Posted , 4 users are following.
wondered if anyone has in the past taken antibiotics long term (over a year or two) and still managed to get their HS into remission. I think that past antibiotic treatment may mean i never can treat this disease...
any reply would be greatly appreciated, thanks
0 likes, 9 replies
I have been prescribed a course of Erythramycin (sorry if not spelled correctly) for over a year. I noticed absolutely no improvement when taking antibiotics for HS and also Roaccutane did not work for me.
HS is a suspected auto immuine disease. Try google searching "hidradenitis suppurativa autoimmune disease" if you read enough about this, it starts to make sense. All those people, including myself learned how to control HS and thats where we all started off from.
im 19 and Ive been on several antibiotics over the last two months to treat my HS.Recently i was hospitalised for a week as a result of my hs, its very severe so i am on very stong antibiotics (just to warn you), the only antibiotic that ive seen any improvent of my hs has been meropenem,( Ive been taking it for the last two weeks) I take it through a pick line that goes in my vein from my arm to the side of my heart. Its has a lot of side effects like nausea and extreme tiredness. The only advantage is i can give it to myself through a drip three tmes a day as an outpatient so i only have to go to hospital once a week for a check up. If your HS is severe i would recomend it but there is a good bit of discomfort involed in the treatment. From my experience tablet antibiotics just are not strong enough. I hope this is helpfull
i have tried everything possible for a few years now.
the BEST thing I have found is a combimnation of 2 drugs...Rifampicin and Clindamycin.
I take it for 3 months at a time and it helps me for approx a year before i need it again. It works fast to start seeing a difference.
The side effects for me is a constant sick feeling and orange pee and tears!! But i have to say that these side are far better than the pain of HS.
These drugs were prescribed to ne by a dermatologist but needed agreement by my GP for prescription...which they did without hesitation.
I would highly reccomend that you look into this combination.
Join this discussion or start a new one?New discussion Reply