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Hi everyone. This story doesn’t make sense, at least to me, but here it goes. I began not feeling myself in January, if not sooner. I eventually noticed my blood pressure was elevated. This had happened a time or two in the past, but on the rare occasion it did happen, a day or two and it would go back to normal. This time, however, it lasted weeks without going away.
When at the doctor for the sudden rise in blood pressure, I mentioned how “everything would make sense if my thyroid wasn’t functioning right”. She went ahead and did the test, which showed hypothyroidism. My TSH was 5.35. I had suspected this for quite a while, but this was the first time blood work had confirmed it. My father also had hypothyroidism, so it wasn’t a surprise.
I am a 35 year old slim male (trying to stay slim anyway), 5’6”, 140 pounds or so. Frequently go to the gym and try to be as active as I can despite having a desk job. I went on medications for both nearly the same day in January of this year– Levythroxine (Synthroid) and Linisopril for blood pressure. The issues continued and I began to suffer from severe insomnia, which I pinned to the Levythroxine. Linisopril, oddly enough gave me a pressor response and elevated my blood pressure much higher. I had to go off of it and was then given Losortan.
Despite my thyroid levels showing up in the normal range on the follow-up blood work, I continued to not feel right. My BP was still all over the place. I was having major depression for the first time in quite a while and began to actually think this was going to kill me. The insomnia surely didn’t help. I continued to gain weight, which is all in my stomach. As someone that goes to the gym about 5 times a week, it was extremely frustrating and played into why I was depressed. I have went from around 137-ish to 147 (154 in doctor’s office) early in the year. My stomach was larger than it was when I was in my 160’s, which was over a decade ago.
No matter how good I ate or how tightly I restricted calories, I either maintained or gained weight. I log my foods/macros daily using the MyFitnessPal app, so the fact the scale kept going up has been a bit of a surprise and a setback.
When going back to the doctor and telling her about how miserable I felt, my TSH level was within “normal” range at 3.88 and free T4 was 1.2. Due to this fact, it seemed as if I had no further options until I seen an endocrinologist, which is in late July. That’s quite a wait, given this all actually took place a couple months ago.
As I had felt like I had lost my life (not even going to the gym would make me happy anymore, as it just reminded me I couldn’t control my health anymore), along with frequent severe headaches, I decided I had nothing to lose by going off LevoThyroxine. Magically, things began falling into place, and this is where even I get a bit confused.
I am still an insomniac. Apparently that was not being caused by the Levothyroxine, though it seemed to start the instant I began taking it. I’ve learned to deal with that and have done my best to adjust my schedule. Basically, I cannot sleep between the hours of around 11 PM and 7 AM. Otherwise, I am fine.
My weight has gone down a few pounds – still more than I was when I began having problems, but it’s at least gone somewhat in the right direction. My blood pressure has dropped to normal as well after going off Levythyroxine. The headaches are gone. The depression is gone. I haven’t been back to the doctor since, so I’m obviously not sure what my TSH level is. I am not sure if it’s even worth going back at this point. I am managing day to day, doing much better, and just waiting to see the endo. My last day of the Levythyroxine was April 25, and I have not had ONE instance of high blood pressure or headaches since.
I am not sure why I still can’t sleep. I am not sure what’s going on with me at all really… but is there anyone that can make any sense out of this? Unfortunately, my doctor has not done anything except blood work for free T4 and TSH levels. Why would Levythyroxine be like a poison to me? Why would it raise my blood pressure? Why can’t I sleep? Why suddenly the thyroid issues after my levels were always in the “normal” range before? In 2016, my typical TSH was around 2.6 on my blood work. Guess I’ll find the answers (hopefully) in July…
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