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Hi & thanks for taking the time to read this,
I'm a 34yr old Male looking for advice on deciding how best to next treat my urethral stricture. I have been having much difficulty with this & escpecially so since my first surgery 6 months ago. After many years of living with the symptoms (straining, sudden urge to pee, getting up in the night) I decided I needed to do something about my stricture. After several consultations with various people I decided to undergo an optical uretherotomy which I was told would have a 50/50 success rate but ultimately meant I had 'nothing to lose'.
After the surgery (optical urertherotomny) the doctor said he was pleased with how it went but he would want to see me again to complete it as he felt there was more work that needed to be done. He told me a cut of the stricture was perfomed which i wasn't expecting.
Since then my life has changed drastically.
I now suffer terribly from retention (something i had never experienced before the surgery), where I physically can't pee at all although I know my bladder is full & I feel like I desperately need to go. The only way I can go is to self catheterise (sc). So today (6months after the surgery) I have to sc at least once a day, sometimes it can be 2 or 3 times. Although I'm now very used to doing it it's a huge annoyance & become something I have to manage very carfeully as wherever I go I always need to make sure I have catheters I can use quickly. Usually after I sc I can pee of once or twice but it seems after that when the bladder has become more streched I get retention.
I don't understand why this is happening nor why having the surgery done it seems to have created this. As I said before I never had a problem of not being able to pee before the surgery.... if anything it was the opposite lol!
The other outcome of the surgery is one that has really hit me hard and one I didn't expect or was I warned may happen. I'm only writing this to make people in the same position as me aware in future when deciciding for themselves what's best to do. Since my surgery I've also developed a slight downwards bend in my erect penis. It's between a 10-20% bend from which I believe (although not proven I guess) is caused by some kind of scarring or trauma from the surgery. Something which apparently wont heal by itself!!! This now seperate issue has caused me much discomfort & grief and has certainly affected my sex life & self esteem.
So going back to my initial advice of 'I had nothing to lose' by undergoing the surgery you can uderstand why I feel slightly let down by that to say the least.
So what to do next is where I really need help.
I've just had results from a urethrogram confirming I have 'quite a tight but relatively short stricture within the penis. With that in mind I can only see 3 options for me.
1. Complete the urethrotomy & hope for a more succesful outcome. (baring in mind the reults, which i've just explained, of the previous surgery this option does concern me greatly)
2. Discuss getting urethraplasty surgery done which would hopefully offer a more permanent & positive outcome.
3. Do nothing and just hope things improve.
So what I'd really like at this stage is advice from people who have been in a similar/same position as me and what their results were, bad or good, so I can then make a much more informed decision. I'd also like to know if anyone has had any success with this issue through a private surgery?
Many thanks your advice will be much appreciated
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