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Travel insurance

Posted , 5 users are following.

philx
philx

Hi all

Anyone who has been diagnosed and receiving treatment,

Have you purchased travel insurance ???,how did insurance companies

Treat our condition???. I have a yearly policy but have yet to add this

To the policy,I am hoping to go to Malta in November depending on

How my treatment goes????my travel insurance went right up

When I reached 65 so God knows how this will affect it,as it could affect

So many organs,even if all tests are OK,insurance companies will look

At what it could do???

2 more days till I go and see Dracula again for another pint extraction.

Cheers philx

2 likes, 9 replies

9 Replies

  • andy75543
    andy75543 philx

    Posted

    I was diagnosed with HH in February this year.  I have been on bi-weekly venesections since mid-March.  I'm 68 and have just renewed our annual travel insurance with LV=.  The questions they asked about my HH did not apply to me.  My premium was increased by £200.  Note we have cover for travel to the USA which always make insurance much more expensive.

    • philx
      philx andy75543

      Posted

      Hi Andy

      Thanks for your reply,I'm waiting for my genetic test to come back

      But the say they are 99.9% certain it is hereditary, both my parents

      We're Irish,it's my 4 the v/section on Thursday.

      Once I've been back to see the consultant 19.7.16 and he tells me

      How many more v/sections I will need,I will contact my insurance

      Company.

      Cheers philx

  • mike80628
    mike80628 philx

    Posted

    Hi Phil. Many insurance companies out there don't seem to know a great deal about our condition. They don't seem to understand the treatment phase and maintenance phase. Someone in treatment phase with a level over 2000 for example might still be at higher risk of suffering from something related to iron overload, than someone in maintenance phase on a level under 50. Some companies if you tell them your in treatment phase, will see you as a much higher risk than someone in maintenance phase. Best thing to do is phone the Haemochromatosis Society...they'd be able to give the most up to date advice on insurance issues. Cheers. Mike.

    • philx
      philx mike80628

      Posted

      Hi mike

      I will leave adding this to my insurance till around October, when

      Hopefully I will have a better picture of how my levels are reacting

      I am not taking anything for granted,I will take each extraction as it

      Comes,after 3 extractions I am pleased with what I have dropped

      But if the next one's don't drop the same ,so be it.

      I am supposed to have a local support group not far from where I

      Live but it's going through some kind of transition, once it's up and

      Running again I my get more info from them.

      Cheers phil

    • mike80628
      mike80628 philx

      Posted

      Hi Phil. What are your latest levels? Mine was 21 a few weeks ago. So good to be in maintenance now. I'm donating blood every six weeks at the mo, and will monitor levels closely. Hopefully after about six to eight months I'll know the pattern of how quickly my levels rise, and hope to reduce my donations to about four a year. I'm feeling good. Started running again. Entering the Brentwood half marathon next Easter and will raise money for the Haemochromatosis Society. Something to aim for. Anyway, keep me posted on your levels and shall look forward to you reaching maintenance phase. Cheers. Mike.

    • philx
      philx mike80628

      Posted

      Hi mike

      After 3 pints,level has dropped from 1130 to 758,which I am more

      Than happy with,as I said I will not get complacent, if next one tomorrow

      Only drops by 10 so be it,at least it's coming down

      Cheers Phil

    • mike80628
      mike80628 philx

      Posted

      Hi Phil. Well, that's certainly a good start. My start was pretty slow, coming down about 25-30 for each session. Then, there would be the odd one of a few 100, when one of 10! Still, just gotta go with the flow, literally.

      I just went to a comparison travel insurance quote, typed in that I had hh, and there loads of great offers...so, don't think you'll have any problems. They just wanted to check that there was no cirrhosis etc....so, shouldn't be an issue if you have no major organ damage...Mike.

  • marie86421
    marie86421 philx

    Posted

    Hi Philx

    I bought travel insurance this year with Saga for a weeks trip to the Netherlands.  I completed the online application form and when I put that I had haemochromatosis, a couple of questions came up asking if I had any related illnesses due to the condition.  I have not and answered the questions accordingly.  The travel insurance included my husband as well and for the two of us it came to £32.  Hope this helps.

    Marie

    • philx
      philx marie86421

      Posted

      Thanks Marie

      I did try a fictitious name,with insure and go,when completing medical

      Questions, put hemochromatosis in,it didn't recognise it,and said

      Phone there helpline ,???I will leave it a couple of months and see how

      My levels come down

      Cheers phil

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