Treatment for LP

Hi Jill

Like you my lichen planus is mostly in the mouth and is very painful. I have written to the Times Style magazine as they have a section on natural remedies. As soon as I have a reply I'll post it on this site.

Hang in there.

Lucy

After 5 years mine has just reached my mouth and vulva. I am so unhappy that my hospital appear to treat this as nothing. I have become depressed now have no nails also allthough my spots on the body have gone. My mouth is sometimes sore somethimes ok. Ny Vulva fllares up like nappy rash and I can barely walk. It is affecting my life badly.

[quote:090f4d9654=\"Jill\"]Hi my LP started 7 years ago and has gradually got worse over the last 18 months under the top lip and on the cheeks. I have tried sterroid cream from the doctors which has eased it slightly but not kept it away and also oral sterroids which the doctor no longer will give to me because of the increased risk of osteopirosis. I go to the hospital twice a year for a check up but no joy despite biopsy and sterroid spray. My mouth is very painful and stings when i eat. has anyone any advice on how to ease or treat this? i would be very grateful, thank you.[/quote:090f4d9654]

My wife visited a specialist in this area yesterday, who strongly advised using detrovate cream on all effected areas including the mouth. It is available on prescription.

After 3 years of experiencing mild oral problems and trying most available treatments ( I had spoken to my dentidt several times but no diagnosis was made or any advice given) a new hygenist finall asked me if I had scalde my mouth after a negative reply she asked about medocatio, when I replied blood pressure tablets she looked up the type and suggested that I consult my doctor. I have spent the last 2 years changing B P tablets to find something better, on no occasion did a doctor even look in my mouth. Yesterday I saw a new doctor who did and immediately suggested Lichen Plagnus. I am now told not to take the Tabs for a month check my blood pressure frequently and not to worry if it goes over the 200 level for a few weeks. Wow what kind of advicde is that, why not a swab and an appointment with a dental hospital.

Ask you doctor about using Clobetasol Propionate Cream .o5%. My vulva specialist has had me on this for 15 yrs. It does work. I insert 1/2 syringe twice weekly when I have an outbreak.

[quote:4b69424cc5=\"Brenda Joan \"]After 3 years of experiencing mild oral problems and trying most available treatments ( I had spoken to my dentidt several times but no diagnosis was made or any advice given) a new hygenist finall asked me if I had scalde my mouth after a negative reply she asked about medocatio, when I replied blood pressure tablets she looked up the type and suggested that I consult my doctor. I have spent the last 2 years changing B P tablets to find something better, on no occasion did a doctor even look in my mouth. Yesterday I saw a new doctor who did and immediately suggested Lichen Plagnus. I am now told not to take the Tabs for a month check my blood pressure frequently and not to worry if it goes over the 200 level for a few weeks. Wow what kind of advicde is that, why not a swab and an appointment with a dental hospital.[/quote:4b69424cc5]

I have been diagnosed with Lichen Planus following a biopsy taken by a dermatologist. He also suspected blood pressure medication (in my case Bendroflumethiazide) or its interaction with other BP medications. I dont have any oral infections, just numerous red or brownish blotches and they are not itchy.

[quote:b1972db88b=\"Lucy \"]Hi Jill

Like you my lichen planus is mostly in the mouth and is very painful. I have written to the Times Style magazine as they have a section on natural remedies. As soon as I have a reply I'll post it on this site.

Hang in there.

Lucy[/quote:b1972db88b] :? you can use candid mouth paint[/b][/b]

[/b]

hallo there.

use 100% aloe vera gel for oral lichen planus. simply cover your tongue or gums eith the gel throughout the day and it relieves the burning and soreness and ulcers. try it. i did/do and it works.

hi there

i suffer from irrosive lichen planus of the mouth and vulva.

Thank god my mouth has cleared up, i onlu

y wish i could say the same , for else where.

Can anyone tell me of somthing that eases the pain, as its so so bad

and so painful im in tears +full of painkillers.

Im currently getting steroid injections into that area, which are sore to say the least, they worked for me 8 yrs ago+iv been free of it till 2 yr ago.

Im using a barrier cream, as steroid creams burnt my skin badly.

Does aleo vera work well +if it doesent what does as im really @my wits end here, someone please if you have used somthing that works .

, please let me know As i really could do with some help

Hi there

Please can some one tell me is there any truth that foods affect irrosive lichen planus, as im @my wits end. I badly need the advice so please some one reply

Lillymilly.

Pay attention! Join the forum uklp it is people with lp. You will get al your questions answered. Join today.

You sound as if your vulval lp is quite advnced. Have you had a lot of fusion. Why can you not walk. Is it because the vulva is too sore. Join today.