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Toxilizumab

Posted , 3 users are following.

guinivere
guinivere

Hi I've just started on Toxilizumab which is fairly new, as the Rituximab I was on lowered my Immunoglobulin levels two low. I've opted to do the weekly injections at home rather than the monthly infusion at Rheumatology dept. But I'm finding the injections incredibly painful. I do weekly Methotrexate injections at home, with no problems at all. Is anyone else on Toxilizumab and have the same problems. I might have to swap to the infusion, but I'm feeling a bit of a wimp ha ha. I've had loads of ops, needles, injections etc but nothing felt as bad as this one

Is it just me

Thanks for reading

0 likes, 8 replies

8 Replies

  • vanessa74034
    vanessa74034 guinivere

    Posted

    Hi, I am on weekly injections, was on infusions but apparently due to cost was transferred to self home injection. I was also on Methotrexate injections (in my leg) which I found painful and had a reaction to so reverted back to tablets. Where do you inject the tox? Is it your stomach? It is literally hit and miss with me 😂. I swab a good 2-3 inches below my belly button then gently test along that stretch with point of needle to find less painful part. It is usually closer to the belly button. I hate injecting myself, preferred infusions but the longer I was having them the harder it was to find a vein. Originally I had a lovely vein (I always joked I was going to get an X tattoo to mark the spot 😂) one week it took 10 attempts to get the canular in (which is why is was probably expensive 😥). If you are finding it to painful have a chat with rheumatology and see if they can suggest something

    • guinivere
      guinivere vanessa74034

      Posted

      I inject in the leg, like my Methotrexate but they are a piece of cake Actually my hubby does all my injections, as I find it difficult as my right hand is my worst one Next time I shall try the stomach. I'm dreading the next injection I've had lots of infusions, injections and don't know why I should find this one so painful.

    • vanessa74034
      vanessa74034 guinivere

      Posted

      Yes try the stomach just below the belly button. Let me know how you get on

    • guinivere
      guinivere vanessa74034

      Posted

      I cannot inject there as its full of scar tissue from different ops and a couple of scars run through my belly button and upwards. They said not to inject at least two inches from any scar

  • Light
    Light guinivere

    Posted

    Are you using the fine 'diabetic' needles? You do sound very experienced in injections, but i just wondered. Ever since I switched from regular to the diabetic sort, all injecting has been a cinch.

    But I'm not on Toxilizumab.

    Apart from the miseries of self-injecting, how is the new biologic for you?

    • guinivere
      guinivere Light

      Posted

      I never really noticed a lot of difference when on Rituximab.. And only been on this one two weeks so not kicked in yet. Hoping this help as probably my last one as I've had cancer, and still have CLL/SLL (blood and Lymph ones), so I'm a bit limited Also this Toxilizumab apparently heightens the risk of more. So if don't notice an improvement in few weeks, I will ask to come off it. And when I looked at the needle, compared to the others it looked huge ha ha. 😏😏

  • Light
    Light guinivere

    Posted

    That 'huge' must be the problem.

    I inject in the fatty area of the buttock just above the pelvic joint. That might be easier for you than the leg, don't know.

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