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The papers came today, pretty quick I thought! Anyhow I guess this is my opportunity to have my say about how my condition affects me rather than a nurse giving her overiding opinion over my consultant who just happens to be a Professor. 

At least I will try, you have to. Since losing my car I've been vitually housebound except for hospital appointments which my hubby has had to claim a day off work each time to take me to. 

I know I'm not the first to go to one of these tribunal things and perhaps I'm not the worst case either ( I hate to compare illnesses) I guess only I know myself what limitations I have and everyone is different

I got the dreaded biblical size case notes from the DWP - theres a lot more of my stuff in there than I thought, by that I mean in proportion to their argument but I suppose a simple "not entitiled" is worth a thousand words of reasoning when they apply the award .. tough! 

I'm getting by, not being able to have my independance, keeps me from trouble and at least when I do go out I'm chaufered. My bills will be huge as normal as I try and keep warm. 

I'll update the outcome. As for luck, I think I'll need a whole lot of that!

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6 Replies

  • Posted

    Hi Sweety

    Sorry to hear about your outcome but as you have accepted you are not the only one in this situation.

    As you know the next step is a Tribunal. They will give you a direct oppotunity to state your case and give them a better idea of how your disability affects you.

    Your local Citizens Advice have benefit specialists who can help.

    Remember to concentrate on your personal circumstances and AVOID any criticism of the DWP, other claimants or the healthcare professional who dealt with your case. It will simply cause you more harm than good.

    If the argument is about how far you can walk then of course don't appear to be able to walk more than 20 metres and if you need someone with you take them.

    I'm encouraged to see more claimants standing up for themselves so best of luck 

    • Posted

      Thanks Anthony. 

      I have never criticised the DWP or (so called) health professional in any of my contacts with them. I actually saidI understood why they gave me the award based on the fact that there is very little known about the condition I suffer and how it affects me personally.

      Hopefully I'm told, there will be a doctor on the panel that will understand a little more.I am fortunate to have a friend who is a solicitor advising me

      Hopefully the decision MAY get reveresed - If not I have tried and it's no use me getting upset more than I am already and I shall have to cope!

  • Posted

    Sorry to hear of your loss of your car.  It's so important to be able to have your independence and not be totally reliant on others..  Hope you win your tribunal.  All the best
  • Posted

    Morning sweetyb1  as Anthony has pointed out about the not being able to walk the 20 mtrs which used to be 40 yards years ago, this can be tricky for some as where my son had to go for his appeal, well the walk from the car to the room he had to along the corridoor was more than 20 mtrs so he failed on this straight away! they seeemed more interested in how his condition affected him mentaly rather than physically .

    Hope it all goes well for you sweetyb1


    • Posted

      Thanks Susan.

      I think the best way to go is to be myself. I can walk but I'm in agony and some days I cannot do it due to lack of circulation and pain. It will depend on how I am on the day. 

      I have medical evidence, for what it's worth from my consultant and GP. Heaven knows I wouldn't want to scam my way through. If it's not going to go my way then so be it. I've read up so much stuff and it seems if you are able to walk then you have no chance and it doesn't matter in what manner or circumstance you do it. My argument or I suppose my case is that I can't do it repeatedly or every day and I certainly can't do it without pain or breathlessness, so it depends on what the panel think?

      I have to go or else I'll never know what the outcome would have been. I just hope they understand what my condition can do and how it's affecting me

      I'll let you know the outcome no matter what.

      Thank you for your input and help 

    • Posted

      Hi sweetyb1  i do agree with all you have said, as you say just because you can do things it doenst mean you can keep doing them repeatedly. As you say you can walk but it can be in agony, its about time these judges took on board all this. my son and grand daughter to had loads of medical evidence. my grand daughter has MS and the worse rapid agressive type, she was refused pip and im still fuming now, you see she had decided to struggle to work but this went against her, if your well enough to go to work then you dont need it, how wrong they are. she could be in a wheelchair by the time she is 30 or even dead as the treatment she is recieving is lethal and can kill you, but no she isnt bad enough to recieve pip, frown im sorry im intruding on your post but im so angry with it all. At least when we lose ours and i say when not if we are both fortunate to have a least our state pensions to full back on, i really feel for those of working age who not only lose their benefits but their cars and their life which they had before. Our son had drs reports, scans, exrays, but they wernt interested, problem is by the time he got the results he had already been seen by the tribunal, when he said he had backup evidence they said you cant claim on the same ailment twice!

      Im not saying anyone should lie or scam their way through but think how this all affecting you mentally and will do if you dont get and keep your benefit and transport. To say your finding it depressing isnt lying is it.

      I wish you every bit of good luck you deserve. DONT base it on your good days either, a bad mistake.



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