Trigeminal Neuralgia

Posted , 5 users are following.

I have this problem from 2 years in the start i used tegrol but now its not working and also i have pain in my right side of head,any sugestion.

2 likes, 5 replies

Report / Delete

5 Replies

  • Posted

    Have been ther before, took all sorts of pain relief but eventually nothing works, I had to have an operation called microvascular decompression and it worked very well have been pain free for 4 years now, the worst is the headaches after for 2 months but that was easy to take after the pain I hade for 7 years.
    Report / Delete Reply
  • Posted

    I got almost up to the maximum Tegretol that can be taken then had to add Lyrica which is a bit of a nightmare at first because it makes a person drowsy and you lose your words when  you try to explain something. Also Lyrica gave me hand twitches and made it difficult to do much. It wears off after a while. Most people seem to take Gabapentin which i have not tried.

    Is surgery an option for you?

    Report / Delete Reply
  • Posted

    I have tried Gabapentin and all the rest nothing worked for me 
    Report / Delete Reply
  • Posted

    There area lot of other drugs out there such as gabapentin, trileptal and amitripyline the last one might be a good idea as I know it is prescribed for headaches as it is a good pain blocker.Are you having cluster headaches that is another option to look at.
    Report / Delete Reply
  • Posted

    You might want to research Chronic paroxysmal hemicrania (CPH). I have both TN and CPH. The difference is, with CPH you have short bursts of pain like someone is stabbing you in the eye and your eye tears (runs). I had the MVD surgery for the TN and was pain free for 6 years. The CPH set off the TN so I ended up getting a Glycerol Rhizotomy in Nov 2014. So far it's holding but I have to have dental work soon, so I may be back where I started. The best thing about the nerve block is you can get one every 6 months. I have the best doctor in the world, Dr. Michael Lim (in my eyes) so be careful who you let dig in your brain. Hope you find some relief soon.
    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up