Trial and error - think I've found something
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My daughter's rash started to flare up again and she became very fatigued - so I tried nurofen 200 mg and an antihistamine - which resulted in her feeling better with increased energy levels. May have been a placebo effect, but worth a try?
My rationale was that if this is an autoimmune reaction, then by suppressing the immune response with anti-histamine and reducing the inflammation with a low dose anti-inflammatory might help - and seems to have done. I shall keep a log from now on as my own study. Like dealing with a crying baby - it helps to keep busy trying something new.
0 likes, 8 replies
donnie99 lucynewas
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lucynewas donnie99
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pelhamed lucynewas
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lucynewas pelhamed
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pelhamed lucynewas
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In his case the belly pain has been the hardest simpton to deal with. When it started the first time he was in a lot of pain, in the emergency room they were giving him morfin in the IV (they were pretty clueless btw) eventually his pediatrician figured it out. It has been up and down since then. First week was pretty horrible not being able to eat or drink for 5 days and lots of pain, then he had a relatively normal week, he even went to school 1 day and he started another week of fun vomiting 4-5 times a day without being able to eat or drink, the following week agian pretty normal (with managable pain). Now pain comes and goes pretty randomly.
pelhamed
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IV, more steroids, morfin, ...
lucynewas pelhamed
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ciara94952 pelhamed
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