Treatment for Post Herpetic Neuralgia

Posted , 19 users are following.

Any new or novel treatments for post Herpetic Neuralgia? Nothing has worked so far.

1 like, 85 replies

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  • Posted

    Hi Last four years I tried many creams and nothing have worked.

    If you have any idea please write to me.

    Ramesh

    • Posted

      Hello Ramesh:

      Sorry I have no answers yet. Have tried many creams without success. Some people get relief from Palmitoylethanolamide (PEA) available from Holland and the U.S. Am trying with no success yet. Medical marijuana is a possibility and is available in Canada. Maybe not where you are.

      Merv

    • Posted

      Like you, Ramesh, I tried all kinds of topicals... and shots by the pain doctor... but nothing killed the pain ... until finally I was given Percoset.  I am not a drug pusher, but I do not see the value of suffering when I have a choice (until the government takes it away biggrin 

  • Posted

    EMA401 is being developed by Novartis and their website says it is due for "filing" in 2020. 

    My pain is affected by the weather (post stroke regional pain syndrome).  Anyone else notice that?

    • Posted

      I have heard of EMA401 but do not know what it is.  But that's a lot of years between now and 2020.

  • Posted

    Mervyn

    I have suffered from Post Herpetic Neuralgia now for 21 months, and I have found a topical mixture that gives great relief from the intense pain.

    I have posted this recipe several times, but repeat it for new sufferers.

    My topical mixture works very well to relieve pain and reduce the need for analgesics.

    The mixture is 250grams of Invite Vitamin E Cream, two five gram tubes of Aciclovir Cold Sore Cream, and 65 grams of Dencorub Heat Gel.

    Mix thoroughly and apply sparingly to the scar area and any new troublesome areas, as required for pain relief.

    This mixture gives immediate relief from pain, and it dramatically reduces the need for pain relief drugs. Apply as often as required for pain relief. 

    Also, one Evening Primrose Oil 1000mg capsule taken daily desensitises the nervous system and reduces the pain.

    I have found this topical treatment to be very effective in reducing PHN pain,   and the need for analgesics. It is quite inexpensive, as this quantity should last two to four months, depending on application frequency.

    Best of luck in your search for relief from this debilitating complaint.

    Regards, Ray

     

    • Posted

      Hi Raymond

      Thanks for posting this.  I have a question?

      Can you store this mixture once done to use another

      time when needed?

      Sincerely,

      Paul

    • Posted

      Hi Ray:

      Thanks for your response and recipe. I will give it a "try". This is indeed a nasty and debilitating ailment.

      merv

    • Posted

      I have stored this mixture for many months without adverse affects, but you could mix half the quantity at one time if you think you may not need that much.

      The Aciclovir pack recommends storing below 25 degrees centigrade, and do not refrigerate, so these are the only limitations I have encountered.

      I am sure you will get great benefit from this treatment.

      Regards, Ray.

    • Posted

      Thanks will let you know and thank you for the primrose oil, will get

      that tomorrow

      Paul

    • Posted

      The Primrose Oil is readily available in Canada, but the Dencorub appears to be an Australian product with a low price but very high shipping costs. Invite Vit. E cream is also an Australian brand, but there are many other brands available. The aciclovir cream is by Dr.'s  prescription.I'll try to put these all together.

    • Posted

      Mervyn

      Yes I am in Australia. No doubt similar products are available in Canada.

      Invite Vitamin E Cream contains 50mg of glycerol, per 100grams, so it does not form a skin with continual use, as other creams do.

      Dencorub Heat Gel is the strongest and cheapest pain killing Gel available in Australia. The formula is 26 percent Methyl Salicylate and 7 percent Menthol. No doubt you have a similar product in Canada.

      Aciclovir is available in Australia from discount chemists, at $7 per 5gram tube, with no prescription.

      I am sure you can find a suitable product in Canada. It is well worth the effort.

      Regards, Ray.

    • Posted

      Mervyn

      I misquoted the formula for Invite Vitamin E Cream. 

      It has 50mg of Glycerol per gram, so it is completely different to the water based Vitamin E Creams. It also has 100mg per gram of Vitamin E.

      Kind regards, Ray.

    • Posted

      Ray:

      Thanks for this update on the ingredients for Invite Vit. E and Dencorub. I'll look for locally available equivalents.

      merv

    • Posted

      Soundds good... but my paiin is skin, the largest organ in the body.  sad   

    • Posted

      Carol, my pain also is the skin and the only thing that helps minimally is the 4% lidocaine over the counter pain and itch cream that you can get without a prescription here in the US.  Also I often will take a cool shower and then the cream.. Percoset didn't even touch it!

    • Posted

      Hi Ruth:  I am in the U.S.  Problem for me and my skin is that it covered my body!  That's why I am on Percoset, which does the trick and with minimal side effects.  Occasionally I "experiment" to see if the PHN has gone away, (in which case I would happily detox) but it's still with me!  Patches?  II need to be a walking patch.

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