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Trigeminal Neuralgia

Posted , 4 users are following.

jennymb
jennymb

Hello all you fellow sufferers out there. I developed this most awful affliction in January this year. It was confirmed at my appointment with the neurosurgeon at our local hospital. It began with what I can only describe as a million electric shocks from the left side of my head and feeling like I had been punched from the back of my eye. I was in absolute agony thinking I was going blind.

Anyway, since then my wonderful friend has done loads of research (in fact he had diagnosed it well before I even saw the consultant) I was admitted into hospital and prescribed carbamazapine twice daily, this helped tremendously but still left me experiencing less severe electric shocks. This went on for three or four weeks until my GP said to take an extra 2oo mg . This has been great except that I am tired all the time and still get days when I am 'good for nothing' although mostly pain free (fingers crossed)

So, I would like to ask if everyone would mind answering a few questions regarding diet, it's not a survey, just something I would like to use to satisfy my curiosity.

I await your reply, meanwhile my sympathy to those of you that are still suffering and enduring this dreadful illness

1 like, 3 replies

3 Replies

  • Glor888
    Glor888 jennymb

    Posted

    Hi Jennymb,

    I can only assume that you're ok now or at least persevering with the medication. When I was on Tegretol (carbamazepine) I too was drowsy for a short while but then it eased off and I was fine.

    Please let us know how you are getting on now if possible. 

    Regards

    Gloriana

    • jennymb
      jennymb Glor888

      Posted

      Hi Gloriana - thanks for your reply. Hopefully it's under control, I pray that the medication keeps working. I have an almost normal life except for evenings when I am watching TV, I just go out like a light, confused  don't know whether it's the meds or old age, but I'm not complaining.

      Are you a sufferer too? Post a reply if you get chance

      kind regards

      jennymb

       

  • tracey74894
    tracey74894 jennymb

    Posted

    Hi jenny. So pleased the meds are working for you. I suffered with TN for for a couple of years. First on meds, then had 2 radio frequency ablasions (unsuccessful) eventually had MVD a complete success. Pain free for 2 years until a car accident in which I banged my head resulting in the Teflon pad inside brain dislodged 😧 the TN returned. Resulted in a 2nd MVD. Again a success 😃 I hope you keep pain free. Keep in touch
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