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treating hs

Posted , 4 users are following.

tom85153
tom85153

wondered if anyone has in the past taken antibiotics long term (over a year or two) and still managed to get their HS into remission. I think that past antibiotic treatment may mean i never can treat this disease...

any reply would be greatly appreciated, thanks

0 likes, 9 replies

9 Replies

  • rachel052
    rachel052 tom85153

    Posted

    Hi Tom,

    I have been prescribed a course of Erythramycin (sorry if not spelled correctly) for over a year. I noticed absolutely no improvement when taking antibiotics for HS and also Roaccutane did not work for me. 

    • tom85153
      tom85153 rachel052

      Posted

      cheers, yes i had the same treatment to no effect. Has a change in diet worked for you?
    • rachel052
      rachel052 tom85153

      Posted

      I haven't really altered my diet as I don't appear to have it as severe as some people on the forum. I have taken the turmeric tablets that some people suggest but I don't see much improvement. I'm due to go back to my Dermatologist in June after a 6 month break after finishing Roaccutane. He is suggesting some form of leprasy medication but I'm not overly keen on taking that. What is your current treatment plan and is your HS quite severe? I have read some good things about dietary changes 
    • tom85153
      tom85153 rachel052

      Posted

      fair enough, mine is quite bad as its frequent and widespread but not that severe. There is definitely a link with diet im sure, its just difficult to determine what it is exactly. i plan on sticking with diet changes for the timebeing. cheers
    • adampaul79
      adampaul79 tom85153

      Posted

      HS is NOT caused by bacteria, which is why antibiotics dont work. 

      HS is a suspected auto immuine disease. Try google searching "hidradenitis suppurativa autoimmune disease" if you read enough about this, it starts to make sense. All those people, including myself learned how to control HS and thats where we all started off from.

  • ammc69486
    ammc69486 tom85153

    Posted

    hi tom 

    im 19 and Ive been on several antibiotics over the last two months to treat my HS.Recently i was hospitalised for a week as a result of my hs, its very severe so i am on very stong antibiotics (just to warn you), the only antibiotic that ive seen any improvent of my hs has been meropenem,( Ive been taking it for the last two weeks) I take it through a pick line that goes in my vein from my arm to the side of my heart. Its has a lot of side effects like nausea and extreme tiredness. The only advantage is i can give it to myself through a drip three tmes a day as an outpatient so i only have to go to hospital once a week for a check up. If your HS is severe i would recomend it but there is a good bit of discomfort involed in the treatment. From my experience tablet antibiotics just are not strong enough. I hope this is helpfull

    • tom85153
      tom85153 ammc69486

      Posted

      wow that sounds horrible, my HS is less severe. I recently changed my diet to an autoimmune protocol and have seen less inflammation definitely - its definitely worth a try. Antibiotics only seem to partially help and have never brought remission so I am currently trying other treatments. wish you the best and good luck. i hope you find a successful treatment soon. cheers
  • sarah20352
    sarah20352 tom85153

    Posted

    Hi Tom

    i have tried everything possible for a few years now.

    the BEST thing I have found is a combimnation of 2 drugs...Rifampicin and Clindamycin.

    I take it for 3 months at a time and it helps me for approx a year before i need it again. It works fast to start seeing a difference.

    The side effects for me is a constant sick feeling and orange pee and tears!! But i have to say that these side are far better than the pain of HS.

    These drugs were prescribed to ne by a dermatologist but needed agreement by my GP for prescription...which they did without hesitation.

    I would highly reccomend that you look into this combination.

    Good Luck!!!

    Sarah

    • tom85153
      tom85153 sarah20352

      Posted

      thank you for your reply and advice! Ive recently had great success in trying a autoimmune diet. It did take a couple of months to truly figure out my triggers and still don't know all of mine, but by eating a very strict diet I don't get any new flares. Maybe you should try - google it. 

      good luck 

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