Treatment strategies...more ideas!
Posted , 77 users are following.
Hello, I'm Lisa, a happy, healthy woman in my 50's - Random purple/red rash (ankles/ legs/ wrists/elbows) appeared within past year... GA diagnosed by biopsy. Tried strong steroid topical cream w/ minimal results.
I am amazed how passive my dermatologist and physician have been! Bascially "don't know where it comes from, you have a diagnosis, nothing to be done."
Glad to have found this forum, although I am surprised that there are so few members. Still, let's get some POSITIVE energy going around this!
Disclaimer: I want to freely offer my thoughts, but if they differ from someone else's course of action, no judgement is implied at all!
I do not want to take medication, but rather, gently explore the root of the GA. It's an auto-immune response, so our bodies our telling us to change something!!
In my very limited research so far, GLUTEN has been mentioned as a potential cause....has anyone else heard that? Because I have already gathered lots of compelling info on the merits of a gluten-free diet, I am starting that approach - not an easy path, but I'm willing to try it and will keep you all posted (fyi, altho not vegetarian, I do follow a pretty healthy diet - mostly whole/ fresh/ organic foods).
In terms of treating the exisiting rash, I have just read something about ULTRAVIOLET LIGHT THERAPY- anyone else heard about this for GA? I am going to investigate that asap, and will keep this group posted.
Thanks so much for this opportunity to connect and brainstorm!
7 likes, 262 replies
FrenglishCarole Lisa3vermont
Posted
I found out that once you reach menopause, your body releases all toxins accummulated since year 1 - it is stuck in your bone marrow and gets released slowly into your system creating all kinds of issues including this one.
I won't tell you all the stuff I have done so far in the last 8 years but like you, I eat a healthy diet, try to avoid GLUTEN as much as possible as well as processed food - I exercise 5 X/week and am otherwise pretty healthy.
I did a hair analysis which determined I had high level of mercury in my system - mainly from my old teeth fillings - I had them all removed and changed to porcelain fillings. This mercury screwed up my system from candida to nerve damage, digestion problems and I believe GA.
When you do a Hair Analysis, they explained all and give you solutions to fix what needs to be fixed - the mercury has also made my sodium level off the chart and to compensate I am taking potassium, vitamin C and vitamin B5 supplements which I have just started this week. I will keep you posted on how that goes.
Throughout the years, some of my spots have gone away, while other have started - not sure why. Perhaps since it took 50 years to get there, it is unlikely going to disappear in 1 year - I have to be patient but believe I am on the right track.
Bottom line, it is my opinion that anything to be applied or any treatment coming from the outside of your body i.e. ultraviolet light therapy is a waste of money.
Let's keep in touch and continue our fight in getting rid of this awful auto-immune skin disease.
Cheers,
Carole
Lisa3vermont FrenglishCarole
Posted
I also take vitamin supplements, which should have been included as part of my story. In the past 3 years I had 2 foot surgeries and my bone just was not healing...I add this point as a possible "puzzle piece" to GA....may or may not be related. Anyway, to address "bone growth" I started a daily regime of 3-4K Vitamin D, 1200mg Calcium, and a B complex. Bone is healed (yay), and I'm staying on those vitamins. I understand that most pp could benefit from Vit. D supplement, which is dificult to get in your diet.
Hair analysis is an interesting idea - sounds like it gave you a lot of info.
So we are in synch about (first and foremost) investigating and methodically addressing the root cause of GA, but I am just vain enough that I will also look into the ultraviolet light therapy as a potential way of subduing the spots/ splotches. For me, they are slowly, steadily appearing in new places. As someone in this forum mentioned, I will also treat my skin kindly with medicinal essential oils, not as a cure, but as a bid to soothe/ minimize the outward manifestation.
L.
PS.One more thing - I'm wondering if anyone knows if sun exposure makes GA better or worse??
FrenglishCarole Lisa3vermont
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cynthia44652 Lisa3vermont
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Lisa3vermont cynthia44652
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I like your idea of exploring Chinese medicine....I'm thinking about that as well.
Also, thanks for your feedback that light therapy has not worked for others.
(For other readers who may not know, IBS = irritable bowel syndrome)
bonnie55779 FrenglishCarole
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FrenglishCarole bonnie55779
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Cheers,
Carole
bonnie55779 FrenglishCarole
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patty98033 FrenglishCarole
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LaurenSimone patty98033
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Hey patty,
Hoping to hear back from you! I just joined and think I read you had a test performed in the UK? and it helped you find some respite from this awful disease?
I'm 31 with it on my feet mostly but have just noticed it spreading. I too believe it was food related as the last year I have consumed heaps of sugar gluten and soy! In 5 years I'm never spread so that's the only thing that changed for me. I'm currently doing the AIP diet but would love some tests to give me a little hope that I'm on the right path!!
Thankyou,
Lauren
chris1293 Lisa3vermont
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FrenglishCarole chris1293
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Lisa3vermont chris1293
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chris1293 Lisa3vermont
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chris1293 FrenglishCarole
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chris1293
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kara0316 Lisa3vermont
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Hi Lisa,
I tried acupuncture and a Chinese herb called margarita. It seemed to not provide much improvement for my GA or Ulcerative colitis. I heard about the photo therapy but they require 3x per week and from what I've heard is not helping many people. I started using a product that I sell for rosacea/psoriasis and it seems to be helping reduce the redness and minimize the bumps. I've only been using for 2 weeks and already feel confident wearing short sleeved shirts- thankfully because it's summer!
I'm in my early 40's, have had GA for almost 20 years. Have tried everything from dermatologist and haven't gotten anywhere until now ( cream, injections, liquid nitrogen). I am Gluten and dairy free for about 3 years now. I'm not sure if this is my cure, but it's given me hope which I haven't had in a long time. I hope everyone finds success in their treatment.
Kara