago, Illinois. And I went to New York City for my surgery because I wanted the very best doctor I could find. Chicago has an abundance of doctors, and many who do rTSA. But I wanted the one who might have taught them to do the surgery. I wanted the one who created the prostheses these other doctors were using. I wanted the best. So I travelled to get the best. It was a trip totally worth it. 1500 miles is a walk in the park compared to travelling to NYC from England. I know that. But how many years of your one life are you willing to suffer through, Lulublu? You don't have to come to America. But you really do need to find better doctors. I know all too well how incredibly painful a shoulder can be. And how dysfunctional it can be. And the major impact it has on everything else in your life. And I know how amazing it can be to have it fixed right! Waiting won't help. Educate yourself, and shop diligently for an orthopedist who truly gets it.
If you can't drop over the pond to America, then mabe you could send your imaging and a letter to a doctor here. And then you could talk to him or her on the phone. Or email. Maybe someone there could make recommendations for a good doctor where you are. They have international connections. I'm sure they could at the very least give you a good idea about your condition now. Don't wait, Lulublu. Your shoulder will not heal itself. And to get any of the pain to diminish, you will lose function, range of motion, and strength. No matter what's wrong now, the right doctor can make it better!
I wish you good fortune, Lulublu31. 2
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