Trigeminal Neuralgia
Posted , 8 users are following.
I'm 23 years old and experienced my first attack a couple of weeks ago. I've had 4 more attacks since then and like a lot of you thought it was my tooth, so went to the dentist. They found nothing so i then went to my doctor who confirmed this is what he thinks it is. It always happens at night, when i'm lying down and from what i remember i'm usually lying on the side of the pain - so that is my trigger i think. I'm finding sleeping really hard now because i'm constantly tense, waiting for another attack. Having read up on it i'm now a bit depressed that it's a permanent condition... Apparently it will get worse as i get older! How the pain can get any worse i have no idea. I am wary of taking medication but think i'll have to if the attacks become more regular. I just hope it doesn't interfere too much with my life
1 like, 9 replies
stevep1965 Guest
Posted
peter91333 stevep1965
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My daughter has suffered agony for a year now and nothing has worked. She had Microvascular decompression surgery and was told that this would probably do some good. She had awful post operative pain and still the trigeminal neuralgia has continued. Even on her better days she is really suffering and she is on all sorts of drugs which seem to do little for the pain but often make her feel sick. we even wonder whether something has been missed in the operation. You suggest that people find a good TN specialist and we wonder if you can tell us who sorted your problem out. She i due to see sombody at Sheffield Hallem next week.
j26253 stevep1965
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Thank you
stevep1965 peter91333
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RachisCool stevep1965
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RachisCool stevep1965
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ronda669 Guest
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ronda669 Guest
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jayne64414 Guest
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I've just had a procedure carried out to treat my trigemenial neuralgia. Glyeriol injection. I've never felt pain afterwards like it. They woke me up and my brain felt frozen. I was given lots of ormorph and cosine. Seven days later my nose eye teeth and ear are cold and dry...worse than before. I'm absolutely heartbroken. I'm shattered by it. The pain makes me sad and anxious. My son has special needs and my work life takes it's toll on my mental health. I really want this to stop.i regret having the procedure. My brain hurts. I would love to hear of anything I can do to help this feeling end. T.n specialist number anything??? Big love to you all x x