Treatment for brain fog!
Posted , 6 users are following.
Hiya! I’m abbie and I’m 23. I have CFS and fibromyalagia. Aside from the pain and fatigue one of the most frustrating things for me is the brain fog and not being able to concentrate / focus. I’m in my final year of university (I had to defer last year due to having so many surgeries) and it’s so important to me that I graduate. At the moment I cannot for the life of me concentrate enough to do my work. I spoke to my doctor who said I could try and get a specialist to prescribe me Modafinil but I am really quite against it. Has anyone used any medication/ vitamins / nootropics that have really made a difference? Would also love to speak to people a similar age as although I believe to have had CFS for about 2 years I only got diagnosed in the summer so it’s all very new to me! X
0 likes, 22 replies
maureen65552 abbiem4092
Posted
Oxford Bioscience supply it in powdered form which then needs reconstituting with saline solution...it is the only way it can be bought in the UK
I use BD Posiflush saline sealed syringes easily acquired in UK
I also use standard insulin syringes BD Microfine
If you join the Pernicious Anaemia Forum on here there are some threads on there about people sourcing their own
B12 is a water soluble vitamin and the body excretes what it does not use...it turns urine pink if you have too much... but this has never happened to me.
Some people treat themselves once a week, 2 -3 times per week, all depends on the individual.
abbiem4092 maureen65552
Posted
maureen65552 abbiem4092
Posted
You're welcome Abbie
Forgot to say it is B12 Methylcobalamin that I use which does not need converting in the body and goes straight to the cells. Other cheaper forms(hydroxcobalamin/cyanacobalmin) need converting by the body in a usable form. Some people's bodies cannot convert.
So B12 Methycobalamin works the best in a lot of cases.
catherine41708 maureen65552
Posted
catherine41708 abbiem4092
Posted
We were offered an antidepressant (our 16 year old daughter has severe ME/CFS) as it can improve the serotonin receptors in the brain, and this reduces brain fog (If I understood right). Were seriously considering it until an ME friend told us she had attempted suicide while on this drug. For a small number of people suicidal thoughts can be a side effect. It was completely out of character for her, so almost certainly a side effect. However, apparently it can help some people so probably worth discussing with a professional.
We found evening primose oil, high dose (do get advice on this) helped a bit, as did chinese medicine Moxi treatment. BUT it didn't last so may have been placebo effect.
Best if luck Abbie.
lexilou32 abbiem4092
Posted
Hi Abbie, I've had symptoms for the last 10 years but diagnosed in December 2017 so am very new too (am 27). I am taking Amitriptaline for sleep and pain. It is actually an older style antidepressant which they don't use as an antidepressant anymore as there are newer ones with less side effects, however I find this a godsend in helping me sleep and allowing my brain to switch off at night - something I could never do before and got to me so much it made me depressed.
In regards to the brain fog - The more I rest, the less extreme it is, and rest seems to be the only things that relieves it this much. The biggest difference I find with taking the Amitriptaline is at night, my brain doesn't seem to be racing so much and I can sleep for so much longer without waking up - something I had massive issues with before I started taking it.
My best advice from anything I've done, is that if you feel worse when in the middle of an activity, slow down or stop, because this is when I find if I continue, my brain fog will get so bad it will make me stop because I literally won't be able to understand what's being said to me xxx