Treatments for CRPS

Posted , 8 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Hi, I suffer from CRPS mostly in my right hand, I have appointments with pain management services and so far have had 2 stellate ganglion blocks which have not worked at all. My consultant has recovered me to the specialist physiotherapist for the pain clinic. I'd like to know if physiotherapy has helped anyone with CRPS as I am unsure weather or not to go through with it.

Thanks

1 like, 12 replies

Report

12 Replies

  • Posted

    Hi mm19078 

    I have crops in my right ankle and leg I have seen  physio and been given exerscises to do also I had a 6 week course of hydrotherapy, because I want to get better so badly I did a 100 reps of my excesses instead of 25 so I  didn't do myself any good.I now have to do less and rest 3  times a day.The hydrotherapy helped I think .Just waiting now to see what's next. Good luck with whatever you decide🌸

    Report
  • Posted

    Hi I have crps in my right wrist following a break last summer. I'm surprised you haven't been referred to physio as a first option for treatment. I've had regular physio for about 10 months now, my hand is now where near as swollen as it was, but still have pain and can't make a fist, but can do more things now, it's not as useless as it was. Give it a try
    Report
  • Posted

    I had physiotherapist from the start but the specialists there can't do anything for me as my range of movement are very good but I am lacking in strength and am always in allot of pain that's why I have been referred to the pain clinics specialist head physiotherapist as she can do more treatments I.e. acupuncture ect.. I just don't want to waste my time.
    Report
  • Posted

    Thank you, sorry I misunderstood. I've gone from regular physio to pm physio who hasn't done much physio at all, seems to want to talk feelings. It seems each hospital follows there own plan rather than a recognised plan of action. No wonder this disease beats them. Living in hope! Please let me know how you get on
    Report
  • Posted

    Hi, i have had CRPS in my left foot and limb for 4 years and have had physio for 3 and half of those. I cant believe it has been this long but at last my range of movement is so much improved and i have found that strength is also increasing and reduction in pain. From the research i have done it seems that the correct physio is key to gaining functionality again its just so hard to balance the exercise and weight bearing whilst not increasing your pain and that is all down to pacing. A referal to an Occupational Health Nurse can help with that providing they are aware of CRPS. Slow and gentle has worked for me and i have recently become able to come down stairs normally instead of bad leg first and when it was really bad i had to go up and downstairs on my backside. Obviously i had lots of other problems but ive used that as an example of how you can gain strenth it just might be a long haul but worth it. Good luck and remember to be kind to yourself.
    Report
  • Posted

    In my opinion physio as it is not invasive might help and unless you have a really brutal physio (old school!) is worth a try .Often they know more than doctors as they see you on a weekly basis and have alot of experience with post op patients etc They spend more time with you than a doc 
    Report
  • Posted

    Hi,

    I've had CRPS for 3 years now. The first year was a dreadful and lonely experience.

    In retrospect, I'm grateful for my GP for her rapid referrals to Neurologists and pain clinics.

    One place I would STRONGLY recommend all CRPS sufferers to go is the Royal National Hospital for Rheumatic Diseases in Bath. They have a specialist CRPS programme (2 weeks inpatient). Their team of doctors and nurses are fantastically professional. They CRPS team is headed by Professor Candy McCabe, and she is renowned for her studies and research on CRPS. My referral was made through my GP on the NHS. The clinic also accepts international referrals and I believe is costs £10,000 for the 2 week inpatient programme.

    I agreed to enter this 2 week programme out of desperation and I had no conviction that it would help. I was also very anxious to be admitted to hospital for 2 weeks as an inpatient. Believe it or not, by the end of the programme, I was anxious from leaving hospital!

    It was hugely beneficial and it has helped me fully understand the pain. I am managing much better now mentally, and I feel that I now have control over my pain rather than the opposite. I am still under their care and I am due to be re-admitted for another 2 week inpatient programme for the third time in less than a year. I feel that they are fully on top of my condition and they work tirelessly to improve my condition. I am so grateful for their continued input.

    I would strongly recommend anybody with CRPS, no matter how early or late on, to push their GP's to make a referral for this fantastic specialist team. Most GP's have never heard of CRPS, never mind who they should turn to or refer you to.

    Their website is: http://www.rnhrd.nhs.uk/page/79

    I hope this helps anybody who has reached a dead end with their GP's or 'specialists'.

    Report
    • Posted

      Hi

      im being referred to Candy McCabe in Bath privately.

      i have Crps in right hand and nerve damage.

      can you tell me what they do there please? 

      Report
    • Posted

      Dear Tina,

      Sorry to hear about your CRPS problems. Have you been definitively diagnosed with CRPS?

      I just completed my third two week inpatient stay last month. Whilst there, you will be seen by an Occupational Therapist, Physiotherapist, hydrotherapy, group sessions, relaxation sessions and a session with a Pain Doctor (Dr Peter Brook).

      A time table is issued daily showing what sessions you will have. It's pretty intense but very beneficial. It took me a while to see the benefits, but I'm sure it will pay off. I'm now able to tolerate water contact, and I've also learned how to walk better. The educational side of the course is brilliant.

      I would strongly recommend that you go in with a positive intention.

      The CRPS team at Bath are brilliant, from professor McCabe to the junior person.

      Are you not able to be referred through the NHS?

      Hope this helps,

      Wail

      Report
    • Posted

      Hi

      i had Rsi 3 years ago and from that I've suffered with pins and needles and numbness and a freezing hand. Suffered X theme pain in my shoulder. Had 2 ganglion blocks 3 axillery blocks and 1 brachial plexus block. 

      Which have all helped. 

      Every slip I've got from hospital states Crps but I'm not sure. 

      I do also get bad knees in the winter and 2 of my toes ache too ( which sounds mad).

      Been with a pain management team now for 2 years and also been on a 60 hour course with a pain management group. 

      Thanks for reply earlier smile 

      Report
    • Posted

      Initially, you will be seen for a consultation with McCabe. If a diagnoses is made, they will most likely recommend an inpatient stay.
      Report
  • Posted

    I see a physio, she has helped to regain some movment in my hand , but I really dread appointments as it is always painfull, but physio is a very important part of treatment from what I have read.
    Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up