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Our six year old son was diagnosed with achalasia last week after a barium swallow. He had been admitted to hospital with dehydration and weight loss after about 5 months of progressively worsening regurgitation during means, which wasn't helped by contracting a tummy bug a few weeks ago on top of it.
In a way we're relieved that we have a diagnosis now and that the condition seems treatable. He has a feeding tube, living off milkshakes and water, and we're waiting for an operation in three weeks time.
We had a chat with the surgeon a few days ago and she seems very good, having performed the operation successfully in children a number of times before. She suggests Heller myotomy using keyhole surgery but without fundoplication. In her view fundoplication isn't required in about 70% of cases and has its own risks and complications. If the fundoplication is needed, there is an option for doing later.
This sounds all very sensible to us, but we were wondering if anybody has experience with this procedure in a young child or would suggest alternative treatment?
Also, we were wondering what the long term prognosis is given that our son contracted achalasia at what seems to be a very young age. Is there anything we can do now to avoid potential problems in the future?
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