Total Thyroidectomy 10 years now problems

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I have Graves disease.

Had total throidectomy 10 years ago. Been on 150mg thyroxine daily since then.

9 months ago blood tests meant meds reduced gradually to now 100 mg.

Feel dreadful told I am hyper, but all symptoms of hypo, so cold tired and pain all over body

recent blood test TSH 0.2 and T4 18.6. Any advice appreciated. Thank you

0 likes, 3 replies

3 Replies

  • Posted

    Thats interesting. My story is similar to yours although i didn't need to remain on thyroxine for the last six years . I'm having some investigations regarding thyroid nodules. Have they done an ultrasound on you ?

    • Posted

      Unfortunately my g.p doesn't see the need to refer me back to endocronologist.

      why did you have no meds for 6 years?

    • Posted

      GPS never seem interested when it comes to thyroid problems. They only did a sub total thyroidectomy and after a few years i came off of thyroxine as I kept becoming hyperthyroid again. Just because the blood tests are normal doesnt mean that we havent got problems.

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