trigeminal neuralgia
Posted , 28 users are following.
I have been diagnosed with trigeminal neuralgia, what a painful debilitating condition. However my GP put me on gabapentin and the symptoms are easing now, i hope to be pain free in a few more days.
I couldn't think straight because of the pain but i am now hopefull, i know it isnt a cure but at least the relief is fantastic.
3 likes, 61 replies
lisa25044
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Sunnieedwards
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I didn't have ms and I didn't have rumors. They are not sure what is causing mine and I am awaiting a high resolution MRI so that I can have surgery with the gamma radiation. But that is months out. I need help now for the break through pain
Valkyrie Sunnieedwards
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alicot
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The drugs made me crazy anyway so opted for radio frequency surgery. It worked tho there are some irritating side effects, numbness mostly, where the nerve has been fried. Once the nerve grows back I may have to do it again. Could be 3-7 years. But no drugs, no TN pain. I had the usual electric shock pain that had me on the floor screaming in the middle of the night. But all gone for now.
I vote for any of the surgeries, there are about 5 or 6. Drugs can work too if you find one that lasts and you can stand the side effects. In any case, do the homework and get your health back!
Find the TN expert in your area...makes a difference. Neurologists here, I found, were only good for getting
drugs. I found a TN surgeon, specialist. He knew what to do and has done it thousands of times.
Sunnieedwards
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sharon33606
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alicot
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sharon33606
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alicot
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I had the radial thermal frequency surgery. They put a needle in your face onto the nerve that is causing the problem and burn it (fry it). And NO they don't tell you the real effete of any of these treatments. I think all but one causes problems to your face but no one tells you much about that it seems. Everything I read about it, left that part out. I have numbness all along my jaw where the nerve is and my lower lip.
procedure but there are still problems and imagine there will always be some numbness and troubles eating. I even have trouble talking sometimes.So here we are in the land of either go crazy with TN pain or deal with numbness and troubles from the treatments. I also have itching inside where the nerve is. That i also annoying.
Glad you are out of TN pain. That IS the worst pain I even encountered. I know why they call it the suicide disease. UG!
Alice
Sunnieedwards
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alicot
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sharon33606
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alicot
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I totally understand how you are feeling. I teach and have to be active and ready to communicate with my kds. I have had to cut back on my job because I just can't keep up with it anymore. But love it so much
I found a way to keep doing it. Work for a smaller outfit, smaller classes of home schoolers for about 5 to 6hours a week. I prep for classes a bunch too, so I am busy without the added stress of having to get up early and getting home late plus oversized classes and lots of crazy kids. Now it is wonderful.
It does get better. You will heal from the glycerol "surgery" and do well, not perfect, for years.
Alice
sharon33606
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Thank you so much for your encouraging words. Went back to work yesterday and although coming home exhausted managed ok
alicot
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I am so glad you are improving. I haven't stopped improving from my radio frequency surgery and it has been months. Tho I dread the day the TN might come back, I am enjoying being free of it. I guess we are now people with face issues until they find a non invasive cure.
Best of luck to you in your glycerol recovery!
Alice