TRELEGY 30 DAY INHALER

Hi Margaret

Firstly my sympathies, we have all been through what you are going through so you are not alone. The expertise and professionalism amongst general practitioners varies. It is important you get an expert opinion by a specialist who should typically give you a full lung function test and possible a chest xray and CT Scan. After this series of test a proper diagnosis can be made.

For myself I have suffered for nineteen years and I'm still around! I have tried many drugs including Trelegy (I could not feel any benefit so returned to Symbicort 400 and Stiolto. Which whilst by no means a cure gives me some benefit in my breathing.

There is a lot more that can be said on the subject. There is so much useful infomation available on the internet, but you need to be selective and only use the best sources such a the Mayo Clinic, The British Lung Foundation and its US counterpart.

Good luck with your research.

I was so pleased when I read your post! (sorry about that) I was moved to TRELOGY about 2 months ago and I have to say my breathing is much worse, before I was on Spiriva and butesemol (or something like that) Unfortunately I am away from home for another 2 months so will have to struggle on, life is not easy at the moment. I have never been referred to a specialist at the hospital or had a full range of tests. I was diagnosed over 10 years with COPD and according to the nurse practitioner I have severe COPD

Hi Margaret

Is this Scotswoman Margaret? Hadn't heard from you in a while and i hoped that meant you felt better.

Have you been on the Trelegy the full 3 months? If so, you've given it more than enough time to work so you'll want to report back to the nurse/doc this week & ask for a different kind of inhaler. If you've only been on it for a week, you might want to stick with it a bit longer. Some of the steroid inhalers need to build up in our system for 2-3 weeks before they are fully effective.

i hope you get some relief soon.

Hi Margaret I have had alot of different inhalors to I attend the respitory clinic at the hospital about 3-4 times ayear since I had pneumonia I used to take acourse of steroids most months plus my other pills Seven months ago the consultant changed my inhalor to trimbow but when i take it he told me to empty my lungs and take a quick sharp intake as hard asi can and hold and do it another twice before i take the next inhale He also said that is how i want you to use the inhalor and dont listen to anyone that tells you different This has been a game changer for me and although i still take pills daily I have not had steroids for7 months which i could bever see happening I know the same meds dont do everyone but it might be good if your gp refdered you to a clinic or consultant All the best PS I am in scotland

you really need to be under the care of a pulmonologist if you have COPD . did you ever actually get a diagnosis for COPD ? Have you had any test done ? I recently asked my pulmonologist why I can have a normal oxygen saturation reading when I feel like I'm struggling to breathe. he explained to me that it measures the oxygen in the blood that flows closest to the skin. fortunately for me my pulmonologist does not put a lot of weight on those oximeter. in fact his nurse told me that she has seen patients who have normal readings and she knows they have water on their lungs. I think using an oximeter to judge how much oxygen is in your blood is akin to asking someone in pain to rate their pain. It's very subjective. And the meter isn't any better.

I forgot to mention since it sounds like you're new to inhalers make sure you rinse your mouth very well every time you use a steroid inhaler. you can get thrush by not rinsing well.