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Hello all , i'm not usually one for forums , but my wife suggested telling someone my story may help both me in my recovery & others suffering with trigeminal neuralgia ..... So here goe's , I was offshore in June 2016 , & started to experience a sharp but short pain in my gum/tooth , which I put down to dental care , so phoned wife & asked her to make appointment for when I was home , the pain was not regular at the time & I was more than able to live with it with a cple of pain killers . Upon visiting my dentist he could not find any issues with my teeth , so took an exray , which showed nothing , he then asked for a colleague for 2nd opinion , which is were I first heard the term "trigeminal neuralgia" , he told my dentist to refer me to specialist , which he did , unfortunatly I was unable to attend my appointment due to working abroad , I did let them know in good time so as to make another , but I was told it may take upto 6/8months for first outpatient appointment .... During this time the pains ie... electric spasms in side of jaw lower/upper right side started to get more intense to a point where if it happend at work I would get a couple of seconds warning via a quivering in my lower lip , so i would try & go somewhere quiet ie toilet or changing room . The trouble was that when working in extreem weather conditions the spasms last for upto 2 hours & in all honesty the intensity of the pain prevents you from talking moving , or anything that would help ..... I was getting desparate by this time & went for help via my GP where he told me he would treat me for TN , & prescribed Carbomazapene , which to be fair took the edge off the pain for about 2/3weeks . I was doing 3:3 rotation at the time , & was due to see neurologist on arrival back home , but 2 weeks into rotation the attacks started back with a vengence lasting 2/3 hours & 3/4 times a day ! I have got quite a high pain threshold but this was the worst thing i've ever experienced .... not being able to move or talk & kicking out with the pain with tears streaming down my face ! I was found by one of the guys i work with & rushed to medical centre on vessel , because the medic couldn't control the pain , it was decided that I should be helivacked off the vessel to nearest hospital "Emdan" Germany , where I spent 3weeks of being pumped with morphene & other unmentionable drugs that did absolutaly nothing but make me feel sycotic , having not eaten for over a month i'ed also lost nearly 3 stone "bad times" I was eventually transferred to UK hospital & put into acute ward , & placed on emergency list ! 2 weeks later i was treated "fingers crossed" successfully with laser treatment to the nerve .... That was 6months ago guys ! I've put the weight back on & started brushing my teeth again "Yehhhh" .... back to work next month ! So there is a light at the end of the tunnel for you people 🙏
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