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Trigeminal Neuralgia

Posted , 6 users are following.

arun67789
arun67789

I have suffred from this condition for many years but it is well controlled by Tegretol apart from brief periods when the pain is more intense. I seem to developing a buzzing noise in my ear. Is this a common thing among longtime sufferes, please.

Arun

0 likes, 4 replies

4 Replies

  • adam88362
    adam88362 arun67789

    Posted

    I too have had a ringing/buzzing in my ears for around 6 or 7 months. I was on carbamazapine a couple of years ago originally to help with TN but came off that due to a reaction I had from it, so not sure I'd attribute it to that. 

    I ended up having an operation which I feel was responsible for the tinnitus, although my consultant at the time said it wasn't because of the operation.

    Interesting to hear someone else has the same issue though...

  • jennymb
    jennymb arun67789

    Posted

    I've had TN for a couple of years now which is controlled with Tegretol (thank God)

    I too have this ringing/buzzing in my left ear now and have often wondered if it is connected with the TN - if you're suffering with it too, it seems very likely that it is. I wonder if this is a common side effect - anyone else have it?

    jennyb

  • colin69485
    colin69485 arun67789

    Posted

    Hi arun67789

    When I'm having an attack, the whole area of my left ear and jaw feels uncomfortable and after a particularly acute bout, the whole area remains numb and highly sensitive.During the periods of remission, I experience no symptoms at all. I've had TN for about 2 years, so I'm a comparative novice! Colin

  • Glor888
    Glor888 arun67789

    Posted

    Hi Arun,

    I've been a sufferer of TN for over 20yrs on and off. As I've always suffered with my ears anyway I didn't relate it to TN whenever I had a bout, but I do believe any form of buzzing or ringing in the ears etc is one of the side effects that some sufferers can have. I checked on one site that did say Tegretol can cause this. It may be worth it to ask your GP to try you on a different drug. I know Tegretol is the best but if a different drug doesn't work for your TN you can always go back to Tegretol.

    Let us know how you get on.

    regards

    Gloriana

     

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